I'm new to the forum and would love some advice as I really am getting desperate with not getting any answers or support from doctors!
At the start of last year, I became suddenly ill. At my request, a stool specimen was tested for parasite eggs and I was told I had Giant Roundworm. I took the treatment, and my symptoms changed but I got more and more unwell. I've seen a gastroenterologist who carried out various blood tests and I'm waiting for the results of a biopsy taken during an endoscopy, but he thinks it will find nothing and that I'm depressed(???). I've also seen a rheumatologist, who dismissed me as soon as he saw me and also said I'm depressed(??!!?). He did some basic blood tests but that's it.
Anyway, I know this seems unrelated to b12 but back in November I had my serum b12 tested and it came up as 163 (ng/L). My ferritin was ok (I think?) at 96 (ng/ml) and my serum folate was 2.7 (ng/ml). My vitamin D was low at 32 and I had been outside a lot during the summer. My GP prescribed me 3 months of folic acid pills, but said my b12 wasn't low enough for the NHS to treat and to get a general supplement from a health store. Same with the vitamin D.
So, here I am now with worsening symptoms which are largely neurological. My most concerning symptoms are:
Extreme, sudden dizziness (sometimes improves briefly after eating)
Nerve pain (bodywide, on and off, most recently on scalp), buzzing in legs, burning sensations, numbness, tingling
Muscle twitching, small jerks, muscle tension and pain, easily injured muscles
Chest pain (heart has been checked), palpitations, racing heartbeat
Acid reflux, seem to have difficulty breaking down foods (present in stool) and recently difficulty swallowing (food gets stuck in left side of throat)
Visual disturbances - sudden onset of really bad floaters, eyes sometimes have trouble focussing together, sometimes vision is blurred.
Feeling shaky, out of breath, just weak and wobbly in general and fatigued
Sudden appearance of (what appear to be) varicose veins and broken veins, vein pain, really visible veins
A weird "headache" that doesn't hurt so much as feel that in a specific place (there's a ridge there) it feels as if someone is pushing from both the inside and outside
Anxiety (I'm a naturally anxious person, and not knowing what's wrong and if it's serious/permanent definitely adds to that, but I feel as if some is coming directly from whatever is causing me to be so unwell)
I'm sure there are things I've forgotten, but this is such a long post anyway (I'm sorry!) that I'll leave it at that.
Basically, does anyone have any ideas on what I should do next? My GP is clueless, but usually will carry out tests if I ask for them. I'd ideally like to be referred to a neurologist but I'm not sure she'll be able to currently as I'm awaiting an appointment with infectious diseases specialists (as this started after infection).
Thanks so much for reading and any suggestions