Although my GP is more helpful than most, I'm having huge trouble with getting a referral for my neurological symptoms. Bear in mind my local hospital is a world- renowned teaching hospital...
• The haematologist says he doesn't know why I was referred to him and cancelled my appointment.
• I emailed a neurologist, who said I should see a haematologist.
• I got them to speak to each other and they agreed I should see a neurologist.
• My GP referred me to the neurologist. Minimum waiting time 115 days for an urgent referral, but only once they contact me. They haven't.
• The neurologist says actually he can't help and I should see a metabolic medicine specialist.
No one has seen me yet.
My neurological symptoms seen to come back worse after each set of loading injections, starting within two weeks of having 9 injections. Neither my GP not the haematologist not the neurologist are prepared to follow the guidelines stating that injections should be given every two days until there is no further improvement , even though I have pointed these out to them. They all state a concern that too much B12 could be harmful, although all claim they are 'not an expert', and although I have said that no one has come up with any evidence for this, ever.
So who IS a bloody expert ?
Only people like the PAS and B12deficiency.org and the doctors consider then to be ignorant quacks.
I am now willing to buy B12 injections. Goldpharma seems good but I need advice and a practical demonstration on how to do the whole procedure and what other stuff I need to get (syringes etc). I seem to recall that there is an organisation that will supply injections as needed. I am happy to buy the stuff but I wondered if this organisation could help here..? I am in the south-east, commutable to London. Can anyone advise please?