I'm hoping someone on here will be able to help me, I was recommended to come here from a parenting site.
10+ yrs ago I had Glandular Fever. That seems to have triggered whatever is wrong with me as I've been ill ever since.
About 6 months after it was confirmed I had Glandular Fever I was diagnosed with CFS/ME, as I was not getting any better.
I'm not convinced that I 'just' have CFS/ME. My symptoms are listed below;
Balance - feel like I'm falling backwards
Pain in hips
Hives and rashes on jaw/face/neck - no known trigger
Memory issues - Long term fine, short term not very good
Weakness in hands/arms/legs/lower back
Burning feeling in skin - back of calves and side of hand/arm
Pins and needles - arms, legs and mid back next to spine
Always cold, even in very hot weather
Stiffness in body in morning
Difficulty picking things up, opening jars etc
Get words mixed up when speaking and forget what I'm saying halfway through a sentence
Painful stomach - on Omeprazole
Muscles feel tight and 'squeezed'
Hands and fingers always feel tight and swollen (don't look it) plus skin on my finger pads are normally wrinkly??!
Back pain - physio didn't help
Sometimes have difficulty swallowing
Sometimes eye blur - eye examine normal
'Flashes' in eyes when I turn my head to the side (not every time though)
I've been to the doctors numerous times and they always just do a blood test which comes back normal every time. I've asked to be referred to someone but 'There's no one to refer you to'.
My latest non-fasting blood test has come back as below;
Serum ferritin = 27 ug/l
Serum folate = 6.1 ug/l
Serum vitamin B12 = 208 ng/l
Unfortunately, the printout of the results didn't state what the normal range was.
The secretary said that all was normal.
If anyone can shed any light on what may be wrong with me I'd be ever so grateful.
Thanks in advance for your time.