Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,226 members • 23,393 posts

All posts for May 2016

Vitamin b12 treatment - the symptoms are coming back

Hi, guys. I'm Brazilian and new here. I'm not expert in english so I'm sorry about the grammar mistakes I'll make. Like everyone here, I really need help with...

Hi, guys. I'm Brazilian and new here. I'm not expert in english so I'm sorry abo...

viniciuspaiva08

•8 years ago

8 Replies

Seeing a Private Haematologist

Hi having failed to get anywhere with GP referred Haematologist, whom they referred me to twice and she did not even bother to phone and talk to me let alone...

Hi having failed to get anywhere with GP referred Haematologist, whom they refer...

Galadriel1

•8 years ago

5 Replies

Do not know what to do regarding my B12

Hi....My question is quite complicated. I was diagnosed with B12 deficiency 5 years ago after having health problems for years that had become progressively...

Hi....My question is quite complicated. I was diagnosed with B12 deficiency 5 ye...

Ceriane33

•8 years ago

7 Replies

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Barbie boo

Hi all does anyone have a particular favoured time morning or evening for injection ? Many thanks 😀

Hi all does anyone have a particular favoured time morning or evening for inject...

03081963

•8 years ago

12 Replies

West of Scotland Thyroid & B12d Support Group: next meeting Thursday 12 May 2016

Grab a drink from the counter and come and join our friendly, informal group on the sofas at the front of the café next Thursday, 12 May 2016 from 7pm to 9pm...

Grab a drink from the counter and come and join our friendly, informal group on ...

SailingBy

•8 years ago

Be the first to reply

Help to survive

Go to Holland and barret and buy vit B 12 supplements along with boost Vit B12 spray. Works for me. Then go and see your doctor again with all the...

Go to Holland and barret and buy vit B 12 supplements along with boost Vit B12 ...

Hidden

•8 years ago

1 Reply

really desperate

PA diagnosed - given 5 loading doses and then told three months. Symptoms returned, peripheral neuropathy was confirmed by a neurologist. I had terrible...

PA diagnosed - given 5 loading doses and then told three months. Symptoms retur...

jillc39

•8 years ago

16 Replies

New heat symptoms 😈

Hi.Need advice. My questions are recently started b12 injections on 2nd one and was wondering when will I start feeling effects With last three weeks I have...

Hi.Need advice. My questions are recently started b12 injections on 2nd one and...

lindabre

•8 years ago

2 Replies

Endoscopy today

Hey guys I've got my endoscopy today, (trying to find the cause of my megaloblastic anaemia) I'm hoping they will know it's the b12 deficiency that's causing...

Hey guys I've got my endoscopy today, (trying to find the cause of my megaloblas...

Pixielula

•8 years ago

6 Replies

some links from B12d.org newsletter

Articles in the News BMJ Best Practice http://bestpractice.bmj.com/best-practice/monograph/822.html : B12 deficiency can occur at higher blood serum B12...

Articles in the News BMJ Best Practice http://bestpractice.bmj.com/best-practice...

Gambit62

Administrator•8 years ago

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Advice with buying syringes with fixed needles for b12

Hello there, i live in the uk and wonder if someone here can help me, here is a brief outline, my b12 was low 300 , my GP agreed I could have six loading...

Hello there, i live in the uk and wonder if someone here can help me, here is a ...

Emily2007

•8 years ago

14 Replies

Elderly mother coming to visit me at 9400 feet in Colorado.

My 83 year old mom longs to see the mountains where I live in Colorado. She lives at sea level on the south coast of England. She has been recently diagnosed...

My 83 year old mom longs to see the mountains where I live in Colorado. She live...

Brummy123

•8 years ago

3 Replies

Levo to NDT

I've ordered some Thyroid S and am waiting impatiently for its delivery!! Can anyone tell me, as they are 60mg tablets how many should I take to replace 125mg...

I've ordered some Thyroid S and am waiting impatiently for its delivery!! Can an...

matty220

•8 years ago

5 Replies

MMA Question

If you supplement with B12 will MMA (Methylmalonic Acid) levels drop? I'd be grateful for any links to research that show this. Thanks in advance for any...

If you supplement with B12 will MMA (Methylmalonic Acid) levels drop? I'd be gra...

Sleepybunny

•8 years ago

9 Replies

Hot burning feet after B12 Injections of Cyanaco

Hi to All, I have had small fiber peripheral neuropathy for a bit over 2 years. In April 2014 my B12 level was 515, in October 2014 was 320, in March 2016 was...

Hi to All, I have had small fiber peripheral neuropathy for a bit over 2 years. ...

hakimzadeh

•8 years ago

33 Replies

Info. about Boost methyl spray....

Just some info for anyone using Boost spray.... it is now on offer at Holland and Barret on line (not sure if they have it in stores) @ £5.89 each. You can...

Just some info for anyone using Boost spray.... it is now on offer at Holland a...

pugdogs10

•8 years ago

13 Replies

Active B12 blood test result - advice please

Hi, could any of you clever people advise me? My active B12 test from blue horizon had the following result: 69pmol/L with a range of 25.1-165pmol/L, Does...

Hi, could any of you clever people advise me? My active B12 test from blue horiz...

thyroidquest

•8 years ago

16 Replies

Best Service for Private Active B12 Test in London

ACTIVE B12 TESTS I want to do a Private B12 Test in London Is St Thomas still the best place for Active B12 Tests ? Do you still need Doctors Referral Letter...

ACTIVE B12 TESTS I want to do a Private B12 Test in London Is St Thomas still th...

VegB12

•8 years ago

5 Replies

GABAPENTIN Advice Please

Hello All I've just been prescribed GABAPENTIN for intercostal neuralgia and have frightened myself to death by reading the patient information leaflet (how...

Hello All I've just been prescribed GABAPENTIN for intercostal neuralgia and hav...

Foggyme

Administrator•8 years ago

32 Replies

The Folate Trap

I had low folate and supposedly low normal b12. A doctor told me to take b12 first because of the 'folate trap'. He said if you get folate repleat it can...

I had low folate and supposedly low normal b12. A doctor told me to take b12 fir...

ladydawny

•8 years ago

6 Replies

Bruised arms and legs.

Good afternoon everyone, I woken up this morning with a number of bruises on my arms and legs. No idea how I got them, I haven't fallen over or anything. The...

Good afternoon everyone, I woken up this morning with a number of bruises on my ...

Bentleyboo

•8 years ago

5 Replies

IntraVita

Hi There my name is Vernon Otto and I am the Director of IntraVita Ltd. I have noticed some comments in the forum and I would like to highlight some facts....

Hi There my name is Vernon Otto and I am the Director of IntraVita Ltd. I have n...

Hidden

•8 years ago

25 Replies

stress and b12

i heard that stress uses up more b12 how does this happen. I have noticed the neuro symptoms worsening with it, but since I had a stoke its hard to get a clear...

i heard that stress uses up more b12 how does this happen. I have noticed the ne...

19191919

•8 years ago

9 Replies

Is this B12, Thyroid, or none of the above?

Hi guys, can you please give me some more of your advice, from Tuesday this week I have been very stiff with aching muscles and joints on waking, I have been...

Hi guys, can you please give me some more of your advice, from Tuesday this week...

Pixielula

•8 years ago

8 Replies

Your views on seeing an endocrinologist would be much appreciated

Hi I have to thank clivealive for replying to my last post and can say I definitely identify with some of the things you mention plus many others things. I...

Hi I have to thank clivealive for replying to my last post and can say I defini...

Sallybones

•8 years ago

14 Replies

Advice please

I was diagnosed with pernicious anaemia last year and had a long battle with my doctors to get adequate treatment but now due to my insisting on blood tests...

I was diagnosed with pernicious anaemia last year and had a long battle with my ...

maxfogarty

•8 years ago

6 Replies

Quick PA query

Hi All, is it possible to have adequate serum B12, but still have PA? If so, how would you go about finding out if you had PA - persuading GP to do follow up...

Hi All, is it possible to have adequate serum B12, but still have PA? If so, how...

linesandlines

•8 years ago

14 Replies

Lightheadedness - B12 symptom

I think the most distressing B12 deficiency symptom I have is this permanent (for now!) faintness/dizziness. Has anybody any experiences or treatment...

I think the most distressing B12 deficiency symptom I have is this permanent (fo...

Booksellercate

•8 years ago

11 Replies

Help understanding blood test

Hello nice to talk to you here, uncertain at present of condition, experiencing upset in stomach, burning over stomach, nausea. But blood tests show concern...

Hello nice to talk to you here, uncertain at present of condition, experiencing ...

Hollygirl16

•8 years ago

2 Replies

GPC test

Had GPC test today, what's s normal result?

chloe2124

•8 years ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for May 2016

Vitamin b12 treatment - the symptoms are coming back

Seeing a Private Haematologist

Do not know what to do regarding my B12

Barbie boo

West of Scotland Thyroid & B12d Support Group: next meeting Thursday 12 May 2016

Help to survive

really desperate

New heat symptoms 😈

Endoscopy today

some links from B12d.org newsletter

Advice with buying syringes with fixed needles for b12

Elderly mother coming to visit me at 9400 feet in Colorado.

Levo to NDT

MMA Question

Hot burning feet after B12 Injections of Cyanaco

Info. about Boost methyl spray....

Active B12 blood test result - advice please

Best Service for Private Active B12 Test in London

GABAPENTIN Advice Please

The Folate Trap

Bruised arms and legs.

IntraVita

stress and b12

Is this B12, Thyroid, or none of the above?

Your views on seeing an endocrinologist would be much appreciated

Advice please

Quick PA query

Lightheadedness - B12 symptom

Help understanding blood test

GPC test

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