I'm sure you've heard this story many times but your advice would be very much appreciated and apologies for the length of the post.
I'm 27 years old. Had a Partial thyroidectomy February 2014. Was put on leveothyroxine 50mcg in Summer 2014 after becoming symptomatic. All went back to normal until Christmas time.
Symptoms include: extreme fatigue, pain in most bones/joints (especially right shoulder/hip), nausea, dizzyness, brain fog, lack of concentration, pin and needles etc.
GP first turned to thyroid. TSH was normal so increased to 75mcg thyroxine just to see after much negotiation. Was referred to gastro consultant as I was getting excruciating pain in upper right abdomen. This seems to have gone now, although not sure why. I listed all my symptoms to the consultant who actually listened and upped thyroxine to 100mcg.
Went back to GP and said what shall we look at next as we've ticked thyroxine and gastro things off the list. I got a full blood test included these results:
Parathyroid - 2.6 (<6.4)
Serum Vit D - 77 (30-300)
TSH - 0.32 (0.36-5.00)
B12 - 159 (130-800) was 200 three months ago
Folate - 16.7 (4-20)
Ferritin - 38 (12-250)
She said everything normal. It must be CFS/ME/Fybromyalgia. I said I'm not accepting that diagnosis. She has now referred me to rheumatology. She has also restricted my thryoxine prescription to 28 days at a time. I believe she doesn't accept what the consultant did and wants me off her back.
I posted on the Thyroid UK section on here was was given some advice about looking into B12. I joined the PAS and got some really helpful information.
I then decided to go back to my GP to ask about B12 deficiency. The one I usually see is on holiday until the end of the month so I saw another one. Big mistake. She was beyond describing. She belittled me and basically threw me out of the office saying she wouldn't prescribe me anything. She wouldn't even look at the guidelines I'd printed. I have attached what she did to my copy of blood tests. I'm going to write a strongly worded letter to the GP surgery and change GP's ASAP.
In the meantime I have taken people's advice and starting taking 5000mcg jarrow B12. I have now been taking this for 2 weeks. My symptoms have all reduced but not gone away completely. I take it in the morning and feel pretty good until about 1-2pm, then I need a 10-15 minute cat nap.
My question is, how long should it take for me to feel a difference? I know when I have changed my thyroxine it takes 4-6 weeks to kick in. Are other forms of B12 better such as injections? When I find a new GP what should I be asking for?
Thanks in advance for you help.