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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for December 2014

Cyano Tabs - Research Papers Needed

I'm looking for research papers relating to the effectiveness or otherwise of cyancobalamin tablets. It is important - very important.

I'm looking for research papers relating to the effectiveness or otherwise of cy...

Poppet11

•9 years ago

22 Replies

Challenging the decisions.....

Is there no way to challenge the decisionns our GPs make? If they decide against treating us aren't they withholding treatment, and shouldn't there be some...

Is there no way to challenge the decisionns our GPs make? If they decide against...

Lindylanka

•9 years ago

8 Replies

Sore feet -- anyone else have this symptom?

Had sore feet for over a year, gait problems for the last three months, plus other symptoms. PA was finally diagnosed two weeks ago. I can hardly walk...

Had sore feet for over a year, gait problems for the last three months, plus ot...

_tracy_

•9 years ago

15 Replies

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Funny turn

Had a funny turn tonight. My head suddenly felt all strange and I had a pain in my ear and neck all night. It really shuck me up and started to shake. It's...

Had a funny turn tonight. My head suddenly felt all strange and I had a pain in...

Happy-go-lucky

•9 years ago

4 Replies

A Quote

I saw this quote by Laurence Sterne this morning, "“Respect for ourselves guides our morals; respect for others guides our manners” ... and rather thought...

I saw this quote by Laurence Sterne this morning, "“Respect for ourselves guide...

Poppet11

•9 years ago

Be the first to reply

In desperate need of help please?

Hey all I have been having problems with my legs I have got loads of spots on them, went to the doctors and they said it was a infection and gave me some...

Hey all I have been having problems with my legs I have got loads of spots on th...

nichola79

•9 years ago

4 Replies

PA and Eye Health

Hi All, Several years ago I began to experience flashing lights in the periphery of both eyes. Due to the fact that I hit my head in a car accident I was...

Hi All, Several years ago I began to experience flashing lights in the peripher...

NJMommy

•9 years ago

28 Replies

Still frustrated after Gadtroscope

After vomiting black tar and passing it in the Summer I was given an emergency Gastroscopy which found I had lots of polyps. For months all I could eat was...

After vomiting black tar and passing it in the Summer I was given an emergency G...

Paulaw22

•9 years ago

45 Replies

Please help!

Hi, I'm hoping someone on here will be able to help me, I was recommended to come here from a parenting site. 10+ yrs ago I had Glandular Fever. That seems...

Hi, I'm hoping someone on here will be able to help me, I was recommended to co...

FibroFogger

•9 years ago

4 Replies

Hurrah for spots!

Just wanted to write something more positive for a change. I am self injecting now on a weekly basis, did my third one at weekend and have had a breakout of...

Just wanted to write something more positive for a change. I am self injecting ...

lal2502

•9 years ago

3 Replies

Hi from old member with an update

Hi everyone, finally managed to get my head around posting here. A lot has happened since I last updated so long ago now. My father passed away which is why I...

Hi everyone, finally managed to get my head around posting here. A lot has happe...

Spiritwings

•9 years ago

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The sighs

can someone explain the sighing i do a lot, which i now know its a sympton of pa?

can someone explain the sighing i do a lot, which i now know its a sympton of pa...

onlyscouser

•9 years ago

8 Replies

Update to comments I made on gillsie's post

I commented on gillsie's post that I was worried that having had a test showing b12 of 2000, the docs might try to reduce the frequency of my injections (8...

I commented on gillsie's post that I was worried that having had a test showing ...

Harvena

•9 years ago

1 Reply

Understanding methylation

I don't know how accurate this information is but @33 mins, he mentions about Folate and how unmetabolised Folic Acid may cause cancer....

I don't know how accurate this information is but @33 mins, he mentions about Fo...

Erainy

•9 years ago

Be the first to reply

Struggles that we all have

I have been reading the exchanges and feel so grateful to you all. Just knowing someone is there to chat to helps enormously. Also I am able to keep...

I have been reading the exchanges and feel so grateful to you all. Just knowing ...

gillsie

•9 years ago

4 Replies

Feeling worse after self injecting

I've been self injecting with methylcobalamin(in thigh) and feel worse than before. Symptoms are worse and I have now lost my appetite. Is this normal? Am I...

I've been self injecting with methylcobalamin(in thigh) and feel worse than befo...

cefjarth

•9 years ago

56 Replies

A Need to Rant and Flip Slightly

I'm just reading the opener to the BMJ article: Hunt et al 4/9/14 "Vitamin b12 deficiency is an essential cofactor that is integral to methylation processes...

I'm just reading the opener to the BMJ article: Hunt et al 4/9/14 "Vitamin b12 ...

Poppet11

•9 years ago

8 Replies

BMJ Vitamin B12 Deficiency by Hunt

Hello I haven't got the direct link and don't want to upset the powers that be in the BMJ by posting it anyway, but if you want to see the full of the recent...

Hello I haven't got the direct link and don't want to upset the powers that be ...

Poppet11

•9 years ago

20 Replies

Thyroid hormones promote differentiation of oligodendrocyte progenitor cells and improve remyelination

Just wondering if this might be of interest to those suffering from demylenination? Exp Neurol. 2008 Aug;212(2):458-67. doi:...

Just wondering if this might be of interest to those suffering from demyleninati...

helvella

•9 years ago

10 Replies

GP surgery decides to reduce my injection frequency

Hi everyone I have lived in fear of this! I suffered for 10 years with stomach trouble, and 3 years before diagnosis with all the usual symptoms PA sufferers...

Hi everyone I have lived in fear of this! I suffered for 10 years with stomach t...

gillsie

•9 years ago

51 Replies

Anyone got any data on how long it takes to heal neurological damage?

I read tonight in the BMJ article by Hunt et al that it takes between 6 weeks and 3 months to heal neurological damage. Does anyone know of any other...

I read tonight in the BMJ article by Hunt et al that it takes between 6 weeks an...

Chancery

•9 years ago

50 Replies

Anyone know where the poll is showing how satisfied people were with their injection frequency?

My, but that's a long headline - sorry! Someone gave me a link to a great pie chart showing how satisfied people were with the frequency of injections they...

My, but that's a long headline - sorry! Someone gave me a link to a great pie ch...

Chancery

•9 years ago

7 Replies

Help with results please

Good Evening. Could someone help please? I received a second lot of blood test results today from my G.P surgery. In August I had my Vit B12, Ferritin and...

Good Evening. Could someone help please? I received a second lot of blood test r...

crista1

•9 years ago

28 Replies

An injection every 6 weeks - that's new? isn't it?

The GP told me I could only have an injection every 8 weeks after my loading doses So I went for my first injection today & on my notes it is down as every 6...

The GP told me I could only have an injection every 8 weeks after my loading dos...

KTMac

•9 years ago

6 Replies

Quick question with some results so far...

Hi, thanks for your offer of posting my results on here. I was contacted by the surgery today and told my ferritin level is low and to take iron for 3 months....

Hi, thanks for your offer of posting my results on here. I was contacted by the ...

Jo5454

•9 years ago

2 Replies

B12 needing help

Hi all so I've just got my results and my b12 is 314 and MCV 95.6 My question is can having low folate and ferritin be causing my serum b12 to be in range,...

Hi all so I've just got my results and my b12 is 314 and MCV 95.6 My question i...

nichola79

•9 years ago

2 Replies

Is Pepcid the right med to take?

My doctor has prescribed Pepcid for my tummy problems. My book 'Could It Be B12' says this is an H2 blocker that interferes with B12 absorption. Is this really...

My doctor has prescribed Pepcid for my tummy problems. My book 'Could It Be B12'...

_tracy_

•9 years ago

1 Reply

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2014

Cyano Tabs - Research Papers Needed

Challenging the decisions.....

Sore feet -- anyone else have this symptom?

Funny turn

A Quote

In desperate need of help please?

PA and Eye Health

Still frustrated after Gadtroscope

Please help!

Hurrah for spots!

Hi from old member with an update

The sighs

Update to comments I made on gillsie's post

Understanding methylation

Struggles that we all have

Feeling worse after self injecting

A Need to Rant and Flip Slightly

BMJ Vitamin B12 Deficiency by Hunt

Thyroid hormones promote differentiation of oligodendrocyte progenitor cells and improve remyelination

GP surgery decides to reduce my injection frequency

Anyone got any data on how long it takes to heal neurological damage?

Anyone know where the poll is showing how satisfied people were with their injection frequency?

Help with results please

An injection every 6 weeks - that's new? isn't it?

Quick question with some results so far...

B12 needing help

Is Pepcid the right med to take?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive