update on gp: saw my gp today for... - Pernicious Anaemi...

Pernicious Anaemia Society

32,319 members23,535 posts

update on gp

jillc39 profile image
9 Replies

saw my gp today for another matter, but at the end of the consultation I mentioned the dreaded b12 - she cut me off at the pass by saying that she thought there were going to be changes in the NICE recommendations and is keeping her eye on this. Does this mean anything to anybody? or was it just a way to get me out of the door........

Written by
jillc39 profile image
jillc39
To view profiles and participate in discussions please or .
Read more about...
9 Replies
helvella profile image
helvella

In one sense, does it matter? Shouldn't she be following them as they are right now? Or making her own decision not to follow them but accepting the responsibility.

Anyway, it would be interesting to know what might be in the pipeline. Good or bad.

Chocolate41 profile image
Chocolate41

Sounds good to me.Let us know if you hear anything else.Maybe they will eventually catch on!!

JGBH profile image
JGBH

Hi Jillc39,

Fairly sure this was her way of not to have o discuss b12 and getting out of it! WHY are GPs hellbent on not helping patients? Rather uncaring and unconcerned... If you hear about any good change I'm sure you'll let us all know. Hope you can eventually get the treatment you need. Am still trying and despair...

Gambit62 profile image
Gambit62Administrator

The PAS - in particular Martin - has been in regular contact with NICE and updating the guidelines - it is part of a regular process and has been affecting other conditions as well.

There is more on it in Martin's blog reviewing 2016 and looking forward to 2017

martynhooper.com/2017/01/04...

However, as helvella points out your GP needs to be using professional judgement and not just blindly following guidelines.

jillc39 profile image
jillc39

Ha! Gambit62, fat chance!

BethattheBeach profile image
BethattheBeach

Jillc39, have you tried taking someone with you for back up? Also, a list of symptoms and how they react to the shot? Don't let her off so easily!!

Frodo profile image
Frodo

I may be wrong but I think I've seen something about the NICE guidelines being updated. As well as what PAS are doing, I believe Tracey Witty, who runs B12deficiency.info, corresponded with the medical profession/NICE/the drug companies about the clinical reasons for the current treatment guidelines - I believe nobody official could give her any medical reasons or find any legitimate history on how or why the current treatment guidelines had been reached from a medical/disease perspective.

There was some talk of the guidelines being down to an audit carried out in a couple of GP practices about 40 years ago to cut down on the work of the district nurse by limiting the number of injections nurses had to give.

Your doctor should treat you in the meantime if you're symptomatic, whatever.

jillc39 profile image
jillc39

well she just wont, and says she could loose her license if she went against the protocol.

Sleepybunny profile image
Sleepybunny in reply to jillc39

Do you know what "protocol" she was referring to?

Not what you're looking for?

You may also like...

Vit D

Does anyone have any idea what's so ever why I can not tolerate vit D supplements. I'm low in vit...

Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?

Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around...

Gluten and B12 deficiency

Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved...

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about...

Me again

I will be self injecting. I was told to get my supplies from medisave but it won't let me order...