Earlier appt

[Catherine50]

Does anyone know what the chances are of getting my next B12 shot before end sept.

almost all my symptoms have returned ... bleeding gums, aching joints headaches poor memory the list goes on

[linda75]

It all depends on your gp. Some people have got decent GPs and are able to have more frequent treatment.

I tried asking for more regular injections. It resulted in my b12 being retested and my treatment was stopped completely. Even changing surgeries has not helped me get my treatment reinstated.

Hopefully you have a good gp.

Good luck with it.

[Polaris in reply to linda75]

I'm sorry you had this experience Linda. Just goes to show how little GPs know about B12 treatment....

[mardiray]

If you are seen by a nurse at a surgery with several, then you might just chance it, keep the nurse talking and 'get away' with it. That's what I did with daughter and it worked for 2 1/2 years...until we had to move. This surgery is smaller and because they were looking at new patient the nurses noticed it. But, by that time we saw doctor and said she'd been having jabs 7 weekly but would like them closer. Didn't want to bring closer but said keep the 7 weekly. Failing that see the doctor and ask, taking any information or guidelines on treatment with you. Failing that there is always self treatment in between jabs.

[Polaris]

Your definite neurological symptoms, Catherine, mean you should have been treated according to the BNF and UKNEQAS guidelines below until no further improvement and, at the, very least, every two months.

Extract from the BCSH guidelines:

" The BNF advises that patients presenting with neurological symptoms should receive 1000 ug i.m. on alternate days until there is no further improvement".

The link below gives info and advice on writing to your GP and the excellent film explains why it is essential to treat quickly and adequately as there is a short window of opportunity before neurological symptoms become irreversible. Putting the guidelines in writing could be effective, as I'm told one of their biggest fears is being sued.

ukneqas-haematinics.org.uk/... :

b12deficiency.info/b12-writ....

cmim.org/pdf2014/funcion.ph...

The above UK research document is supported by many research papers and has a useful summary if GP won't read full document, It also tells your GP that, once b12 treatment is started, the test results don't mean anything and blood levels are not reflective of how effective the treatment is - it is the clinical condition of the patient that matters....

Good luck

[Catherine50 in reply to Polaris]

Ty for all your replies.

I dont know what my GP would say as up until recently I didnt need to see them very often. My biggest fear is that he/she will stop my shots.

all very confusing. I did feel much better for 4-5 weeks but feel shocking now.