I am preparing for my appointment on Monday making sure I go with as much info and questions written down so I get what I need from the appointment. I have come across an email I sent when first diagnosed asking for advice. it has my levels from 2004 as 141, 154, 179, 179, 242 and after a weekly jab for 5 weeks it went up to 384. my mum had PA and I was constantly telling the drs how poorly I felt but it was only when they were doing bloods for thyroid that the nurse commented on the levels and said that it should have been looked at regularly. I have jabs now every 4 weeks and my GP has done my b12 which came in at 1103, 871, 871 even though I take sublinguals as well, cortisone was 366. just hoping my appointment goes well and they agree to more b12 as still got neuro problems and seem all over the place this last 10 months when I thought things were slowly getting better. x
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