Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for October 2015

How long till I feel human?

After having a headache and pins and needles in my arm and feet and feeling dreadful for weeks I have I have just been diagnosed with PA. I am having six...

After having a headache and pins and needles in my arm and feet and feeling drea...

Vicki-s

•9 years ago

13 Replies

Methylcobalamin

For seven years I was experiencing off and on, hands and feet tingling, burning, pain, difficulty walking, extreme fatigue and depression. Countless visits to...

For seven years I was experiencing off and on, hands and feet tingling, burning,...

Joyce5

•9 years ago

1 Reply

Surely this is not right? I'm pregnant

What a nightmare. Went to my 20w midwife appt this morning started discussing my blood results (pick up print outs later) with the consultant. My b12 was...

What a nightmare. Went to my 20w midwife appt this morning started discussing m...

MuffinSx

•9 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Depleting levels of b12

In brief.....2 years ago my b12 level was 226 supplements of b12 raised the level to 2000, so I stopped them. [ Dr said I didn't need to take them anymore...

In brief.....2 years ago my b12 level was 226 supplements of b12 raised the ...

bowler

•9 years ago

25 Replies

B12 injections in Canary Islands?

Hi folks. I'm off to (wet and windy) Gran Canaria next week. Does anyone know whether I can buy B12 ampoules over the counter -- or even have a pharmacist give...

Hi folks. I'm off to (wet and windy) Gran Canaria next week. Does anyone know wh...

oozlumbird

•9 years ago

3 Replies

B12 and pregnancy

Hi all so I'm not pregnant I sadly suffered a miscarriage earlier this year but I hope one day too feel strong enough too try again. My question how id go...

Hi all so I'm not pregnant I sadly suffered a miscarriage earlier this year but ...

nettiboo1982

•9 years ago

5 Replies

Where can I source active b12?

Hi Folks. i've posted on here before & got helpful advice. i have ME/CFS & responded very well to Hydroxy/C & Folate when i 'first' supplemented with b12....

Hi Folks. i've posted on here before & got helpful advice. i have ME/CFS & re...

Hidihi

•9 years ago

8 Replies

Injection not working

I had 9 loading injections over the summer which cleared up most of my neurological symptoms and allowed me to feel better than I have for years. Six weeks...

I had 9 loading injections over the summer which cleared up most of my neurologi...

oozlumbird

•9 years ago

11 Replies

B12 patches in pregnancy

I don't have any experience but be careful as some of the b12 patches contain other vitamins including vitamin A which can be dangerous in overdose especially...

I don't have any experience but be careful as some of the b12 patches contain ot...

CaroS

•9 years ago

Be the first to reply

Limbo

Hi, I've recently been told I'm b12 and folate deficient. I've had my 6 loading dose injections and today visited the haemotologist. My latest blood results...

Hi, I've recently been told I'm b12 and folate deficient. I've had my 6 loading ...

catsdogs

•9 years ago

15 Replies

B12 SUPPLEMENTING BEFORE TESTS

Hi I am going for my second round of tests for PA.I was told by my doctor that it didnt matter if I took b12 supplements at time of testing as they would not...

Hi I am going for my second round of tests for PA.I was told by my doctor that i...

loulou42

•9 years ago

8 Replies

Help converting results

Hi Im pa, 2 eldest daughters b12 deficienct, (1 long fight with gp over 1 although she was way low below the cutoff) couldn't do another fight for youngest...

Hi Im pa, 2 eldest daughters b12 deficienct, (1 long fight with gp over 1 althou...

tillie06

•9 years ago

1 Reply

Active B12 Test

Hi Everyone, I was diagnosed with Pa 15 years ago and have had regular B12 injections at my surgery since then. To begin with it was every 3 months, then the...

Hi Everyone, I was diagnosed with Pa 15 years ago and have had regular B12 inje...

treacletart33

•9 years ago

4 Replies

B12 defic in animals

There's an interesting post on B12 Deficiency Info website comparing the treatment of animals with B12 deficiency with the treatment of humans....

There's an interesting post on B12 Deficiency Info website comparing the treatme...

Sleepybunny

•9 years ago

3 Replies

Suspected B12 advice

Hi everyone, I'm new here as I'm currently going through the process of finding out how to get my symptoms treated - last week I went to my GP after having...

Hi everyone, I'm new here as I'm currently going through the process of finding...

Hidden

•9 years ago

9 Replies

Self injecting alternate days but suddenly tired again

Hi everyone, I have been self injecting with Hydroxycobalamin since May this year on alternate days and for a few months I felt really good with the...

Hi everyone, I have been self injecting with Hydroxycobalamin since May this y...

AutoimmuneAnnie

•9 years ago

17 Replies

Low iron?

Hey everyone, new to this site but needing some help. Diagnosed with Hpylori in March and with treatment and subsequent breathe test was found to have...

Hey everyone, new to this site but needing some help. Diagnosed with Hpylori in ...

Mrsc1975

•9 years ago

12 Replies

Blood results

Just had a letter back from hospital my haemoglobin is 143 that is after my loading doses, and 1 3monthtly jab. Why is it still so low. All other bloods...

Just had a letter back from hospital my haemoglobin is 143 that is after my load...

Catherine50

•9 years ago

4 Replies

Methylcobalamin injections, strange symptoms?

Hi, I have recently started self injecting methylcobalamin. The first 2 weeks have been amazing and I have gone from basically bedridden to being able to climb...

Hi, I have recently started self injecting methylcobalamin. The first 2 weeks ha...

Kellyjam1

•9 years ago

11 Replies

Some advice please

Hi all, I wonder if I could please ask for some advice regarding my worsening symptoms and help interpreting blood test results? I've been having symptoms for...

Hi all, I wonder if I could please ask for some advice regarding my worsening s...

hantastic

•9 years ago

11 Replies

GP frustration - rant ahead!

So I've just come back from my GP appointment and I utterly and completely hate the fact that I ended up in tears of frustration. Every single point I made...

So I've just come back from my GP appointment and I utterly and completely hate ...

hunny59

•9 years ago

17 Replies

P A & high levels of b12 what does it mean

Hi had blood results yesterday & my b12 was 2000 so how can that be when I have pa ? Having so many neurological symptoms & feeling so bad wondering if it...

Hi had blood results yesterday & my b12 was 2000 so how can that be when I have ...

Crawford1961

•9 years ago

7 Replies

Doc appt. am I right? Panicking a bit ...

Long post about doc appt. don't know where to post so putting in both groups. So I went to the docs this morning about my b12 (I'm 18 weeks preg) last b12(321)...

Long post about doc appt. don't know where to post so putting in both groups. So...

MuffinSx

•9 years ago

2 Replies

B12 injections - private doctor needed

Can anybody recommend a private doctor specialising in pernicious anemia and admisitering b12 injections Thanks Sarah

Can anybody recommend a private doctor specialising in pernicious anemia and adm...

sarahdand

•9 years ago

6 Replies

Hematologist or gastroenterolist?

Can anyone advise me who I should be referred to based on the following. Hematologist or gastroenterolist? My levels were low but I have been supplementing...

Can anyone advise me who I should be referred to based on the following. Hematol...

Ktululady

•9 years ago

11 Replies

Please help!confused!:)

Hi everyone, thought I would ask your advice directly as I have been reading so many posts that are similar but still need your guidance! For months now I gave...

Hi everyone, thought I would ask your advice directly as I have been reading so ...

Juliel

•9 years ago

8 Replies

Bloody docs 😭# b12 vits

Hey can some 1 help! Going bk in August my b12 seemed to bring my b12 level up to 599 from 192 but 3weeks ago i was told to stop the tablet of Doctor. And had...

Hey can some 1 help! Going bk in August my b12 seemed to bring my b12 level up t...

emziee

•9 years ago

3 Replies

B12

Could anyone tell me what size syringe I need for b12 injection and where can I get them

Could anyone tell me what size syringe I need for b12 injection and where can I ...

Mollymaid67

•9 years ago

4 Replies

High serum b12. Is sublingual necessary?

I've been taking my B12 (adenosylcobalamin, methylcobalamin and a little hydroxycobalamin) sublingually, but I was wondering if my high serum B12 (750) means...

I've been taking my B12 (adenosylcobalamin, methylcobalamin and a little hydroxy...

Clarealbinson

•9 years ago

2 Replies

Swelling and B12

Hi All! Been self injecting hydroxo (preservative free from a compounding pharmacy) the past nine weeks, alternate days. During this time, l have slowly...

Hi All! Been self injecting hydroxo (preservative free from a compounding pharma...

MarMcL

•9 years ago

8 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(76)

All things Pernicious Anaemia Society(76)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for October 2015

How long till I feel human?

Methylcobalamin

Surely this is not right? I'm pregnant

Depleting levels of b12

B12 injections in Canary Islands?

B12 and pregnancy

Where can I source active b12?

Injection not working

B12 patches in pregnancy

Limbo

B12 SUPPLEMENTING BEFORE TESTS

Help converting results

Active B12 Test

B12 defic in animals

Suspected B12 advice

Self injecting alternate days but suddenly tired again

Low iron?

Blood results

Methylcobalamin injections, strange symptoms?

Some advice please

GP frustration - rant ahead!

P A & high levels of b12 what does it mean

Doc appt. am I right? Panicking a bit ...

B12 injections - private doctor needed

Hematologist or gastroenterolist?

Please help!confused!:)

Bloody docs 😭# b12 vits

B12

High serum b12. Is sublingual necessary?

Swelling and B12

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive