I am desperately trying to get some advice for my son who is 30 this week and was diagnosed with ME when he was 12. Several years later he was also diagnosed with
hypothyroidism and approximately 13/14 years ago he was found to be
deficient in B12 and started having a B12 injection every 8 weeks. This
helped him tremendously and his energy levels increased.
11 years ago we moved to Lincolnshire and our new GP was happy to continue with the injections until the GP in charge of the practise stopped them and despite our own GP fighting his corner, we couldn't get
Charley's blood tests showed he was 'in range' even tho he was at the very
bottom of the range despite taking 5000 mcgs of Jarrows methylcobalomin
In December 14 his blood test showed his serum B12 level to be 286 ng/L
(187.0 - 883.0) And his serum folate level below range at 1.5 ug/L (2.8
-18.3) He was prescribed 5mg of folic acid daily but again refused B12
We have just moved house and a new GP was responsive to his request for B12
injections saying she felt a 'top up wouldn't hurt' but ordered new blood
tests first. In the 8 months from his last blood test the B12 came back at
'above range' 925ng/L (190.0 - 800.0) and serum folate also above range at
19.2 (3.9 -14.0)
This is a dramatic and unprecedented jump and the GP obviously said B12
injections aren't necessary and that the folic acid supplements should be
stopped as well as reducing his B12 to alternate days.
Could the folic acid have helped the absorption of the B12? He's taken B12 supplements for years and his levels have always been at the bottom of the range..
However he still feels rubbish and has extremely low energy which the GP is
dismissing as his ME - while my son still feels it's linked to his B12 levels. This is probably because he felt so much better when he was having injections!
Is it worth pushing the doctor for a trial of injections again given that his levels are above range? Or do any of you lovely people have any more suggestions as to what else we could look at.
Thank you for reading this long post!