A few months ago I wrote on here to share how my Dr had said he could no longer help me and gave me the label above saying its just something I would have to live with and I could join a group of like sufferers....
So I went and saw a nutritionist at the Brain Bio Centre and agreed to pay for a variety of blood tests. To cut a long story short I do have food allergies wheat and diary )and have to cut of sugar etc; but (a urine test that the NHS do not do) showed I have PYROLURIA, a genetically determined inbalance involving an abnormality in hemoglobin synthesis. Basically my body does not retain B6 and Zinc, never has. When I looked Pyroluria up I was amazed at the amount of info and relieved that how I had felt for as long as I remember, with increased symptoms the older I got, was not in my imagination !
Supplements for the rest of my life but 3 weeks in with the additional supplements I take to assist the B6 &Zinc being absorbed, I feel a marked improvement to my symptoms and its early days !
I know this wont be applicable to everyone and I was going down the B12 PA as the symptoms were so close. Thank you to all who were so supportive with messages.