I have recently been diagnosed with low B12 and I am currently having injections every other day. I have been exhausted to the point where I have fallen asleep at my desk at work, I have pins and needles in my left arm and leg, I faint if I over do it, diarrhoea , vomiting, foggy head, dizziness, headaches, which is just awful
I saw a GP a couple of weeks ago who based on the low B12 and my symptoms thinks I have pernicious anaemia. I have always taken multi vitamins everyday and eat plenty of fish meat dairy etc each week so he thinks it is totally unrelated to a diet deficiency as do I. However, we are waiting for the antibody blood test to confirm PA as my full blood count and other parameters all came back normal so low B12 and my symptoms are all that we have to go on so far.
The GP has already advised me that if the antibody results come back normal then because of current guidelines the B12 injections will be stopped as they can only be given long term in confirmed cases of PA. he said basically if all parameters are normal other than low B12 it will just be assumed that it is diet related.
The thought of this fills me with dread as even with the injections my latest B12 level was still really low and had only marginally improved from my first blood test 3 weeks ago, if they stop them I dread to think what's going to happen symptom wise.
My concern is having had a look at the forum and PAS website I noticed that other people have been in a similar situation where all blood parameters have come back as normal and low B12 is the only confirmed problem.
I guess my question is if my antibody blood test does come back normal and all other parameters are normal as well, and I am getting plenty of B12 in my diet and my levels are still low even after injections, what else can I do to get a diagnosis confirmed, and get the right treatment are there other tests I should be pushing for, or should I be referred to a specialist.
any help greatly appreciated, thank you