Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for October 2016

IFA and anti-parietal cell antibodies testing I'm taking B12 shots will it affect result

Hi everyone and once again thank you for all the support I've been shown it's quite emotional! So I saw a locum today when in to ask for a prescription. After...

Hi everyone and once again thank you for all the support I've been shown it's qu...

Hidden

•8 years ago

9 Replies

First SI & Auto-Injector

Hi guys thank you for all the advice and encouragement. I have a life long needle phobia and have done my first SI yesterday using an auto-injector (shut my...

Hi guys thank you for all the advice and encouragement. I have a life long needl...

Galadriel1

•8 years ago

1 Reply

Genetic Testing - Useful info or Project Fear?

It seems that the incidence of genetic testing for medical reasons is becoming more and more common. What doesn't seem to be getting more common is a sensible...

It seems that the incidence of genetic testing for medical reasons is becoming m...

fbirder

•8 years ago

3 Replies

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rerun

hi I posted my BH results a few months ago were not good now tell got GP results could someone could someone plz explain them B12 serum 391ng/1......

hi I posted my BH results a few months ago were not good now tell got GP result...

Lucieb01

•8 years ago

2 Replies

First Injection Done...thank you all

I've just done it !!!!! No pain inserting needle , what was I worried about. I can't thank those of you who have walked me through this enough!!!! This is MY...

I've just done it !!!!! No pain inserting needle , what was I worried about. I c...

Justified

•8 years ago

11 Replies

Numb and aching hands and arms even after b12 loading dose! How long will it take to feel better

I completed my loading dose 4 weeks ago, and I felt a lot better..my worse symptoms were tingling aching hands and arms, fatigue and anxiety. 10-12 later the...

I completed my loading dose 4 weeks ago, and I felt a lot better..my worse sym...

Tehmeena

•8 years ago

9 Replies

gaining weight

does anyone else take pregaberlin and finding they are gaining weight. my tummy is huge, really getting bigger every day. my gp shrugged it off with, oh yes,...

does anyone else take pregaberlin and finding they are gaining weight. my tummy...

jillc39

•8 years ago

7 Replies

Hi im new , would appreciate your advice x

Hi i been ill really bad last ten years but now looking back and understanding think have been my whole life. My nan had pa and died last year after dementia...

Hi i been ill really bad last ten years but now looking back and understanding t...

Mandlou

•8 years ago

44 Replies

Still suffering

I was diagnosed as b12 deficient and told my levels were very low but not the actual level. I had 6 injections and, although symptoms existed during that...

I was diagnosed as b12 deficient and told my levels were very low but not the ac...

Alfabeta

•8 years ago

6 Replies

trying my best to inject

PLucked up the courage to try. Got everything ready.Broke vial and tried to draw up. It was making sooking up noises, needle scraping vial and I drew up too...

PLucked up the courage to try. Got everything ready.Broke vial and tried to dra...

Justified

•8 years ago

22 Replies

Appointment with cardiologist this morning

I have just returned from an appointment in relation to referrals made by my GP after seeing him for poss P.A which he refuses to diagnose. The cardiologist...

I have just returned from an appointment in relation to referrals made by my GP ...

Hidden

•8 years ago

17 Replies

Deja vous symptomatic daughter and GP's outrageous solution

So I speak to another GP at my practice yesterday after asking for a call in relation to daughters worsening fatigue, possible glossitis and blood results that...

So I speak to another GP at my practice yesterday after asking for a call in rel...

Hidden

•8 years ago

6 Replies

foot pain the in the night

I have given in.... cant fight any more with gp - so now have b12 injection once a month (soon to be downgraded to every three months) - but secretly self...

I have given in.... cant fight any more with gp - so now have b12 injection once...

jillc39

•8 years ago

3 Replies

Do I need B12 injections or are sublingual lozenges enough?

Hi, I'm new here. I saw a news report recently about PA patients supplementing their NHS injections with stuff bought off the internet. When the interviewee...

Hi, I'm new here. I saw a news report recently about PA patients supplementing t...

SNEWEY

•8 years ago

8 Replies

PA & ppi's

I've been taking a ppi for years. From what I understand that's a bad thing for someone with PA? Is there a suppliment I can take for the reflux I feel instead...

I've been taking a ppi for years. From what I understand that's a bad thing for ...

BigCatFreak

•8 years ago

30 Replies

Iron RDW

I was told with my RDW being 12.7 that my iron is low. My only question is how often should I take iron if I only do 1 injection per week right now? When I...

I was told with my RDW being 12.7 that my iron is low. My only question is how o...

Ithinkimdying

•8 years ago

11 Replies

Nausea

Hi all! Haven't posted in awhile. Lately I've been extremely nausea and sick to my stomach. Along with feeling rather dizzy! It sucks super bad. I've been...

Hi all! Haven't posted in awhile. Lately I've been extremely nausea and sick to...

Ithinkimdying

•8 years ago

5 Replies

Help with blood results

Hello So I went for my full blood count including folate b12 and intrinsic factor ( I can't see that on there)?? Same as before " no further action " The...

Hello So I went for my full blood count including folate b12 and intrinsic facto...

Ndobins

•8 years ago

11 Replies

Folate

Serum Folate 12.5 ug/L >4.6 I can't work out if this is a good or bad result. Help please?

Serum Folate 12.5 ug/L >4.6 I can't work out if this is a good or bad re...

Margo

•8 years ago

4 Replies

FIBROMYALGIA II

I posted a month ago re a diagnosis of Fibromyalgia alongside PA and got some great advice and tips from several of you. I've just been to the GP, armed with...

I posted a month ago re a diagnosis of Fibromyalgia alongside PA and got some gr...

Callo56

•8 years ago

6 Replies

Macrocytosis

I am currenty battling with my gp to restart my b12 shots following loading doses ( in another post ) I do not have a definitive diagnosis of pa, but I am b12...

I am currenty battling with my gp to restart my b12 shots following loading dose...

Kenbowns

•8 years ago

2 Replies

Hallucinations

Hi All I had my 6 b12 injections nearly three months ago and will have the next injection early November. Prior to the injections my symptoms were:...

Hi All I had my 6 b12 injections nearly three months ago and will have the next ...

Alfabeta

•8 years ago

4 Replies

Dr doesn't believe positive parietal cell antibody bloodwork?

Hey guys it's me again! So we all know now I have very low ferritin and am on twice weekly b12 shots. Feeling alive finally! BUT, my stomach issues and not...

Hey guys it's me again! So we all know now I have very low ferritin and am on tw...

Ladyawkward

•8 years ago

8 Replies

Autism and folinic acid

http://www.arkansasmatters.com/news/local-news/ar-childrens-research-shows-folinic-acid-could-help-autistic-children A finding on folate and autism which may...

http://www.arkansasmatters.com/news/local-news/ar-childrens-research-shows-folin...

Hidden

•8 years ago

36 Replies

folic acid

i have been taking folic acid tablets because 'm getting monthly jabs. Doc told me today I don't need these. I thought you had to take them if you are getting...

i have been taking folic acid tablets because 'm getting monthly jabs. Doc told ...

Justified

•8 years ago

13 Replies

More publicity...

Tracey Witty's campaign to publicise the total lack of any science behind the NHS one-size-fits-all policy on treatment of B12 deficiencies get's more exposure...

Tracey Witty's campaign to publicise the total lack of any science behind the NH...

fbirder

•8 years ago

4 Replies

High vitamin b12

My son's b12 was 2500. Anyone with a high b12, have the doctor check for Hypogammaglobulinemia.

My son's b12 was 2500. Anyone with a high b12, have the doctor check for Hypoga...

Talia

•8 years ago

2 Replies

Infantile unexplained temperature

I was a child as was my under investigation sister who suffered with unexplained infantile temperatures. My children both had the same from about 3 months. No...

I was a child as was my under investigation sister who suffered with unexplained...

Hidden

•8 years ago

6 Replies

Update on other half!!!!

Well I've been writing on here about my husband and thought I'd let you know how he's getting on. From being at rock bottom emotionally and physically around...

Well I've been writing on here about my husband and thought I'd let you know how...

christina1952

•8 years ago

18 Replies

One sided neuropathy

I am new here but was diagnosed with PA 30 years ago. My B12 levels are high as I have regular and frequent injections but recently, following a throat/gland...

I am new here but was diagnosed with PA 30 years ago. My B12 levels are high as ...

Wm3521

•8 years ago

4 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2016

IFA and anti-parietal cell antibodies testing I'm taking B12 shots will it affect result

First SI & Auto-Injector

Genetic Testing - Useful info or Project Fear?

rerun

First Injection Done...thank you all

Numb and aching hands and arms even after b12 loading dose! How long will it take to feel better

gaining weight

Hi im new , would appreciate your advice x

Still suffering

trying my best to inject

Appointment with cardiologist this morning

Deja vous symptomatic daughter and GP's outrageous solution

foot pain the in the night

Do I need B12 injections or are sublingual lozenges enough?

PA & ppi's

Iron RDW

Nausea

Help with blood results

Folate

FIBROMYALGIA II

Macrocytosis

Hallucinations

Dr doesn't believe positive parietal cell antibody bloodwork?

Autism and folinic acid

folic acid

More publicity...

High vitamin b12

Infantile unexplained temperature

Update on other half!!!!

One sided neuropathy

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