Good Evening to all who read this.
My 28 year old daughter is about 28 weeks pregnant with 1st baby. She was diagnosed with low b12 just over a year ago. She had a multitude of both physical and neurological symptoms but her g.p. refused to do anything other than the 6 loading doses and the 3 monthly booster. This was not enough to keep her symptoms at bay, let alone start to repair any neurological damage. We decided to assume responsibility for our own treatment, as I myself have also found out that I have the same problems, again with lots of neuro symptoms including a degree of psychosis. I'm Dad by the way. My daughter has been self injecting hydroxy 1mg on an every other day basis since last summer. When she became pregnant, she did stretch it out to 3 days between jabs but that was slowing down her recovery process. Her obstetrician, I think through lack of knowledge, panicked and sent her to a haematologist. We thought that would be good, at last she can get to see somebody who understands their own speciality (hooray). How wrong can one be.
She has just sent me the following text message:
'Just saw the haematologist. Zero help, was a waste of time. The gist of her opinion was that she would never recommend anyone ever uses injections so regularly. In her experience she has never known anyone with a b12 deficiency to need more than the 3 monthly injection. She suggested I could be doing more harm than good. Now wants me to have another scan to check the growth. She went on to say that some of the preservatives in the b12 injections give a euphoric feeling and suggested that I am addicted to the injection and that I stop from injecting immediately. She said I should just have 3 monthly injections but as I explained my symptoms return she said monthly injections at the most- but made it clear she does not even recommend that. She has also prescribed me a higher dose of folate to take as she says they are unsure of how "overdosing" on b12 can affect folate levels.
Oh I almost forgot, she was very concerned that I was using a sterile and new needle for each jab. Clearly, she thinks I might be some sort of drug addict.'
Well were can we go from this point please? I would be particularly interested to hear from anyone who has gone through pregnancy with b12 deficiency and or self injection.
It is probably not helpful to comment on professional competence, but it does seem that ignorance and arrogance make splendid bedfellows.
Best wishes to all.