Hi, I haven't posted here for a while but wanted to update with some good news.
My injections were stopped 4 years ago and at the time I didn't question it. Since that time I have been gradually feeling worse and I went to see my GP in March this year. My b12 blood result came back within the normal range, my doctor wanted to diagnose CFS but after a conversation with Martyn Hooper and some helpful responses on here I decided to challenge my GP's decision. I wrote to my GP on 30th May with lots of information from NICE and BSH, I had my appointment today to discuss the letter and I am happy to say he has decided to reinstate my injections starting with loading doses. He wants to meet again in 6 weeks time and if I've noticed a difference in the way I feel he will give me a diagnosis of pernicious anemia with injections for life! I was so relieved I cried!
Keep fighting, it's hard when you feel dreadful but I'm so glad I didn't give up!
Thank you for the responses I received on here they helped immensely.