21 years ago I was diagnosed with ulcerative colitis; within 12 months of being diagnosed I had my bowel removed. I was then treated for anemia on numerous occasions with blood transfusions before being diagnosed with pernicious anemia. At the time I had a fantastic doctor that gave me B12 injections every 4-6 weeks. I then moved house and had to register with another doctor who told me I would have to have the B12 injection every 8 weeks and not before, by week 7 I was struggling and this continued. 12 months ago I went to get my injection and was told that I would not receive it as guidelines stated that it was not necessary to give B12 injections more frequently than every 12 weeks. I explained that 8 weeks was the maximum I could wait but to no avail, they would not budge.
I am now at week 11 and have the symptoms I have been told I have to live with. Although I am totally exhausted, I struggle to sleep properly, I have heavy nose bleeds, incessant ringing in my ears, shortness of breath and heart palpitations (I have been told these symptoms are not related). Every aspect of my life is affected by the way I feel, I have very low concentration, I work as a Human Resources Manager and know that my judgement can become cloudy, I drive a lot of miles and am now starting to wonder how long I will be able to do this for. I like to go to the gym 3 times a week at least however I have been unable to go for the last 2 weeks. My family are walking on eggshells, will I be screaming and shouting for the slightest little thing or will I be sat in a corner crying for no apparent reason.
I would like to know, is there anything definitive that I can put in front of my doctor to say there you go; it isn’t just me feeling like this, other people need B12 injections long before 12 weeks.
I am sure they think I am making my symptoms up. They make me feel as though I am wasting their time