Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for September 2022

A Diary

Did anyone keep a diary marking the progress of their condition? I didn’t, but I wish I had because it’s been an interesting as well as an appalling...

Did anyone keep a diary marking the progress of their condition? I didn’t, but ...

Ostap

•2 years ago

9 Replies

Deep Brain Stimulation

Has anyone with Cerebellar Ataxia been treated with Deep Brain Stimulation? Was it beneficial?

Has anyone with Cerebellar Ataxia been treated with Deep Brain Stimulation? Was ...

Ostap

•2 years ago

10 Replies

Patience is a virtue 😂

Sca 48 is the genetic ataxia I have, after 8yrs of tests any one else have this 🙈

Sca 48 is the genetic ataxia I have, after 8yrs of tests any one else have this ...

claire01

•2 years ago

5 Replies

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Sativex

The above drug is a nasel spray that has been approved by the NHS for MS sufferers, dies anyone know if this is ok to take for Ataxia sufferers as helping...

The above drug is a nasel spray that has been approved by the NHS for MS suffere...

Tazmurray

•2 years ago

11 Replies

Dalfampridine

A few weeks ago, I read on this site about the potential benefits of the above drug on patients with Ataxia. I still have no precise diagnosis although am told...

A few weeks ago, I read on this site about the potential benefits of the above d...

Buffergirl

•2 years ago

2 Replies

seizures

Hello friends I hope you are all doing as well as can be. I have a question regarding seizures and the type of seizures I’m experiencing. I’m having...

Hello friends I hope you are all doing as well as can be. I have a question re...

Guardsman68

•2 years ago

8 Replies

Has anyone tried EXOPULSE MOLLII SUIT?

I have just come across a treatment to manage SCA3. It involves retraining nerves and muscles using an electronic suit. It was developed in Switzerland and has...

I have just come across a treatment to manage SCA3. It involves retraining nerve...

Bikebug

•2 years ago

3 Replies

Optician

I am due to have an appointment soon, so trying to find an accessible optician. Last year I went to a local optician and safety was not an issue. The waiting...

I am due to have an appointment soon, so trying to find an accessible optician. ...

cocoa

•2 years ago

4 Replies

vitamin B12

hi all Has anyone been screened for a deficiency in B12? If so would you be able to share your experience ? B12 deficiency can cause ataxia. I’m astounded...

hi all Has anyone been screened for a deficiency in B12? If so would you be ab...

maryrose46

•2 years ago

10 Replies

Running

hi, I just wanted to ask a question. I have tried loads of times aswell as in different circumstances but I just can’t run-as in I am totally unable to which...

hi, I just wanted to ask a question. I have tried loads of times aswell as in di...

EmWakie

•2 years ago

16 Replies

Respect

Yesterday was indeed a sad day with the loss of her majesty the queen she was a Gran, mum, sister and friend to all. she will be sadly missed.

Yesterday was indeed a sad day with the loss of her majesty the queen she was a ...

paul456

•2 years ago

6 Replies

Is it common for Consultant Neurologist to just diagnose Ataxia without offering treatment or further diagnosis? I am unsure what to do now.

Ataxia

Eysteinsson

•2 years ago

18 Replies

by sca3

Friends, I want to ask you a question. After consulting your previous replies and information, I saw trehalose. I tried to take trehalose orally for nearly a...

Friends, I want to ask you a question. After consulting your previous replies an...

xiaoduoyu

•2 years ago

4 Replies

Don't doctor's ever examine people anymore ?

I'm guessing I'm not the only one here, it just seems since Covid,any doctor you ever get to see (even my neurologist who is an Ataxia expert and very...

I'm guessing I'm not the only one here, it just seems since Covid,any doctor yo...

discodave66

•2 years ago

3 Replies

Neuropathy

Hi has anyone with neuropathy in their feet and legs(horrible feeling in your lower legs and feet, seems to have got worse since my ataxia has progressed, but...

Hi has anyone with neuropathy in their feet and legs(horrible feeling in your lo...

weegiz12345

•2 years ago

28 Replies

About dalfamridine for SCA

Has anyone ever eaten dalfampridine? How does it work

xiaoduoyu

•2 years ago

3 Replies

Newly Diagnosed with spinocerebellar ataxia

Hi. This is my first post. Can you please take the time to tell me your stories, just a brief outline. Thanks a million 🤔

Hi. This is my first post. Can you please take the time to tell me your stor...

Buddyfreckles2022_

•2 years ago

6 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for September 2022

A Diary

Deep Brain Stimulation

Patience is a virtue 😂

Sativex

Dalfampridine

seizures

Has anyone tried EXOPULSE MOLLII SUIT?

Optician

vitamin B12

Running

Respect

Is it common for Consultant Neurologist to just diagnose Ataxia without offering treatment or further diagnosis? I am unsure what to do now.

by sca3

﻿Don't doctor's ever examine people anymore ?

Neuropathy

About dalfamridine for SCA

﻿Newly Diagnosed with spinocerebellar ataxia

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive

Don't doctor's ever examine people anymore ?

Newly Diagnosed with spinocerebellar ataxia