Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,227 members • 23,397 posts

All posts for May 2016

Wedding

I fly to America in two weeks to get married I just hope this damn illness is under control

I fly to America in two weeks to get married I just hope this damn illness is un...

catherinejordan

•8 years ago

19 Replies

Living with PA

Today i woke up stiff i couldn't walk fully. I tried to stretch and my muscles still feel terrible and both my knees constantly pop. So here i am 25 limping...

Today i woke up stiff i couldn't walk fully. I tried to stretch and my muscles s...

Ithinkimdying

•8 years ago

21 Replies

Eh? I might not have Hashis??

I've read this a few times but still don't really get it. Is it really possible I might not have Hashis?? "Mistake 7: Believing You Have Hashimoto’s Based...

I've read this a few times but still don't really get it. Is it really possible ...

infomaniac

•8 years ago

8 Replies

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Off to see a neurologist…

Hi. My GP has referred me to the neurologist. I think to reassure herself that my symptoms are compatible with my PA diagnosis. I can’t get too excited as it...

Hi. My GP has referred me to the neurologist. I think to reassure herself that m...

sirlam

•8 years ago

9 Replies

Update!

Just updating to let you know that I finally got a hold of my original GP (she was making a house call at my grandparents' house so that was convenient) and...

Just updating to let you know that I finally got a hold of my original GP (she w...

KCxo

•8 years ago

2 Replies

New to injections..what to expect?

Hello, I've just had my 5th injection in 5 days (I also had 3 weekly injections prior to this) and have had not improvement in my symptoms-namely...

Hello, I've just had my 5th injection in 5 days (I also had 3 weekly injections ...

Booksellercate

•8 years ago

18 Replies

Anyone taking Betaine for stomach problems?

Morning all, I've just heard about Betaine, does anyone know if it is worth taking for acid reflux problems? I have PA so want to know whether it will be...

Morning all, I've just heard about Betaine, does anyone know if it is worth taki...

shipscat

•8 years ago

7 Replies

My story PA

When i was young 3-5 i had ear infections constantly. So i was put onto antibiotics all the time. By age 5 i hit my elbow and had my very first fainting spell...

When i was young 3-5 i had ear infections constantly. So i was put onto antibiot...

Ithinkimdying

•8 years ago

8 Replies

Hip knot/dent above knee

This could or could not be related but I do need advice or opinions! I've developed a dent or sink hole right above my knee in my left leg which was my good...

This could or could not be related but I do need advice or opinions! I've develo...

Ithinkimdying

•8 years ago

10 Replies

IM injection

Is it normal to have some bleeding after IM injection? Sometimes this happens not always not sure if this means its not going in the right area or what?

Is it normal to have some bleeding after IM injection? Sometimes this happens no...

Ithinkimdying

•8 years ago

2 Replies

An Interesting article for the weekend

http://chriskresser.com/is-a-disrupted-gut-microbiome-at-the-root-of-modern-disease-with-dr-justin-sonnenburg/?mc_cid=41fd522fe0&mc_eid=fcbb692cdc

http://chriskresser.com/is-a-disrupted-gut-microbiome-at-the-root-of-modern-dise...

Polaris

•8 years ago

10 Replies

Caring doctor, just doesn't understand PA.

Just when I feel that my doctor has read up on pernicious anaemia, due to allowing me to have injections every 4 weeks, having gradually reduced the gap front...

Just when I feel that my doctor has read up on pernicious anaemia, due to allowi...

Forest1000

•8 years ago

36 Replies

World's longest living woman

Listening to the 'Today' programme on radio four this morning, I was struck by an item about the world's longest living woman having just died. If I remember...

Listening to the 'Today' programme on radio four this morning, I was struck by a...

Polaris

•8 years ago

25 Replies

Chest pain/shoulder pain

Hello all! I was wondering if its common to have chest pain (stiff soreness) and shoulder blade pain/soreness with low b12. My b12 level was 197. I had 18...

Hello all! I was wondering if its common to have chest pain (stiff soreness) and...

Ithinkimdying

•8 years ago

38 Replies

Doctor says normal?

Hello, would appreciate some advice from people with experience of these things... Been feeling bad for ages now - fatigue (even after lots of sleep), no...

Hello, would appreciate some advice from people with experience of these things....

littlepotofjelly

•8 years ago

43 Replies

Blood Test Results

Blood test end of April gave some results that I would appreciate some advice on if anybody can help. Red blood cell distribution width 21.2(+) Mean cell...

Blood test end of April gave some results that I would appreciate some advice on...

onyx33

•8 years ago

4 Replies

Private blood test & gp visit & response

1 injection of Hydroxocolamin 1mg one every 2 weeks for 4 then 1 every 3 months... I'm not that bad according to him... 5 mg of folic each day... 10.000 Pro d3...

1 injection of Hydroxocolamin 1mg one every 2 weeks for 4 then 1 every 3 months....

scorpiojo

•8 years ago

4 Replies

Doctors today

Good Morning everyone, it's very hazy today. I'm off to see the docs today and hopefully get some help with this blood clotting problems. My stomach has been...

Good Morning everyone, it's very hazy today. I'm off to see the docs today and h...

Bentleyboo

•8 years ago

11 Replies

Endoscopy

Hey guys further to my earlier post I have attached my FBC these were done once I had started on iron tablets 644 mg per day F Fermerate after 4 months hope...

Hey guys further to my earlier post I have attached my FBC these were done once ...

Pixielula

•8 years ago

12 Replies

Thank you to kind gentleman who phoned

Good Afternoon everyone, Sun is shining so out I go in my garden and watch my dogs play. I wrote on here a couple of times and received some useful information...

Good Afternoon everyone, Sun is shining so out I go in my garden and watch my do...

Bentleyboo

•8 years ago

8 Replies

Petition for new test for PA

Hi All, In my random readings about B12 this morning I came across another reference to the Schilling Test. This is an excellent method of testing for B12...

Hi All, In my random readings about B12 this morning I came across another refer...

fbirder

•8 years ago

25 Replies

Help

Please can someone tell where I can buy B12 ampules.

Buzylizzy62

•8 years ago

4 Replies

Public or Private Postings? A quick question from a Newbie. I think I Lost It!

Hello all. If any of you have read yesterday's post from @TAB 100 you will have seen an ill informed comment posted there by a member from another community....

Hello all. If any of you have read yesterday's post from @TAB 100 you will have...

Foggyme

Administrator•8 years ago

21 Replies

Methylcobalamin injection

Hi all, I'm looking for some advice really. I was diagnosed with pernicious anaemia 10 years ago when I was 23. I self inject cyanocobalamin monthly but would...

Hi all, I'm looking for some advice really. I was diagnosed with pernicious anae...

Murfie276

•8 years ago

9 Replies

B12...and supporting vitamins/minerals

Hello, I'm on day 3 of self-injecting 1mg hydroxocobalamin (finally!). I've read a lot about the various vitamins and minerals which can help optimise your...

Hello, I'm on day 3 of self-injecting 1mg hydroxocobalamin (finally!). I've read...

Booksellercate

•8 years ago

15 Replies

Blood tests for B12 giving misleading results

Can anyone point me to the research which shows that serum levels of B12 may not show the true state of B12 deficiency? Thanks

Can anyone point me to the research which shows that serum levels of B12 may not...

chris2008

•8 years ago

13 Replies

B12 too high..

I've got MS and have been feeling poorly for about a month with MS symptoms. I went to see my MS Dr last Friday and he tested my blood. Today I spoke to my MS...

I've got MS and have been feeling poorly for about a month with MS symptoms. I w...

TAB100

•8 years ago

31 Replies

just back from gp..........

I went armed with literature - she said no one ever gets a b12 injection under 4 weeks. no way would she give me one - but when I said b12 injections are...

I went armed with literature - she said no one ever gets a b12 injection under 4...

jillc39

•8 years ago

13 Replies

Endoscopy done :-(

Well guys had the endoscopy, I've got a sinking heart as I type this, every one is fixated on the anaemia!!! Do I vomit blood? is there blood in my urine? Is...

Well guys had the endoscopy, I've got a sinking heart as I type this, every one...

Pixielula

•8 years ago

21 Replies

I'm new to this.

It's back again. Hello I'm new too this. I was diagnosed about 2mos ago with b12 deficiency. Dr told me at first to take one pill a day which wasn't doing...

It's back again. Hello I'm new too this. I was diagnosed about 2mos ago with b12...

Bjonson

•8 years ago

12 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2016

Wedding

Living with PA

Eh? I might not have Hashis??

Off to see a neurologist…

Update!

New to injections..what to expect?

Anyone taking Betaine for stomach problems?

My story PA

Hip knot/dent above knee

IM injection

An Interesting article for the weekend

Caring doctor, just doesn't understand PA.

World's longest living woman

Chest pain/shoulder pain

Doctor says normal?

Blood Test Results

Private blood test & gp visit & response

Doctors today

Endoscopy

Thank you to kind gentleman who phoned

Petition for new test for PA

Help

Public or Private Postings? A quick question from a Newbie. I think I Lost It!

Methylcobalamin injection

B12...and supporting vitamins/minerals

Blood tests for B12 giving misleading results

B12 too high..

just back from gp..........

Endoscopy done :-(

I'm new to this.

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