Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,021 members4,557 posts

All posts for October 2021

Befriending Volunteers Wanted

Hi Everyone! Do you have an hour a week to spare and love to chat? We're lookin...

Feeling Hot

I’ve noticed over the last few months I get really hot when doing the slightest ...
paul456 profile image

Does anyone have vision problems like movement of everything when you are walking and slow focusing? I have something called CANVAS Ataxia

I have hereditary Ataxia called CANVAS and have problems with vision especially ...
boxerattims profile image
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SCA2?

Hello, I’ve recently been diagnosed with SCA2. My CAG repeats were 37. I’m 51 ...
Shakedown profile image

Testing for this gene

Hello, Does anyone know where to test (pref. anonymously) through a mail order l...
Mav123 profile image

Standards of Clinical Care in Ataxia

🙂 I just watched an interesting, easy to understand YouTube presentation on beh...
wobblybee profile image

MRI

I am having an MRI this week can anyone tell me what to expect? I have had MRIs...
Paper2021 profile image

Does ataxia cause digestive pr

I've got ataxia also taking HRT suffering whit belly pain and lots of burping wo...
Tazwaz profile image

Diet

Hi all Does anybody follow a certain diet For ataxia? Thanks
Voice1 profile image

EA2

Hi I suffer with EA2 and in the mornings I get jelly legs and its the hardest th...

Late Walker Discovery

To all those who like myself may have been reluctant to use a walker ..... get o...
Piero profile image

More positive research

https://www.streetinsider.com/Business+Wire/Blade+Therapeutics+Announces+Publica...
nycgeordie profile image

Wheel Chair

I had to contact Sheffield Ataxia Centre as my condition rapidly deteriorated. T...
KiwiBob profile image

Promising research

https://www.qstatebio.com/news/q-state-biosciences-announces-new-therapeutic-pro...

Episodic ataxia

Hi I have episodic ataxia type 2 and I was seeing if anyone else suffered with i...

Lions Mane

I have SCA7/r43 and been testing Lions Mane about a decade now.' For me it affec...
Tommi_ profile image

New AOA2 Facebook group

Hi all, in case you haven't seen in other media or feeds, a closed Facebook grou...

Question

As really lucky people who suffer ataxia do you suffer more by doing too much or...
paul456 profile image

FA and Omaveloxolone

Copied from www.ataxia.org.uk
wobblybee profile image

Considering Giving up work

Hi all I have FA and have had a couple off falls hitting my head quite hard (luc...
LeeMorris profile image