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B12 level interpretation

NadeNud profile image
4 Replies

Hi

I have just recently posted as Intrinsic Factor-AK antibodies tested a weak positive in a recent blood test. (I am also a registered Coelicac which was discovered when I was a baby.)

However, no B12 and Ferritin tests were taken.

For the past 2 years I have sporadically experienced water sensations on my hands and lower legs and I am now experiencing a burning/ tingling sensations in these areas. I also have a burning sensation along my left cheekbone (the trigeminal nerve). I keep mentioning these to doctors but they take no action. I even mentioned the water sensations to a neurologist who told me he didn't know about that....?!

I also feel fatigued and am also anxious due to the 'unexplained' sensations.

Since last year I have supplemented my B12 so I will need to wait a few weeks before I test. At one point, I took a powder which dissolved in the mouth so I had a very elevated B12 result and my blood was normal. However, when they ran out I changed to tablets as I was unaware of Intrinsic Factor.

Therefore, here are my results from last September:

B12: 607pg/ml (211-911)

Ferritin: 31ng/ml (10-291)

Folsaure: 16.6ng/ml (>5.38)

The following were under the normal range

Haemoglobin: 11.5g/dl (12.0-16.0)

Hematocrit: 34 V%. (36-48)

At the time they were taken, I was feeling very fatigued and experiencing all the symptoms described above.

I would be grateful for an interpretation on these results..

Many thanks :)

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NadeNud
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4 Replies
Gambit62 profile image
Gambit62Administrator

Actually you need to wait a few months without supplementation to check for B12 = at least 3 months.

1% of B12 is absorbed outside the ileum so taking large doses through the gut can and does work for some people, despite absorption problems.

Symptoms of B12D have a huge overlap with other conditions and having one doesn't rule out having two, particularly as autoimmune responses - of which PA is one - tend to come in clusters.

Do you have the folate results from September? normally done if B12 is done.

NadeNud profile image
NadeNud in reply to Gambit62

Hi

My folate was as follows:

16.6 ng/ml (>5.38)

Is that ok?

Gambit62 profile image
Gambit62Administrator in reply to NadeNud

That's a good level - means that low folate won't be interfering with absorption of b12 but if you think B12 is an issue you shouldn't be letting it drop below that - best to get folate from diet so lots of fresh vegetables and fruit.

NadeNud profile image
NadeNud in reply to Gambit62

Many thanks for your replies :)

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