Hello, thought it time to introduce myself as I have been lurking for a few months now. I'm 43 and have been increasingly ill over the last ten years 😕 It started with just mild tingling/ prickles in the left side of my face, at this time I had already been diagnosed with endometriosis and had several camera ops to sort, which Drs said had worked but I was still in severe pain 😕. I was referred to neurologist and had a MRI, they could find nothing and nothing was done.
My list of symptoms are now as follows, I have been diagnosed with fibromyalgia, Raynaud’s and paresthesia which occurs all over! Fatigue, especially in the morning when I need to get up but I do have trouble sleeping some of the time too. Lack of balance especially at night when I'm trying to get to the bathroom in the dark but I also stumble for no apparent reason at anytime.
For some time now my gums bleed when I brush them and I keep getting a sore on my gum, roughly in the same place where I had a tooth removed many years ago.
My hair used to be lovely and thick but now it is thin and brittle with a generous sprinkling of grey which doesn't seem to get worse. I also have dry scurfy skin on my scalp but also my skin all over is very dry but will not absorb creams at all. All my nails are weak and break easily, they also seem to have gained ridges which run from the cuticle up and they often split down the ridge.
I have had around 10 or 11 MRIs now and the specialist does not think I have Multiple Sclerosis but I do have inflammation in my lumber region of my spine. No one wants to listen to me, they just keep pushing me to take this and that drug which don't work and doesn't find the cause just hides some of the symptoms!
With all this I am not able to work full time so money is in short supply. Last Monday I had had enough so went to see the dr and tell him how fed up I am of not being listened to. I've not seen this one before and he was understanding and organised another general blood test and I am going back on this Monday to get the results and see where we go from here, I have asked to see a haematologist as I think I have a b12 deficiency buy my blood tests always come back 'normal'. I really don't know what to do now 😕
Photo is of my 'baby' Luna who keeps me sane and active as we do agility together and I show her ❤😊