Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,070 members • 4,642 posts

All posts for July 2024

New book by Ataxian published yesterday!

Find out more and order your copy at https://disabilityisotherpeople.com/

RCBrownMBE

•26 days ago

2 Replies

Turkey

Is there anyone in the group from Turkey?

Konuralp

•27 days ago

Be the first to reply

thanks!

Thank you to everyone who responded to my question. The variety of opinions from by my specialists was reflected by the community response. I am aware that...

Thank you to everyone who responded to my question. The variety of opinions from...

Sushibot

•27 days ago

1 Reply

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alcohol use and cerebellar ataxia

What has been your experience (both personal and advice from your neurologist) regarding moderate (1-7 drinks per week with no more than 2 a day) alcohol...

What has been your experience (both personal and advice from your neurologist) r...

Sushibot

•28 days ago

12 Replies

2008 they were able to reverse SCA 3........

Look at this article, dated back in 2008, https://www.innovations-report.com/life-sciences/a-improved-gene-therapy-treatment-machado-joseph-119799/. 2008? 16...

Look at this article, dated back in 2008, https://www.innovations-report.com/lif...

sonofapeter

•1 month ago

9 Replies

Support Groups

Can anyone give me any information about the forthcoming West Country support group listed on Ataxia.uk's website for July please? What areas are covered and...

Can anyone give me any information about the forthcoming West Country support gr...

Frenchoak

•1 month ago

3 Replies

How fast does Ataxia normally progress?

Hi all I am having ataxia symptom since around age of 21, was only get it diagnose around age 26, this year i am 32 by the way. My doctor could not diagnose...

Hi all I am having ataxia symptom since around age of 21, was only get it diagn...

HhahahaaHaha

•1 month ago

7 Replies

TG6 , gluten ataxia, antibodies and a strict diet

I have been diagnosed with Idiopathic Cerebellum Ataxia for 6 years . My consultant recently arranged for a TG6 test at Sheffield hospital . The result came...

I have been diagnosed with Idiopathic Cerebellum Ataxia for 6 years . My consult...

cyclist49

•1 month ago

4 Replies

Topper Mattress.

Hi folks - which topper mattress would you suggest I buy - thanks,

jeromekern

•1 month ago

2 Replies

Which wheelchair?!?

Hello folks, I'm just after some advice. I have been given a manual wheelchair from the NHS but when moving myself it's very slow and find it's easier for...

Hello folks, I'm just after some advice. I have been given a manual wheelchair ...

Eveie78

•1 month ago

6 Replies

Spelling

Hi most of you know i have Antakia after many years of not knows even thinking i m going nuts ,, so lots of scans blood tests lumber puncture thé...

Hi most of you know i have Antakia after many years of not knows even thinkin...

7151

•1 month ago

1 Reply

Exercise machine recommendations?

Hi folks, I’m looking to buy an exercise machine appropriate for my needs. I am very unfit and quite gym-phobic! I have FA and a problem with hip and knee...

Hi folks, I’m looking to buy an exercise machine appropriate for my needs. I am...

dansybelle

•1 month ago

6 Replies

Good specialist experience 😃

I was given the diagnosis of Ataxia two years ago but every other specialist I have seen has queried that along with querying other diagnoses I have had for...

I was given the diagnosis of Ataxia two years ago but every other specialist I h...

2hot

•1 month ago

8 Replies

Writing aids advice needed

Hi I was diagnosed with SCA6 in 2021 and gradually my writing has become worse (no surprise). It is still legible (just!) but is getting harder and harder to...

Hi I was diagnosed with SCA6 in 2021 and gradually my writing has become worse ...

solar5

•1 month ago

8 Replies

Sheffield referral

Beth has SCA 19/22 diagnosis that is slowly degenerating. I am finding it increasingly frustrating to access appropriate help from professionals who don't have...

Beth has SCA 19/22 diagnosis that is slowly degenerating. I am finding it increa...

Jenandbeth

•2 months ago

4 Replies

Tasigna (Nilotinib) as a treatment/cure for FA?

Hello dear, I read that a few years ago there was conducted a medical study regarding Tasigna nilotinib and hereditary ataxia. I have heard many positive...

Hello dear, I read that a few years ago there was conducted a medical study re...

Wheelboy010

•2 months ago

8 Replies

Help again

Hi everyone another question does anyone have the feeling of falling backwards. I have to use a rollator inside and out but over the last 6 months or so when...

Hi everyone another question does anyone have the feeling of falling backwards. ...

weegiz12345

•2 months ago

19 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for July 2024

New book by Ataxian published yesterday!

Turkey

thanks!

alcohol use and cerebellar ataxia

2008 they were able to reverse SCA 3........

Support Groups

How fast does Ataxia normally progress?

TG6 , gluten ataxia, antibodies and a strict diet

Topper Mattress.

Which wheelchair?!?

Spelling

Exercise machine recommendations?

Good specialist experience 😃

Writing aids advice needed

Sheffield referral

Tasigna (Nilotinib) as a treatment/cure for FA?

Help again

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive