I have been diagnosed with B12/Pernicious anemia. I was taken off injections because my b12 level was at more than 1500. I began having sudden diarrhea, tingling feet, confusion and spells of fading away with smelling odors from the past i.e. like when I was a child. I took b12 tablets but they just didn't work. Doctors treated me as if I was lying and would not give me prescription for b12 injections. For the last three years I stayed home worried that the symptoms would hit me suddenly.
I finally found a Doctor who treated the symptoms and give me the injections. I felt so wonderful and had to have an injection every 7 days to keep the PN at bay. After much research I believe I have had B12 deficiency most of my adult life. PN runs in my family, my aunt and cousin were hit by the disease.
My folate serum tested positive for PN and I was informed that I was B12 deficient even though my level was at more than 1500. My Parietal Antibody test also came back positive. I was now in a fight to have my previous doctor to help me; to no avail. I was beside myself and questioned by sanity. Even though she had previous diagnosed with B12 deficiency and provided injections; she refused to answer my questions and slammed her door in my face. Thank goodness, I found a doctor who helped me.
I am forever frightened that my injections will be taken away and, I don't know what I'll do to maintain my health.