Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for August 2015

B12, Ferritin, Vit D won't go up

Hello everyone, I'm new here but wondered if anyone can help me. I have a million symptoms of an underactive thyroid but my thyroid tests say I'm fine. I've...

Hello everyone, I'm new here but wondered if anyone can help me. I have a millio...

•9 years ago

Storing hydroxo

I bought hydroxo and gave myself my first injection on Monday. However, I have bought 2ml phials and injected 1 ml. Is it OK to store the open phial in the...

I bought hydroxo and gave myself my first injection on Monday. However, I have ...

•9 years ago

Hospital appt today.

Bricking it. I have appt today at 2.30 at the Gastroenterology dept. What can I expect them to tell me. im so nervous.

Bricking it. I have appt today at 2.30 at the Gastroenterology dept. What can I...

•9 years ago

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B12 spray

Ordeted a spray from amazon does anyone know if this will help till my next injection is due?

Ordeted a spray from amazon does anyone know if this will help till my next inj...

•9 years ago

Severe lower back, leg and tummy pain - can this be PA even after injections?

Hi there, so I'm fairly new to this and was wondering if anyone could help. I had my loading doses for PA about 6 weeks ago but have still been getting week...

Hi there, so I'm fairly new to this and was wondering if anyone could help. I ha...

•9 years ago

Help please!!

I am desperately trying to get some advice for my son who is 30 this week and was diagnosed with ME when he was 12. Several years later he was also diagnosed...

I am desperately trying to get some advice for my son who is 30 this week and wa...

•9 years ago

PA diagnosed during endoscopy

This is my first post and can relate to just about everything I have read! I was diagnosed with PA during a endoscopy (which was due to a CT scan I took and it...

This is my first post and can relate to just about everything I have read! I was...

•9 years ago

Advice would be appreciated

Hi, this is my first post, so apologies if it becomes a bit rambling! I have been on B12 injections for 4-5years now, after being diagnosed following going to...

Hi, this is my first post, so apologies if it becomes a bit rambling! I have be...

•9 years ago

Doctor Appointment Tomorrow. Advice Much Appreciated!!

Hello. l'm a coeliac sufferer with pernicious anaemia living in Canada. l'm heading back (with my battle armour firmly mounted!) to my GP tomorrow. l'm going...

Hello. l'm a coeliac sufferer with pernicious anaemia living in Canada. l'm head...

•9 years ago

Where can I safely purchase Vitamin B12 Injections.

Can anyone help?? I am new to this & very confused :' I have tried various sites ie: goldpharma but to be honest I'm struggling to know what to buy??? Any...

Can anyone help?? I am new to this & very confused :' I have tried various sites...

•9 years ago

My B12 hypo

Have been meaning to write something since it happened but last Wednesday evening I headed out to a bowls match on foot - just the easiest way to get to that...

Have been meaning to write something since it happened but last Wednesday evenin...

Administrator•9 years ago

Purchasing injections

Im having trouble ordering hydroxocobalamin from Goldpharma... anyone kno of anywhere else i can order?? Im desperate thanks 😕

Im having trouble ordering hydroxocobalamin from Goldpharma... anyone kno of any...

•9 years ago

Next Steps

Hello Everyone, I'm sure you've heard this story many times but your advice would be very much appreciated and apologies for the length of the post. I'm 27...

Hello Everyone, I'm sure you've heard this story many times but your advice wou...

brightsideoflife88

•9 years ago

Nutri med leeds

Hello I was wondering if anyone has seen Anne Pemberton at nutri med in leeds? I have discovered I have the mthfr c677t gene mutation amongst others and was...

Hello I was wondering if anyone has seen Anne Pemberton at nutri med in leeds? ...

•9 years ago

Be the first to reply

b12 deficient and chest pain

I am under a rheumatologist who thinks I may have Sjogrens. Still going through the process. He was the one who suggested I have my B12 checked again. It...

I am under a rheumatologist who thinks I may have Sjogrens. Still going through...

•9 years ago

Earlier appt

Does anyone know what the chances are of getting my next B12 shot before end sept. almost all my symptoms have returned ... bleeding gums, aching joints...

Does anyone know what the chances are of getting my next B12 shot before end sep...

•9 years ago

Diabetes ?2, Pernicious Anaemia and Hashimotos

My partner was diagnosed with Hashimoto's disease (autoimmune hypothyroidism) two years ago and three months or so ago was diagnosed with Pernicious Anaemia,...

My partner was diagnosed with Hashimoto's disease (autoimmune hypothyroidism) tw...

•9 years ago

Anyone get a rash at the site of B12 injection?

Hi all. I'm in the middle of a "loading dose" phase of treatment with methyl cobalamin and have so far had 4 injections in the last 10 days. I need to have...

Hi all. I'm in the middle of a "loading dose" phase of treatment with methyl cob...

•9 years ago

In the Grey Area? (Active B12 Results)

hello there, so after battling crazy symptoms for quite a few years i decided to get tested for active b12 as my symptoms match so so many of them from the...

hello there, so after battling crazy symptoms for quite a few years i decided to...

•9 years ago

Pernicious anaemia or hyperparathyroidism im confused and worried!

Hi all i am new the PAS and also this forum. I bit confused and conncerned about my health right now so apologies for the length of this! after 10 months of...

Hi all i am new the PAS and also this forum. I bit confused and conncerned abou...

•9 years ago

B12 Deficiency or PA. How do you know?

Hello, I'm so glad I stumbled across this site as I actually thought I was going mad with how I was feeling (to be fair there is still a possibiity of that!)...

Hello, I'm so glad I stumbled across this site as I actually thought I was going...

•9 years ago

B12 level interpretation

Hi I have just recently posted as Intrinsic Factor-AK antibodies tested a weak positive in a recent blood test. (I am also a registered Coelicac which was...

Hi I have just recently posted as Intrinsic Factor-AK antibodies tested a weak ...

•9 years ago

B12 or thyroid -- or both?

Hi folks. I've been experiencing symptoms of both B12 and hypothyroidism for many years, although both are in range according to tests (I know this doesn't...

Hi folks. I've been experiencing symptoms of both B12 and hypothyroidism for man...

•9 years ago

Reduction in B12

The nurse has reduced by B12 injections from every 3 months to every year. Has this happened to anyone else? They said my B12 count was 2000 when It should be...

The nurse has reduced by B12 injections from every 3 months to every year. Has t...

•9 years ago

MCV, MCH and RBC levels query.

Please can anyone tell me what is possibly going on. I don't know where else to ask. I have low MCH and MCV and slightly elevated RBC. I supplement with B12...

Please can anyone tell me what is possibly going on. I don't know where else to ...

•9 years ago

Low Ferritin normal Haemoglobin

I've previously posted my FBC and Vit B12 results etc. (FBC normal, serum B12 is 254, but Active B12 120 currently waiting on MMA and homocysteine and a holter...

I've previously posted my FBC and Vit B12 results etc. (FBC normal, serum B12 is...

•9 years ago

Bit B12, thyroid or something else?

Hello everyone, I've been having symptoms the last few months of palpitations/racing heart, freezing cold or burning feet and legs, numbness on and off in...

Hello everyone, I've been having symptoms the last few months of palpitations/ra...

•9 years ago

B12 patch v injection

Hi all my daughter's GP very reluctant to give her b12 loading doses despite the fact she has neurological symptoms , although she did agree to 6. Now my...

Hi all my daughter's GP very reluctant to give her b12 loading doses despite the...

•9 years ago

Re:sciatic nerve pain

I think I have sciatic nerve pain, usual 12 days to my appointment. Does it go with PA, does anyone have similar, burning pain starting under foot and lack of...

I think I have sciatic nerve pain, usual 12 days to my appointment. Does it go w...

•9 years ago

Can't figure it out?

Been going around with this for a couple of years now. Maybe someone has an answer to my problem. Have a lot of stomach problems. Had all the tests. Been...

Been going around with this for a couple of years now. Maybe someone has an ans...

•9 years ago

Search posts

Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(75)

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