Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for April 2013

Advice wanted

I need a bit of advice about doctors. I have had Ataxia for a long time (i am in my 60s). I am still able to walk around quite well. Although i use a walking...

I need a bit of advice about doctors. I have had Ataxia for a long time (i am in...

•11 years ago

Concentrating

I get cold feet or hands, if I concentrate on a particular thing. Does anyone else find this?

I get cold feet or hands, if I concentrate on a particular thing. Does anyone el...

•11 years ago

Ataxia and New Doctors

The 3 Doctors at my local health centre have recently left (2 retired due to ILL Health and one to work nearer their home town) so all the Doctors we now have...

The 3 Doctors at my local health centre have recently left (2 retired due to ILL...

•11 years ago

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underfloor heating

If you get cold feet, is underfloor heating the answer? What depth do you need to fit it?

If you get cold feet, is underfloor heating the answer? What depth do you need t...

•11 years ago

computer use problems

Although this is not strictly a health thing I have found a free download called 'x button mouse control' is usefull it allows you to change the function of...

Although this is not strictly a health thing I have found a free download called...

•11 years ago

Can anyone tell me are there Facebook groups specifically for parents and/or siblings of people with ataxia?

Administrator•11 years ago

Looking up and back

Hey there old time Ataxians, I find when I look up and back or just from side to side, the dizziness gets worse. Is there an exercise for this? In other...

Hey there old time Ataxians, I find when I look up and back or just from sid...

•11 years ago

Does very windy weather affect anyone elses' symptoms?

On Thursday it was extremely windy in Yorkshire. I couldn't keep my balance and didn't go out of the house all day (after the school run) It made me feel very...

On Thursday it was extremely windy in Yorkshire. I couldn't keep my balance and ...

•11 years ago

Looking for a light weight Hoover?

Just got this lightweight Hoover- fab! So easy to use,empty, and lift! This is the link:-...

Just got this lightweight Hoover- fab! So easy to use,empty, and lift! This is...

•11 years ago

end of re-hab centre

Today I've come out of the re-hab centre. I'm too exhausted to continue. My whole body seems to have gone into melt-down. I've the jitters in arms and legs,...

Today I've come out of the re-hab centre. I'm too exhausted to continue. My wh...

•11 years ago

Doctors V.patients

Am I dreaming? There seems to be an enormous gap between what doctors and patients say re ataxia management. Very confusing. Exercise v. experimental...

Am I dreaming? There seems to be an enormous gap between what doctors and patien...

•11 years ago

muscle spasms

does anyone know why the muscles in one leg only, suddenly go very hard? Sometimes this will be my calf, sotimes higher (my thigh). My Physoi says, it's most...

does anyone know why the muscles in one leg only, suddenly go very hard? Sometim...

•11 years ago

Where can I pick up a neurologist, cheap?

I had my head injury 20 years ago, after which I gained ataxia. Should I still have a neurologist? Are they cheap to pick up? Is there a "brand" to look for? I...

I had my head injury 20 years ago, after which I gained ataxia. Should I still h...

•11 years ago

What a difference 24hrs can make!

Today, I was up and ready early, I expected to attend an appointment at 11am. My daughter was going into work late, and coming to give me a lift. I rang...

Today, I was up and ready early, I expected to attend an appointment at 11am. M...

•11 years ago

Where can l find an all terrain walker/ wheelchair

I love country walks. I am having to rely on a rollator or using a wheelchair as a walker to get about. I really miss my walks around the fields but can manage...

I love country walks. I am having to rely on a rollator or using a wheelchair as...

•11 years ago

does anyone have cold legs when they go to sleep? I often have to put an extra cover on just my legs.

•11 years ago

How low will you go?

I've been watching channel 5's Trauma Docters. What is a low GCS?

I've been watching channel 5's Trauma Docters. What is a low GCS?

•11 years ago

any advise !

its early hours of the morning and got on the net which i very rarely use as not very good , and foung your ste , my mom is 78 and has had cerebella ataxia...

its early hours of the morning and got on the net which i very rarely use as not...

•11 years ago

No results

I have been back to London, the last lot of tests came back negative but I do feel quite relieved as one the types gave a bleak future. But not knowing has...

I have been back to London, the last lot of tests came back negative but I do fe...

•11 years ago

.I' have found your site very informative. Does anyone suffers from inability to breathe at all. It happens unexpectedly even when asleep,

•11 years ago

Muscle cramps?

I get really bad cramps, usually in my feet, sometimes in my calves and also sometimes in my chest. They are really painful and seem to affect me more in the...

I get really bad cramps, usually in my feet, sometimes in my calves and also som...

•11 years ago

Hearing (or not) on the phone?

Does anyone have difficulty making out words on the phone? I can hear the voice, just can't hear what their saqying. Any suggestions?

Does anyone have difficulty making out words on the phone? I can hear the voice...

•11 years ago

The John Radcliffe Specialist Unit Oxfordshire

I have at long last received an appointment for this centre albeit for July. I have been asking my GP for a referral for a long time .Perhaps I shall get some...

I have at long last received an appointment for this centre albeit for July. I h...

•11 years ago

Does your body feel like its slowing down?

Does anyone with ataxia have episodes where you feel your breathing and circulation slowing down? Some what like a sort of physical depression, only isolated...

Does anyone with ataxia have episodes where you feel your breathing and circulat...

•11 years ago

reading

Still being new to this, I find when I read my eyes "skip" words is this a prob related to Ataxia please

Still being new to this, I find when I read my eyes "skip" words is this a prob ...

•11 years ago

Should Ataxians use a computermouse instead of a touch pad ?

http://www.trust.com/products/product.aspx?artnr=16536 cf. my entry

http://www.trust.com/products/product.aspx?artnr=16536 cf. my entry

•11 years ago

Where can I buy a 'therapy stool'?

Does anyone know where I can get a 'therapy stool' - a stool with 4 legs and lockable wheels. The stools are designed primely for physios to attend to their...

Does anyone know where I can get a 'therapy stool' - a stool with 4 legs and loc...

•11 years ago

Getting around indoors?

I'm wobblly on my feet but not ready to use a wheelchair indoors, I get round on my bum or all fours to a doorframe where I can pull myself up standing. I...

I'm wobblly on my feet but not ready to use a wheelchair indoors, I get round on...

•11 years ago

How many on here getting hit by Bedroom Tax/benefits cuts in UK?

I'm wondering how many of us are been hit by this new Bedroom Tax in UK? Having to pay some of council tax also and DLA been scrapped? Are you paying...

I'm wondering how many of us are been hit by this new Bedroom Tax in UK? Havi...

•11 years ago

re-habillitation centre

I'm currently at a re-education centre (re-habillitation in English for intensive physio and relaxation in a thermal salt water pool. Went in on Weds pm, is...

I'm currently at a re-education centre (re-habillitation in English for intensiv...

•11 years ago

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