Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,066 members • 23,216 posts

All posts for December 2015

Going to the Dr today what should ask the Dr. today

I have gained so much weight I think I will ask for blood test any suggestion

I have gained so much weight I think I will ask for blood test any suggestion

•8 years ago

Results help..

Hi everyone, I wondered what you thought of the following, if you saw these results and knew my symptoms - what would you say?... I have constant exhaustion,...

Hi everyone, I wondered what you thought of the following, if you saw these resu...

•8 years ago

Bluebonnet chelated iron

Hi I'm vegetarian an have a ferritin level of 8 up from 5 using spatone ive posted a few times asking about iron supplements. My doc prescribed ferrous...

Hi I'm vegetarian an have a ferritin level of 8 up from 5 using spatone ive post...

•8 years ago

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Newbie

Hi all! Been following your community for a month or so, and thought I'd finally jump in and say hello. You all seem to contribute some valuable information...

Hi all! Been following your community for a month or so, and thought I'd finally...

•8 years ago

Symptoms returning despite self injecting every other day - advice please

Hi all Not posted for a while as now very, very poorly with adrenal insufficiency. Oh God, will it never end? I had a late diagnosis with neuro symptoms and...

Hi all Not posted for a while as now very, very poorly with adrenal insufficien...

•8 years ago

Pernicious Anemia

I have been diagnosed with B12/Pernicious anemia. I was taken off injections because my b12 level was at more than 1500. I began having sudden diarrhea,...

I have been diagnosed with B12/Pernicious anemia. I was taken off injections be...

•8 years ago

Are supplements causing a reaction?

Hi I am taking the following Jarrows supplements: B-Right, Methyl Folate & Methyl B12 together with calcium, magnesium, zinc, biotin, COD liver oil with A & D...

Hi I am taking the following Jarrows supplements: B-Right, Methyl Folate & Methy...

•8 years ago

haemo appointment

I am preparing for my appointment on Monday making sure I go with as much info and questions written down so I get what I need from the appointment. I have...

I am preparing for my appointment on Monday making sure I go with as much info a...

•8 years ago

Food, has anyone found their diet makes a difference

hi, was just wondering how people have adjusted their food intake due to being b12 and what they have found helps or makes things worse

hi, was just wondering how people have adjusted their food intake due to being b...

•8 years ago

B12 Self Injecting

Hi, So, I have the needles and my B12 arrived from Germany yesterday. I ordered Vitamin B12 Depot Hevert Wirkstoff:Hydroxocobalaminacetat 1000ug. My Doc...

Hi, So, I have the needles and my B12 arrived from Germany yesterday. I ordere...

•8 years ago

help please

could some on please tell me where i can purchase vitiam b12 nasal spray in uk in a private message thank you

could some on please tell me where i can purchase vitiam b12 nasal spray in uk i...

•8 years ago

Which test will Blue Cross cover?

You might remember my previous post: idiopathic B12 deficiency for 20 years. Always supplement. Usually test 400-600. Got a result of 1980+ but had taken a...

You might remember my previous post: idiopathic B12 deficiency for 20 years. Alw...

•8 years ago

Newbie - I would appreciate some help please

I have thyroid issues, not recognised by the NHS, so seeked help privately and was better in 6 weeks, it was a miracle. Have a new Gp who denies I have...

I have thyroid issues, not recognised by the NHS, so seeked help privately and w...

•8 years ago

Blood blister under eyes (black eye)

Hi. I woke up this morning with yet another black eye. It's like a blood blister in the inside corner that goes along, underneath the eye. Looks just like a...

Hi. I woke up this morning with yet another black eye. It's like a blood bliste...

•8 years ago

Diabetes mellitus and pernicious anaemia

Have just been diagnosed with B12 deficiency and would like anyone's experience of working with it and type II diabetes. Am on metformin, sitagliptin and...

Have just been diagnosed with B12 deficiency and would like anyone's experience ...

•8 years ago

Pins and needles worse after exercise

Hi, I am new to this site after just being diagnosed with B12 deficiency. My symptoms were pins and needles in feet, knees, hands and small area in lip. I have...

Hi, I am new to this site after just being diagnosed with B12 deficiency. My sym...

•8 years ago

New to this group

I have had PA for 3 years I collapsed and was rushed to hospital and was diagnosed .I have never been given any info on the illness and was given B12...

I have had PA for 3 years I collapsed and was rushed to hospital and was diagnos...

kerri161074odonnell

•8 years ago

Test for checking Vitamin B12 at Cellular Level

Seeing questions about how to tell if Vitamin B12 is getting into the cells. There is a test from a company called SpectraCell that can check your vitamins...

Seeing questions about how to tell if Vitamin B12 is getting into the cells. Th...

•8 years ago

self injecting

hi all i used ti get methylcoblamin from Dr Riar in wales.Sadly he passed away and i was wondering where all his patients are going now as im having a...

hi all i used ti get methylcoblamin from Dr Riar in wales.Sadly he passed away a...

•8 years ago

Help with self-injecting

Although my GP is more helpful than most, I'm having huge trouble with getting a referral for my neurological symptoms. Bear in mind my local hospital is a...

Although my GP is more helpful than most, I'm having huge trouble with getting a...

•8 years ago

Self Injecting.

Hi all. I know that this topic has been covered here in depth but I still can't make a decision. I have been on injections since May and after a fight...

Hi all. I know that this topic has been covered here in depth but I still can't ...

•8 years ago

Injections or supplements?

Every day I have been taking at least 5 mg of sub-lingual b12 to feel okay. I have just had 5 loading doses (1 mg every other day) and although I didn't feel...

Every day I have been taking at least 5 mg of sub-lingual b12 to feel okay. I ha...

•8 years ago

B12 too low in between injection cycles

I have been getting the B12 injection for over two years now, in the last year I feel I need the injection more often than every three months, after two months...

I have been getting the B12 injection for over two years now, in the last year I...

•8 years ago

Folic acid and other supplements

I have monthly B12 injections and I'm looking at improving my health as much as possible. I've read that taking 5mg folic acid and also vitamins D3/K2 is...

I have monthly B12 injections and I'm looking at improving my health as much as ...

•8 years ago

Surprise reaction?

Hi I had my first b12 injection 3 days ago and have had dramatic results. My vision has gone from blurred and shadowy to clear and bright, my energy level had...

Hi I had my first b12 injection 3 days ago and have had dramatic results. My vi...

•8 years ago

high level B12 984ng/L

hi my GP has not requested to see me again yet my B12 levels are too high and my white blood cells are low the neutrophil was 1.99 and total white count was...

hi my GP has not requested to see me again yet my B12 levels are too high and my...

•8 years ago

Exercise

A stupid question I know but does anyone out there manage to do any exercise? I've had P.A. for over 43 years so I'm well acquainted with the weakness,...

A stupid question I know but does anyone out there manage to do any exercise? I...

Forum Support•8 years ago

Frequency of B12 jabs

Was diagnosed with PA 2 years ago and found I'm suffering with late diagnosis symptoms. Loading doses made me ill. Was put on 3 monthly injections with little...

Was diagnosed with PA 2 years ago and found I'm suffering with late diagnosis sy...

•8 years ago

Could I have PA?

Been to see my GP for my VIT D blood test results, but my Rheumatologist does not seem to have done them, but he did do an another test, I understand that the...

Been to see my GP for my VIT D blood test results, but my Rheumatologist does no...

•8 years ago

Ear Nose & Throat link?

Before I was diagnosed with PA my symptoms appeared gradually over months. One of the main, and first problem was an intolerance to dairy and soy, which still...

Before I was diagnosed with PA my symptoms appeared gradually over months. One ...

•8 years ago

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Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(77)

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