I was diagnosed with PA in 2010 and following administration of the loading doses was commenced on initially 12, then 10 and now 8 weekly injections. As the 8 weekly allowance might imply, I have a sympathetic GP who is willing to allow more frequent injections due to the fact that my symptoms are often still apparent despite having the injections.
Now whereas I am truly grateful to have a GP who is willing to prescribe more frequently, especially when I read how so many individuals struggle with this issue, I am getting somewhat frustrated by the fact that I still remain symptomatic despite having my B12 more regularly than most. Unfortunately, the injections seem to make very little difference, and I still suffer with brain fog, dizziness, aches, pains & fatigue on a fairly regular basis. At times the tiredness is almost crippling; my body feels like lead and sometimes I will get in from work and go straight to bed. This doesn't occur daily, and I appreciate that these symptoms are nowhere near as bothersome or severe as what many others may experience, but they are unpleasant nonetheless.
I have mentioned this to my GP on several occasions during the last three years, and despite her willingness to acknowledge my symptoms and prescribe more frequent B12 injections, I feel as though have a met a bit of a dead end so to speak. By now I have ceased mentioning such issues during appointments as I feel she is reluctant to fully address the issue, and simply claims that I "would feel worse" without the B12. I don't doubt that there is some truth in that statement, however couldn't help but feel somewhat fobbed off. And to some extent I can infact counteract that theory, as truth be told, for a variety of reasons, I went some 10 months last year without an injection (I know; very naughty; but now back on track) and can honestly say that I felt exactly the same as I did both prior to diagnosis and while receiving regular treatment. I just feel the same whether I have an injection or not.
And so I was wondering where to go from here? I am intent upon having one last try with my GP during my next appointment, but to be honest I don't hold much hope on this one as she was sloppy with the initial diagnosis anyway (she claimed that there was no point in retesting my B12 level despite knowing that it was low, and only investigated and eventually diagnosed PA after I had a blood test elsewhere which revealed a deficiency) and hasn't actually tested my B12 levels at all since diagnosis and commencing treatment. I might catch her on a good day, but failing that, what else can I try? Despite possessing a generally positive outlook on life, I can't help but feel a tad dejected regarding this at times. I am only 30 years old, have a healthy BMI, eat a well balanced diet (ironically containing a lot of B12!) and exercise regularly; I really don't think that I should be feeling like a snail on valium for much of the time!
Apologies for the very long post, but I don't know anybody else who has the same condition and am therefore glad to be able to discuss these issues with a community such as this. Many thanks to all who read this, and any advice would be gratefully received.