My daughter 28y old has been diagnosed b12 deficiency today .... she went for a pill check ... The nurse casually said oh your last blood results say you are low b12. My daughter replied no I think you are wrong I spoke to my doctor about my results and was told all was fine.
To say I'm mad is an understatement, she been passing out and all the usual symptoms, she thought she was going mad.
Grrrrrrrrrrr
Written by
catherinejordan
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"My daughter 28y old has been diagnosed b12 deficiency today"
I hope at her next appt the GP will say what he/she thinks has caused the B12 deficiency because I guess what they think has caused it, will affect the pattern of treatment she gets.
Has GP seen this flowchart in teh BSH Cobalamin and Folate guidelines? My understanding is that it suggests that anyone who is symptomatic for b12 deficiency or has low b12 should have an IFA test (Intrinsic Factor Antibody).
"daughter replied no I think you are wrong I spoke to my doctor about my results and was told all was fine."
Hope your daughter is able to get copies of all her blood results. the lab may have made a comment on her B12 result that an IFA test is recommended because of low B12 levels.
I have taken the following with me to appts where B12 might be discussed.
I ticked all my symptoms on the PAS list plus added any neuro symptoms that weren't on the list. Hopefully she'll get the UK treatment for B12 deficiency with neuro symptoms if she has any neuro problems.
2) BSH Cobalamin and Folate Guidelines
b-s-h.org.uk/guidelines/ click on box that says "Diagnosis of B12 and Folate Deficiency" should be on page 3 or put "cobalamin and folate guidelines" in search box.
3) Martyn Hooper's book "What You Need to Know About Pernicious Anaemia and Vitamin B12 Deficiency" to give to GP if they showed real interest.
Summary of B12 documents
fbirder compiled a summary, link in third pinned post (last link in list) I found this useful when faced with a medic who wasn't up to date with B12 info.
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