Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for December 2017

Are my nerves healing?

Hello everyone, It has been 7 weeks now since my loading doses of b12 and was just wondering how others experienced nerves healing? I was diagnosed with...

Hello everyone, It has been 7 weeks now since my loading doses of b12 and was ju...

EJG79

•7 years ago

20 Replies

PA and stomach diseases

Hi all. I have been sharing about my stomach issues while dealing with PA. Recently I had to go to the ER with stomach pain and passing blood. Bloodwork is...

Hi all. I have been sharing about my stomach issues while dealing with PA. Recen...

Wowo23

•7 years ago

2 Replies

B12 deficient steak lover

HI everyone, I am new here. I am a 27yr old female in the UK. Recently, I went to my GP with what I thought were Hypothyroid symptoms on my Mother's advice...

HI everyone, I am new here. I am a 27yr old female in the UK. Recently, I went ...

TMur1990

•7 years ago

14 Replies

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Wiggle your toes

Nerves?? Or try moving them. Try and see if this helps, even if it sounds dumb. Please get better. ox

Nerves?? Or try moving them. Try and see if this helps, even if it sounds dumb. ...

Fl17

•7 years ago

10 Replies

B12D and pregnancy

Hey, I need your help... Did some of you get pregnant while they had PA or a B12D or remaining symptoms of past B12D? What supplementation did you take...

Hey, I need your help... Did some of you get pregnant while they had PA or a B1...

Marybrown06

•7 years ago

6 Replies

Advice please after GP appointment review after loading B12 injections.

Hi all, I'm just back from yet another stressful GP appointment. In my last post I was thanking everyone especially Foggyme and Sleepybunny for helping me...

Hi all, I'm just back from yet another stressful GP appointment. In my last pos...

Cn13

•7 years ago

9 Replies

Leg cramps after starting treatment

Hi, I’ve had my first two loading doses this week and am also taking iron and folate. Since yesterday I’ve been getting cramps in my calf. Does anyone know if...

Hi, I’ve had my first two loading doses this week and am also taking iron and fo...

Kookookichoo

•7 years ago

6 Replies

Shortness of breath, extreme fatigue,

Hi folks, It was a month ago that I was sitting in a restaurant and suddenly I felt I'm not getting enough air. I had trouble breathing and wanted to get...

Hi folks, It was a month ago that I was sitting in a restaurant and suddenly I ...

Mcaru

•7 years ago

13 Replies

Dementia + memory loss

Any tips? Thanks in advance.

Fl17

•7 years ago

9 Replies

Vitamin B12 deficient

Hi my names Natalie. I’m new to this site. I’ve not been feeling very well for about 2 years. I’ve been feeling shaky, fingers numb, back pain. I went to the...

Hi my names Natalie. I’m new to this site. I’ve not been feeling very well for a...

Tayella

•7 years ago

33 Replies

B12

I'm in the US. Burst pack was one B 12 prescription pill I take once a week that has some crazy milligrams of it in it. Then I am to do B 12 shots. They said...

I'm in the US. Burst pack was one B 12 prescription pill I take once a week tha...

Renee1031

•7 years ago

3 Replies

Pernicious Anaemia

I have Epilepsy, rheumatoid Arthritis but I also have four female family members with Pernicious Anaemia, I am feeling really ill at the moment- exhausted,...

I have Epilepsy, rheumatoid Arthritis but I also have four female family members...

EmmaDR

•7 years ago

15 Replies

PA

Can you still get tested for pa if you are taking vit b12 spray? Thanks

Hidden

•7 years ago

4 Replies

Help with symptoms

When diagnosed nearly two years ago with b12 deficiency, I had multiple symptoms which I have posted previously. I was (am) a vegetarian verging on vegan and...

When diagnosed nearly two years ago with b12 deficiency, I had multiple symptoms...

Alfabeta

•7 years ago

15 Replies

B6 Warning

A word of warning to anyone taking high potency B complex or drinking lots of energy drinks! I experienced quite severe balance problems and ended up in...

A word of warning to anyone taking high potency B complex or drinking lots of en...

helaynie

•7 years ago

3 Replies

Anti-Ro (Positive ENA)

Hi folks, Well I'm still SI but not much has changed. Some improvement in mood, bowel problems and burning feet/legs. I'm waiting for the results of an MRI...

Hi folks, Well I'm still SI but not much has changed. Some improvement in mood, ...

AmyG6500

•7 years ago

3 Replies

PA and b12 sublinguals

Hi all. With my PA, I've been taking weekly injections which have worked ok. I recently started on daily sublinguals because I could feel symptoms returning a...

Hi all. With my PA, I've been taking weekly injections which have worked ok. I r...

Wowo23

•7 years ago

10 Replies

Help!!

I suffer chronic migraines almost on a daily basis for five years now. I am also now going through. Menopause. I went to have my hormone levels checked the...

I suffer chronic migraines almost on a daily basis for five years now. I am als...

Renee1031

•7 years ago

3 Replies

Alert...

Since i am having tingling over all body,dizziness,fatigue,anxiety,depression and i didnot get the right diagnosis...with in 6 months .because somewhere i have...

Since i am having tingling over all body,dizziness,fatigue,anxiety,depression an...

Sandhya_rani

•7 years ago

55 Replies

Side Effects - jelly legs

Hi All, Following on from 1st injection yesterday I wondered if anyone else had a strange feeling in their legs after 1st shot? I had jab in my left arm and...

Hi All, Following on from 1st injection yesterday I wondered if anyone else had...

Eoperez

•7 years ago

2 Replies

Update on taking tablets

This maybe of interest to some 6months ago I was diagnosed with b12 deficiency reading 176 pg/ml 180-914 symptoms foggy head, unable to walk properly,...

This maybe of interest to some 6months ago I was diagnosed with b12 deficiency r...

calbous

•7 years ago

11 Replies

Wahoo I won....well kind of

Well after months of being fobbed off and a referral to haematology that never actually happened and a pretty blunt letter to the GP on Friday telling her that...

Well after months of being fobbed off and a referral to haematology that never a...

Eoperez

•7 years ago

19 Replies

b12 shots - type, how much & when??

Hi guys/girls, just looking for some advice. Doctor has currently point blank refused me any injections, since my Full Blood Count results all came back saying...

Hi guys/girls, just looking for some advice. Doctor has currently point blank re...

Dan10

•7 years ago

29 Replies

PA clotting characteristics

May I ask if the deformed red blood cells associated with PA are more likely to clot sooner then normal healthy red blood cells? In the past when my blood has...

May I ask if the deformed red blood cells associated with PA are more likely to ...

jointpain

•7 years ago

2 Replies

New here, long term suffer but getting worse recentley, ,,

Please exuse my grammer and spelling, im not feeling overly wonderful... Hi, im new here so im probably missing a whole lot of infomation but Ive been PA since...

Please exuse my grammer and spelling, im not feeling overly wonderful... Hi, im ...

Fudgemanjim

•7 years ago

10 Replies

Adverse effects with Hydroxocobalamin

I was severely B12 deficient for over a year and I was self-injecting myself with Cyanocobalamin for a month and I was getting better everyday. My neurological...

I was severely B12 deficient for over a year and I was self-injecting myself wit...

mariojurik8

•7 years ago

20 Replies

Results advice please

Nothing done about them thank you Ferritin 4 (15 - 150) Folate 1.3 (2.5 - 19.5) Vitamin B12 135 (180 - 900) Vitamin D 34.4

Nothing done about them thank you Ferritin 4 (15 - 150) Folate 1.3 (2.5 - 19.5...

Zara1213

•7 years ago

4 Replies

Can anyone advise me what to do?

Hi -I’m wondering if anyone can Point me in right direction of what to do.I have various physical health problems and am on several medications-I was changed...

Hi -I’m wondering if anyone can Point me in right direction of what to do.I have...

emmamarieb1975

•7 years ago

8 Replies

Thanks

To all my friends really thankful to your respose...

Sandhya_rani

•7 years ago

8 Replies

B VITS AND TOURRETTES

I have started to develop unexpected outbursts of inappropriate language. Luckily this happens mainly when I am on my own at home. Can anyone tell me if this...

I have started to develop unexpected outbursts of inappropriate language. Luckil...

toph

•7 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2017

Are my nerves healing?

PA and stomach diseases

B12 deficient steak lover

Wiggle your toes

B12D and pregnancy

Advice please after GP appointment review after loading B12 injections.

Leg cramps after starting treatment

Shortness of breath, extreme fatigue,

Dementia + memory loss

Vitamin B12 deficient

B12

Pernicious Anaemia

PA

Help with symptoms

B6 Warning

Anti-Ro (Positive ENA)

PA and b12 sublinguals

Help!!

Alert...

Side Effects - jelly legs

Update on taking tablets

Wahoo I won....well kind of

b12 shots - type, how much & when??

PA clotting characteristics

New here, long term suffer but getting worse recentley, ,,

Adverse effects with Hydroxocobalamin

Results advice please

Can anyone advise me what to do?

Thanks

B VITS AND TOURRETTES

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