Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,141 members•4,725 posts

All posts for February 2025

Rock steady boxing

Hi everyone, I have multifocal Dystonia and have joined an exercise group mainly advertised for Parkinson Disease called Rock steady boxing. Is anyone else...

Hi everyone, I have multifocal Dystonia and have joined an exercise group main...

flybus

•1 month ago

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Nystagmus, Double vision Hereditary CANVAS Ataxia

my condition gets worse every week when I get out of bed , stand up after sitting down my problem starts, with constant vertigo my vision is terrible I...

my condition gets worse every week when I get out of bed , stand up after sittin...

boxerattims

•2 months ago

28 Replies

Brain shrinking

Hi everyone i once read ( cant find thé link now ) that its thé small brain that causes our atakia problems and that small brain is graduation shrinking !...

Hi everyone i once read ( cant find thé link now ) that its thé small brain th...

7151

•2 months ago

9 Replies

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Trouble with family

Hi my grown up children are having lots ot trouble understang this antakia in fact i am becoming a nuisance i have fallen and finnished in hospital 3 times...

Hi my grown up children are having lots ot trouble understang this antakia in f...

7151

•2 months ago

2 Replies

Information.

https://ir.biohaven.com/news-releases/news-release-details/biohaven-announces-fda-acceptance-and-priority-review/ Information?

https://ir.biohaven.com/news-releases/news-release-details/biohaven-announces-fd...

Korkutalptug

•2 months ago

3 Replies

Suitable footwear

Good day all, hope you're all well. I would like to ask a quick question. What kind of footwear ldo you wear please? I'm finding that most of my trainers are...

Good day all, hope you're all well. I would like to ask a quick question. What k...

LOUISASAM

•2 months ago

14 Replies

Falling out a plane.

Hello everyone, I suffer with Ataxia through having Hereditary Spastic Paraplegia (HSP) and while I'm still mobile enough, I've decided to do a fundraising...

Hello everyone, I suffer with Ataxia through having Hereditary Spastic Parapleg...

StandByMe2

•2 months ago

3 Replies

ATAXIA AND NOW DYSAUTONOMIA

Was diagnosed on 2021 with ataxia but just recently with dysautonomia and autonomic neuropathy in feet and hands…one cold hand that freezes fast. Feet are numb...

Was diagnosed on 2021 with ataxia but just recently with dysautonomia and autono...

Hidden

•2 months ago

4 Replies

Brain fog

Morning everyone, As part of my Ataxia I suffer a lot with brain fog and confusion. Has anyone ever heard or had experience of a product called "Nurosym" that...

Morning everyone, As part of my Ataxia I suffer a lot with brain fog and confus...

StandByMe2

•2 months ago

9 Replies

ileostomy.

Have had an ileostomy for nine years, due to cancer. I also have hereditary Ataxia SCA6.

Have had an ileostomy for nine years, due to cancer. I also have hereditary Atax...

Lilielost

•2 months ago

1 Reply

Gettimg worse

In the past, probably more than a year ago, I used to get this forum on a daily basis. Then, inexplicably, it suddenly stopped. Every time after a fall or...

In the past, probably more than a year ago, I used to get this forum on a daily ...

klazien

•2 months ago

5 Replies

breathlessness

hello dear Members, my mother has SCA2 and has been living with it for 10 + years. I have noticed a sudden deterioration in her cognition and now for past 2...

hello dear Members, my mother has SCA2 and has been living with it for 10 + year...

rehmanm18e

•2 months ago

2 Replies

Carpal tunnel

Yesterday I had minor surgery for carpal tunnel which I thought it was a place in France but apparently it has lots of causes but one of them is using a...

Yesterday I had minor surgery for carpal tunnel which I thought it was a place i...

paul456

•2 months ago

5 Replies

Pregabalin for nerve pain........

Does anyone have an alternative to pregabalin? I recently decided to ween myself off it and am looking for any alternatives without all the side effects?...

Does anyone have an alternative to pregabalin? I recently decided to ween mysel...

sonofapeter

•2 months ago

11 Replies

Fall Detector Watch

Like many of us I’m prone to falls, my most serious falls have occurred when I’ve been alone and been unconscious .so I really need to consider a ‘Fall......

Like many of us I’m prone to falls, my most serious falls have occurred when I’v...

wobblybee

•2 months ago

9 Replies

My Ataia symptoms (speech, balance, dizzines) get much worse when it rains. Does anyone else experience this?

My Ataxia symptoms (SPEECH, BALANCE, DIZZINES) get much worse when it rains. Does anyone else experience this?

My Ataxia symptoms (SPEECH, BALANCE, DIZZINES) get much worse when it rains. Do...

Hickox

•2 months ago

2 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for February 2025

Rock steady boxing

Nystagmus, Double vision Hereditary CANVAS Ataxia

Brain shrinking

Trouble with family

Information.

Suitable footwear

Falling out a plane.

ATAXIA AND NOW DYSAUTONOMIA

Brain fog

ileostomy.

Gettimg worse

breathlessness

Carpal tunnel

Pregabalin for nerve pain........

Fall Detector Watch

My Ataia symptoms (speech, balance, dizzines) get much worse when it rains. Does anyone else experience this?

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive