Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,570 posts

All posts for October 2017

DNA Repair/ Cockayne Syndrome and Niagen.

I knew that nicotinamide riboside was headed for a human clinical trial in Cockayne Syndrome, but I never found any underlying animal model research that...

I knew that nicotinamide riboside was headed for a human clinical trial in Cocka...

sunvox

•6 years ago

2 Replies

PIP and ESA assessments your chance to tell government what you think

Have you had a rough deal with PIP or ESA process you can submit your experience to the Work and Pensions select committee inquiry...

Have you had a rough deal with PIP or ESA process you can submit your experienc...

rankin1st

•6 years ago

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Cancelling

I wish to cancel health unlocked but need help in removing this site from my computer

I wish to cancel health unlocked but need help in removing this site from my com...

Hidden

•6 years ago

7 Replies

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SCA6 Inheritance

Does anyone know if it's possible to have the gene and not develop any symptoms? I have older siblings who seem fine, wont have the test but are worried they...

Does anyone know if it's possible to have the gene and not develop any symptoms?...

SharonPS

•6 years ago

9 Replies

New to the forum

Hi I'm 43 years old and in June I was diagnosed with cerebellar ataxia type unknown. looking back I had symptoms as far back as 20 years ago however I am...

Hi I'm 43 years old and in June I was diagnosed with cerebellar ataxia type unkn...

piglet3

•6 years ago

9 Replies

Latest on Trehalose

Many folks on the Parkinson's forum know of Simon's blog and the Parkinson's community is lucky to have such a great teacher and researcher who brings the...

Many folks on the Parkinson's forum know of Simon's blog and the Parkinson's com...

sunvox

•6 years ago

8 Replies

Follow up

Yesterday I had a follow up appointment with my neurologist. Going through all my tests, which have not revealed any answer, she put me through my paces and...

Yesterday I had a follow up appointment with my neurologist. Going through all ...

pollybanana

•6 years ago

6 Replies

PIP

got the results of my pip today have getting the enhanced award in both mobility and care until 2027 phew

got the results of my pip today have getting the enhanced award in both mobility...

gossy

•6 years ago

6 Replies

New here- Canadian with Gluten Ataxia...

I feel I won the lottery because I stumbled across this site. I have so many questions. I don't know where to start. I thought my neurological problems were...

I feel I won the lottery because I stumbled across this site. I have so many que...

happylilacs

•6 years ago

17 Replies

Advances in DNA medicine 🤔

Article from the Daily Mail (so take it with a pinch of salt 😏) announces groundbreaking DNA editing technique that could be instrumental to curing 15,000...

Article from the Daily Mail (so take it with a pinch of salt 😏) announces groun...

Dressy6

•6 years ago

3 Replies

A website showing some very helpful aids

The products are likely to be 'expensive' but it's worth a look just to see the array of aids available. www.clos-o-mat.com 😊xB

The products are likely to be 'expensive' but it's worth a look just to see the ...

wobblybee

•7 years ago

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FAMILY!!!o

Didnt realise my family was so big. Just spent the w/end getting to know some of them at Stansded at the 2017 conference.It was like stepping into a new world,...

Didnt realise my family was so big. Just spent the w/end getting to know some of...

DOTS01

•7 years ago

4 Replies

THE BIG DAY IS HERE!

Well today is the day I am off to the hallamshire in sheffield to see Prof H. and hopefully finally get some diagnosis, only been waiting since october 2014,...

Well today is the day I am off to the hallamshire in sheffield to see Prof H. an...

Jakeyboi77

•7 years ago

5 Replies

FRIEDREICHS ATAXIA PARENTS

Hi, I just wanted to say that the best resource available for parents of kids with FA is the Friedreichs Ataxia Parents Group. http://www.faparents.org/fapg/...

Hi, I just wanted to say that the best resource available for parents of kids w...

emmanik

•7 years ago

1 Reply

moving 'forward'?

At last got an appointment set to see a neurologist at Cambridge Addenbrookes hospital but not until February. I'll have a long list of questions by then. Hope...

At last got an appointment set to see a neurologist at Cambridge Addenbrookes ho...

springlove

•7 years ago

5 Replies

Confused and very concerned

I was up until eight weeks ago a very healthy person although I have had ongoing lower back pain for many years. Then suddenly I noticed a stiffening in the...

I was up until eight weeks ago a very healthy person although I have had ongoing...

PatJean

•7 years ago

6 Replies

I'm new here and have SPG7

I am 72 and since my 50's have suffered increasing mobility and balance problems.Gene research has indicated SPG7 and my lower limbs are weak and feet turn in...

I am 72 and since my 50's have suffered increasing mobility and balance problems...

Hidden

•7 years ago

2 Replies

My names chantelle

hi im 25 have have 3 young kids my boyfriend is my carer and I live in rugby

Chantelle25

•7 years ago

10 Replies

Another wheelchair donation!

Dear all, We have been contacted by a Friend of Ataxia UK who is donating her wheelchair, free, to anyone who might need it. The model is a Cyclone Advantage...

Dear all, We have been contacted by a Friend of Ataxia UK who is donating her w...

SMarley

•7 years ago

3 Replies

NUMB TONGUE

The last few days I've woken up with a numb tongue then after a few minutes it goes away. Has anyone had this?

The last few days I've woken up with a numb tongue then after a few minutes it g...

berejena

•7 years ago

2 Replies

Diagnosing ataxia

The doctors think my son has ataxia. They thought he had it at 3 years but they did a watch and wait approach. He had a brain scan which showed his cerebellum...

The doctors think my son has ataxia. They thought he had it at 3 years but they ...

Tjg18676

•7 years ago

18 Replies

ADAPTED ROOMS

Booking an adapted room can sometimes be a lottery as to what you are likely to get. Some hotels seem to think that a couple of handrails some where near the...

Booking an adapted room can sometimes be a lottery as to what you are likely to ...

robo1

•7 years ago

5 Replies

My wife's current condition

Following radiotherapy and aggressive chemotherapy to treat Stage 4 Lung Cancer (non-small cell lung cancer metastesised to bones), my wife had extremely...

Following radiotherapy and aggressive chemotherapy to treat Stage 4 Lung Cancer ...

DizzyLady

•7 years ago

8 Replies

Drink

Hi all Has anyone got ataxia due to drinking, a lot off you’s have really bad ataxia due to different cases mind was drinking please let me know Many Thanks

Hi all Has anyone got ataxia due to drinking, a lot off you’s have really bad at...

Art69

•7 years ago

15 Replies

Good Vibrations?

Second time I am writing about this,, I find the vibrations from my electric toothbrush are helpful with my visual disturbance. NOT A CURE!!! But it occurred...

Second time I am writing about this,, I find the vibrations from my electric to...

neta

•7 years ago

8 Replies

results towards a neurologist appointment

After waiting an hour to see the GP, she was very willing and made arrangements for me so see a neurologist at the Cambridge University hospital. Jean

After waiting an hour to see the GP, she was very willing and made arrangements ...

springlove

•7 years ago

2 Replies

Please read this. It may be big.

This is my second post on this topic. I urge people to take this information to their neurologist and discuss the findings. The way this medication works may...

This is my second post on this topic. I urge people to take this information to...

sunvox

•7 years ago

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Are we all going through having to make a post this is my second

Every time I think it is something new then I find that you have all been through it before, I love B! because she was the first person I spoke to on this...

Every time I think it is something new then I find that you have all been throug...

DeniseLB

•7 years ago

1 Reply

Appointment with GP at last

It's so difficult trying to get one but at last this afternoon will asked to be referred to the neurologist. I bet it'll be the one I saw all those years......

It's so difficult trying to get one but at last this afternoon will asked to be ...

springlove

•7 years ago

2 Replies

6 week old cough

Is this normal? Is this a CA thing sent to further test me- it's certainly leaves me more tired and dizzy. Good times

Is this normal? Is this a CA thing sent to further test me- it's certainly leave...

SamGH

•7 years ago

7 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for October 2017

DNA Repair/ Cockayne Syndrome and Niagen.

PIP and ESA assessments your chance to tell government what you think

Cancelling

SCA6 Inheritance

New to the forum

Latest on Trehalose

Follow up

PIP

New here- Canadian with Gluten Ataxia...

Advances in DNA medicine 🤔

A website showing some very helpful aids

FAMILY!!!o

THE BIG DAY IS HERE!

FRIEDREICHS ATAXIA PARENTS

moving 'forward'?

Confused and very concerned

I'm new here and have SPG7

My names chantelle

Another wheelchair donation!

NUMB TONGUE

Diagnosing ataxia

ADAPTED ROOMS

My wife's current condition

Drink

Good Vibrations?

results towards a neurologist appointment

Please read this. It may be big.

Are we all going through having to make a post this is my second

Appointment with GP at last

6 week old cough

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive