Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for January 2017

Amantadine anti viral used in parkinson´s

I visited my neurologist yesterday and although I think I am doing great, she prescribed 100mg once a day of amantadine (hope that is the name in english). As...

I visited my neurologist yesterday and although I think I am doing great, she pr...

•8 years ago

Help

Iv got mild cognitive impairment. . Will I get my driving licence which iv had over 20yrs. .they checked for alziemers non there. .it's been over a year now x

Iv got mild cognitive impairment. . Will I get my driving licence which iv had o...

•8 years ago

Dudley & Wolverhampton Ataxia Support Group

February always seems to come around far to quickly and it's time for the second meeting of 2017 of the Dudley&Wolverhampton Ataxia Support Group is this...

February always seems to come around far to quickly and it's time for the second...

•8 years ago

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Need some Motivation

o k guys look at you tube for Sandi's journey this girl is super motivational and some of her stuff is just under Sandi journey Wow

o k guys look at you tube for Sandi's journey this girl is super motivational an...

•8 years ago

4yo undiagnosed Ataxia

Hi I'm new here. And have a 4yo son who the geneticist says has Ataxia. We are still waiting on an Ataxia gene panel results (it's been 6 months!). So we don't...

Hi I'm new here. And have a 4yo son who the geneticist says has Ataxia. We are s...

•8 years ago

Burns day

Nothing to do with ataxia but would just like to say a happy 'Burns' day to all ataxia's Scottish members.

Nothing to do with ataxia but would just like to say a happy 'Burns' day to all ...

•8 years ago

Dizziness

I thought I had vertigo but was diagnosed with Cerebellar Ataxia in March/April 2016. I have accepted my legs not working and being slow, but I have really bad...

I thought I had vertigo but was diagnosed with Cerebellar Ataxia in March/April ...

•8 years ago

Child with Ataxia

Hello my 7 year old daughter was diagnosed with Ataxia resulting from (most likely) post viral cerebellitis 3 months ago. She has not been able to run or do...

Hello my 7 year old daughter was diagnosed with Ataxia resulting from (most like...

•8 years ago

Child with ataxia

Hello my 7 year old has Ataxia caused (most likely) by post viral cerebellitis. It has been 3 months now and she has frequent falls and has been unable to run...

Hello my 7 year old has Ataxia caused (most likely) by post viral cerebellitis. ...

•8 years ago

Stemcells in China

Hi :) I have sca7 and i went to China for stemcells that came from donated umblical cord and placenta. It helps me. I have to repeat them. I also live very...

Hi :) I have sca7 and i went to China for stemcells that came from donated umbli...

•8 years ago

Flat holiday destination

Hi I am looking for somewhere that is relatively flat to go on holiday, as I am in a wheelchair, and my husband finds it very difficult to push me up hills but...

Hi I am looking for somewhere that is relatively flat to go on holiday, as I am ...

•8 years ago

Blurred vision SCA6

Hello, Peter my hubby has SCA6 and has terrible problems with blurred vision. He is supervised by his neuro opthamologist and given different types of prisms...

Hello, Peter my hubby has SCA6 and has terrible problems with blurred vision. He...

•8 years ago

Holiday Villa

Does anyone know of a 5 bedroom villa which is wheelchair accessible and with an adapted en suite please? Seeking "August" availability if poss. Spain/Portugal...

Does anyone know of a 5 bedroom villa which is wheelchair accessible and with an...

•8 years ago

Introduction

Hi All, My name is Madeleine & I have had CA for 45 years. I'm now 73, & very practised in the art of falling over!! I have SCA 6. My brother, my nephew, &...

Hi All, My name is Madeleine & I have had CA for 45 years. I'm now 73, & very p...

•8 years ago

Cerebellum stoke support

I don't know I'm new to this my husband just came home with the cerebellum stroke looking for people that have experienced this dizziness and nausea please...

I don't know I'm new to this my husband just came home with the cerebellum strok...

•8 years ago

I'm new and would love to have some advice.

My husband Peter has cerebral Ataxia and he is now going to the loo about ten times a day. He also can't hold hus urine and wets himself. It is so humiliating...

My husband Peter has cerebral Ataxia and he is now going to the loo about ten ti...

•8 years ago

Vibropower

Hiya fellow Ataxians. Has anyone bought one of the vibrating pad thingys, if so has it helped. At 65 I've just been diagnosed with late onset Ataxia but, as...

Hiya fellow Ataxians. Has anyone bought one of the vibrating pad thingys, if so...

•8 years ago

beurer heat pad

http://www.currentbody.com/beurer-luxury-heat-pad-hk45.html best thing I ever got for my ice cold feet in bed

http://www.currentbody.com/beurer-luxury-heat-pad-hk45.html best thing I ever go...

•8 years ago

EA1

Does anyone else in this forum suffer with EA1 it would be nice to talk if possible.

Does anyone else in this forum suffer with EA1 it would be nice to talk if possi...

•8 years ago

Ataxia - short lived but dramatic instant improvement with gluten-free diet.

I am a 77 year-old retired pathologist and new here. My illness began 6 years ago, with difficulty in walking, upset balance and problems getting in and out of...

I am a 77 year-old retired pathologist and new here. My illness began 6 years ag...

•8 years ago

Good Afternoon to all Ataxians - Thursday 12 Jan 2017 :-)

You have to open up - let your thought out - now that's better... Here we go folks some serious stuff which should be of interest to the older members of this...

You have to open up - let your thought out - now that's better... Here we go fol...

•8 years ago

Appeal for Life-Changing Mobility Equipment

https://www.gofundme.com/life-changingmobilityequipment My name is Richard Brown. I am 40 and was diagnosed with a progressive nervous disorder,...

https://www.gofundme.com/life-changingmobilityequipment My name is Richard Br...

•8 years ago

Good Morning to all Ataxians 11 Jan 2017. :-)

Picture of... My Favourite Aid I’m in better fettle this morning folks… :-) Here I am reclined (bad back & sensitive bum cheeks lol) in front of my computer...

Picture of... My Favourite Aid I’m in better fettle this morning folks… :-) Her...

•8 years ago

Good Morning to all Ataxians :-) 10 Jan 2017

Am I going to Fall? I’m sitting here looking at my screen and wondering what nonsense to blurt out that might make you smile but I’m struggling a bit this...

Am I going to Fall? I’m sitting here looking at my screen and wondering what non...

•8 years ago

Ataxia/SPG7

Hiya-I'm a tad confused-any help/clarification gratefully received. I had an MRI scan about 3 years ago-it showed cerebellar atrophy-and was diagnosed with...

Hiya-I'm a tad confused-any help/clarification gratefully received. I had an MRI...

•8 years ago

Walking sticks

Afternoon all, I have spinocerrebellar ataxia type 3. I was diagnosed about 10 years ago, I am now more or less permanently in a wheelchair. During my 10 year...

Afternoon all, I have spinocerrebellar ataxia type 3. I was diagnosed about 10 y...

•8 years ago

Vitamin B12

Hi everyone Can anyone advise please. My 13 year old son has friedrichs ataxia, his gp just done a blood test which shows vit b12 as 391 Is this normal?

Hi everyone Can anyone advise please. My 13 year old son has friedrichs ataxia,...

•8 years ago

“Cockle Doodle Doo” and Good Morning to all Ataxians 09 Jan 2017 Good Morning Folks 

Now for those of us who are struggling a bit, myself included today (back and stomach in particular plus my voice which has decided to do a bit of Yodeling...

Now for those of us who are struggling a bit, myself included today (back and st...

•8 years ago

Cerebellum Ataxia

My wife after 5 years after numerous Neurologist was diagnosed with ataxia,her speech is slightly slurry her Balance is not good, we've been to Columbia...

My wife after 5 years after numerous Neurologist was diagnosed with ataxia,her s...

•8 years ago

NARP typed Ataxia diagnosis

Hi All Finally gotten my diagnosis ! NARP Neuropathy Ataxia Retinopathy Pigmentosa = NARP type Sheffield Professor Marios Muscle biopsies MRI scans blood...

Hi All Finally gotten my diagnosis ! NARP Neuropathy Ataxia Retinopathy Pigme...

•8 years ago

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