Was diagnosed with PA 2 years ago and found I'm suffering with late diagnosis symptoms. Loading doses made me ill. Was put on 3 monthly injections with little effect so they were made 2 monthly. Still no better, only slight improvements. Been retested several times sometimes a week after injection (what's the point in that?) and eventually put on monthly injections. Started to see a real improvement for almost a year then last month the practise nurse asked if I'd been retested recently with a view to reducing my injections. I confirmed I had and was subsequently kept on monthly jabs but she said to book with someone else next month. Booked this month with my GP who was instantly off hand with me as soon as I walked in. I had been left in the waiting room for half an hour then she rang down for me and when I went in she snapped that I was late. I told her I arrived early and had been waiting but she carried on being quite aggressive and said I was late, it was my fault and I was messing up her schedule and she didn't have time to see me really but as I was there what did I want? I told her I was there for my jab (which she had prepared ready) and which arm did she want, to which she said 'What? WHAT?' 'Oh right arm' and she walked over and rammed it in my arm and made me squeal. She then went on again about how I was late so I apologised and said her buzzer hadn't gone off and I hadn't realised. She too asked if I'd been retested recently so I said yes, in the last 6 months, kept on monthly jabs. She said 'Yeah, so you geta bit fuzzy sometimes and feel a bit tired. I don't think you need these jabs that often' I was aghast and told her there was much more to it than that and this is the first time in years I'd felt anywhere near normal. But she just went 'Pffft'.
What am I supposed to do? Anyone else had this kind of attitude - I mean are the jabs expensive for them? I can't help it that I need them. A previous senior doctor (now retires) told me it was a serious condition and must be taken seriously too as it was lifelong condition which would require lifelong treatment. I am coeliac and have IBS so tablets I'm told won't work for me. I have a family history of PA, my grandad had it and had monthly treatment and his mother had it too. I haven't booked my next jab as I'm upset and confused at the way I've been treated on the last two occasions. My GP is also a partner at the practise so I'm afraid to complain. Sorry for the rant, I just need advice.