Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,028 members • 4,569 posts

All posts for April 2018

what kind of tests do you get for thyroid disease and have a proper check

what test do you get to check your thyroid properly

patsyday

•6 years ago

5 Replies

Diet helping Parkinson's?

OK I know we do not have Parkinsons but I have been watching the benefits of cycling and I found this guy Colin Potter, who through diet has stopped his...

OK I know we do not have Parkinsons but I have been watching the benefits of cyc...

Litty

•6 years ago

9 Replies

Volunteer for ataxia research in Plymouth

Lisa Bunn a physiotherapist and researcher into ataxia is looking for a volunteer local to Plymouth to help compile a short movie to train therapists in the...

Lisa Bunn a physiotherapist and researcher into ataxia is looking for a volunt...

AdamHarley

•6 years ago

2 Replies

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Botox for excessive salivation

Hi has anyone been offered and/or had these injections? If so could you share your experience please, thinking of approaching neurologist to ask if they are a...

Hi has anyone been offered and/or had these injections? If so could you share yo...

Angelcake1

•6 years ago

10 Replies

National Ataxia Foundation 2018 on YouTube

Information from the 2018 National Ataxia Foundation Convention is now available on www.youtube.com Search - National Ataxia Foundation Convention 2018

Information from the 2018 National Ataxia Foundation Convention is now available...

wobblybee

•6 years ago

2 Replies

100,000 genomes project

I have been invited to take part in this project because my brother has severe cerebral degradation. I have ataxia symptoms as well after a series of seizures...

I have been invited to take part in this project because my brother has severe c...

planetzed

•6 years ago

7 Replies

Post Stroke Ataxia Medication

I am the husband of a 61 year old wonderful lady who suffered a stroke 3 years ago, this has left her with severe ataxia whereby she has no mobility, her...

I am the husband of a 61 year old wonderful lady who suffered a stroke 3 years a...

Biffabacon

•6 years ago

3 Replies

Quantum therapy for SCA patient is light for escape.

New delvoping Quantum therapy for already dead or damaging brains cells regrow, and our future life better than ever. For details please searching my post “...

New delvoping Quantum therapy for already dead or damaging brains cells regrow, ...

Ernest_lam

•6 years ago

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Intense vertigo and betahistine

Hello, I happened upon this site when researching vertigo and betahistine. I woke up with intense vertigo last Saturday morning, so 6 full days now. I got in...

Hello, I happened upon this site when researching vertigo and betahistine. I wo...

Hidden

•6 years ago

11 Replies

https://youtu.be/TasMOQ2FKKk

The cerebellar cognitive affective/Schmahmann syndrome You probably know all about this already - in which case apologies, but my other half got very excited...

The cerebellar cognitive affective/Schmahmann syndrome You probably know all ab...

Litty

•6 years ago

10 Replies

3 sugars. Mannitol, trehalose, and now xylitol!?

Never ever try anything based on some random internet comments. Always talk to you doctor before trying anything new. - - I am not a doctor or a researcher,...

Never ever try anything based on some random internet comments. Always talk to ...

sunvox

•6 years ago

7 Replies

BPPV

Hi got bppv in November eply done it went. Late feb bent over back. Gp couldnt do the Eply i was crying she wasnt confident. Im on Serc 16 twice day Stem and...

Hi got bppv in November eply done it went. Late feb bent over back. Gp couldnt d...

Suzy1234

•6 years ago

11 Replies

What are other peoples experience with nystagmus

recently diagnosed with nystagmus

cyclist49

•6 years ago

6 Replies

Deleted post

Dear all Some of you read and responded to bevvick1964's post from a few days ago about how low she was feeling. I fear that I may have inadvertently deleted...

Dear all Some of you read and responded to bevvick1964's post from a few days ag...

HarryB

Administrator•6 years ago

6 Replies

Betahistine headache

I suffer from tinnitus, vertigo and migraines. ENT specialist gave me betahistine but I wake every morning with a headache all over my head and into my neck....

I suffer from tinnitus, vertigo and migraines. ENT specialist gave me betahisti...

Gaysie53nz

•6 years ago

7 Replies

Cannabis oil

Hi, just wondering has anyone tried cannabis oil? And if so, has anyone found it to help at all with symptoms? I have cerebellar ataxia. Thanks

Hi, just wondering has anyone tried cannabis oil? And if so, has anyone found it...

Lockmaster

•6 years ago

17 Replies

Tay Sachs Disease

Hi Everyone, has anybody on here heard of Tay Sachs disease?

Chris020485

•6 years ago

Be the first to reply

Cognitive Symptoms same as Schizophrenia?

The negative symptoms of schizophrenia include blunting of affect; poverty of speech and thought; apathy; ahedonia; reduced social drive; loss of motivation;...

The negative symptoms of schizophrenia include blunting of affect; poverty of s...

imoa

•6 years ago

4 Replies

Ataxia group

Leicester and Leicestershire ataxia June meeting is the 21stjune at the local hero Aylestone Road all new members welcome meeting at 12.30 ask for vickie or...

Leicester and Leicestershire ataxia June meeting is the 21stjune at the local he...

xray25

•6 years ago

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Quantum therapy for SCA

Quantum therapy’s using quantum energy is make the heme break as small as possible, and then using low push generator to through the dead brain cell as a...

Quantum therapy’s using quantum energy is make the heme break as small as possib...

Ernest_lam

•6 years ago

9 Replies

BHV-4157 Drug

anyone heard about the BHV-4157 Drug

vinupr

•6 years ago

4 Replies

Operation

Hi all I just wanted to ask you think of my twin sister (53) who had a shoulder operation on Tuesday morning. We both have Hereditary CA and she fell over in...

Hi all I just wanted to ask you think of my twin sister (53) who had a shoulder ...

Staggy1

•6 years ago

6 Replies

Today's interesting molecule. Taurine.

So I spent a couple days researching this molecule and finally just now I began to find some truly interesting links: - Creatine-supplemented diet extends...

So I spent a couple days researching this molecule and finally just now I began ...

sunvox

•6 years ago

3 Replies

Cognitive Problems

Hi, I have late onset cognitive problems rather than physcal or motor problems. This is not the norm I understand.

Hi, I have late onset cognitive problems rather than physcal or motor problems. ...

imoa

•6 years ago

6 Replies

Hi, I'm a newbie!!!

Hey there all! I was told last year by my Neurologist that I had a " very definite bilateral cerebellar ataxia"??!! I had never heard of it before and now have...

Hey there all! I was told last year by my Neurologist that I had a " very defini...

nicanna

•6 years ago

23 Replies

Yet ANOTHER assessment

Hi everyone. I am just feeling a bit down at the moment, as I have another assessment to attend in a couple of days (wed). Its for a health assessment by the...

Hi everyone. I am just feeling a bit down at the moment, as I have another asses...

peterallison

•6 years ago

2 Replies

Attention Kevin

I'm searching for Kevin. He replied to my wanting a penfriend; someone who similarly has late onset cerebellar, except mine is Stroke based whereas his is...

I'm searching for Kevin. He replied to my wanting a penfriend; someone who simil...

imoa

•6 years ago

2 Replies

BioHaven Drug for SCA

Hey guys, Has anyone ever used or know more information about a drug created by biohaven to battle SCA? My mothers doctor is waiting to receive it to give it...

Hey guys, Has anyone ever used or know more information about a drug created by...

NirYzhari

•6 years ago

4 Replies

Riluzole

Hi Has anyone been prescribed Riluzole for cerebellar ataxia?

Rubinas85

•6 years ago

8 Replies

Resveratrol

Just wondering if anyone (called Joe😉) has an opinion on this? Just read about it improving symptoms in MND (in mice) and wondered if it's worth...

Just wondering if anyone (called Joe😉) has an opinion on this? Just read about ...

Stanleyclan

•6 years ago

4 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for April 2018

what kind of tests do you get for thyroid disease and have a proper check

Diet helping Parkinson's?

Volunteer for ataxia research in Plymouth

Botox for excessive salivation

National Ataxia Foundation 2018 on YouTube

100,000 genomes project

Post Stroke Ataxia Medication

Quantum therapy for SCA patient is light for escape.

Intense vertigo and betahistine

https://youtu.be/TasMOQ2FKKk

3 sugars. Mannitol, trehalose, and now xylitol!?

BPPV

What are other peoples experience with nystagmus

Deleted post

Betahistine headache

Cannabis oil

Tay Sachs Disease

Cognitive Symptoms same as Schizophrenia?

Ataxia group

Quantum therapy for SCA

BHV-4157 Drug

Operation

Today's interesting molecule. Taurine.

Cognitive Problems

Hi, I'm a newbie!!!

Yet ANOTHER assessment

Attention Kevin

BioHaven Drug for SCA

Riluzole

Resveratrol

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive