Relationship between long standing PA symptoms and hydrocephalus

[helihottie]

I was repeatedly misdiagnosed and then finally diagnosed with PA at the end of November 2012 after 2 rather difficult years with symptoms. B12 level at 109. After undergoing a myriad of tests, they also found that I have enlarged brain ventricles and a lumbar puncture proved that I have very high CSF pressure. Does anyone know if PA which can affect the brain - can have caused this hydrocephalus?

[helihottie]

Thanks! - csf = cerebral spinal fluid hydrocephalus - is in layman's terms - water on the brain

It appears that my body now produces too much csf which causes pressure on the ventricles in my brain - making them enlarge and expand. A 90 minutes MRI in which they took every possible angle as well as shooting dye into me showed this.

My B12 is now at 500 from initial diagnosis - it's still not enough as I still have symptoms but I am managing that and also now taking folate.

But I am wondering if the extreme B12 deficiency which I had before diagnosis for about 2 years could have caused the hydrocephalus.

Your story sounds dreadful. Truly. 16 months is too long to wait - I would try to go private if you can.