Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for August 2023

Ataxia Special Advice

I was diagnosed with progressive cerebellar ataxia in January. So far I’ve had an Mri, dat scan, lumbar puncture and bloods for genetics, autoimmune and...

I was diagnosed with progressive cerebellar ataxia in January. So far I’ve had a...

•8 months ago

Back pain

I've been suffering from acute back pain near my coccyx for about 3 years now (partially my fault for not telling the Dr sooner!). It felt just like when a...

I've been suffering from acute back pain near my coccyx for about 3 years now (p...

ww-wibblywobbly

•8 months ago

National Ataxia Foundation..YouTube Webinairs

🙂 This is interesting but very ‘technical’ In case you missed it, our webinars from April on 'SCA6" are now on YouTube. They are uploaded to YouTube within...

🙂 This is interesting but very ‘technical’ In case you missed it, our webinar...

•8 months ago

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Falling asleep

Sorry if i ve doubled my request ! Goodmorning every one is falling asleep another complication of antaxia I fall asleep with no warning could be...

Sorry if i ve doubled my request ! Goodmorning every one is falling asleep a...

•8 months ago

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Falling asleep suddenly

Anyone else expérience falling asleep with no warning ? Is this another antaxia symptôme?

Anyone else expérience falling asleep with no warning ? Is this another anta...

•8 months ago

Indwelling/Foley Catheter

Does anyone on here have an Indwelling/Foley Catheter? After some advice; thanks.

Does anyone on here have an Indwelling/Foley Catheter? After some advice; tha...

•8 months ago

Mindfulness session at this year's annual conference!🧘🏼‍♀️

Yoga and mindfulness teacher, Lucy Holland, will lead a breakout session on mindfulness at this year's annual conference!🧘🏼‍♀️ Ataxia UK is a charity close...

Yoga and mindfulness teacher, Lucy Holland, will lead a breakout session on mind...

•8 months ago

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Ataxia UK Helpline

🙂 The helpline is there to assist with all kinds of enquiries.. https://www.ataxia.org.uk/support-services/helpline/

🙂 The helpline is there to assist with all kinds of enquiries.. https://www.a...

•8 months ago

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Lighting

Hi, my mum has Cerebellar ataxia and CANVAS syndrome. She is now unable to balance to turn lights on/off and with nights starting to cut in we’re looking at...

Hi, my mum has Cerebellar ataxia and CANVAS syndrome. She is now unable to balan...

•8 months ago

Lumière puncture

Hi everyone i saw my neurologue the other day ..i m going to be hospitalisé for 2 days to do a lumber puncture anyone know anything about this test ?!...

Hi everyone i saw my neurologue the other day ..i m going to be hospitalisé fo...

•8 months ago

Join our Carers Support Meeting!

📢 Are you a carer for someone with ataxia? Come along to our Carers Support Group Meeting on Thursday, the 31st of August, from 7:00 pm-8:00 pm. Sign up now:...

📢 Are you a carer for someone with ataxia? Come along to our Carers Support Gro...

•9 months ago

reduced mobility

Good morning My husband has Cerebellar ataxia with gene ANO10. Earlier this year he had urin infection and ended up retaining urin and having catheter for 6...

Good morning My husband has Cerebellar ataxia with gene ANO10. Earlier this yea...

•9 months ago

Apply for a Needs Assessment from Social Services

Services can include: home care help with things like cleaning and shopping disability equipment and adaptations to your home day centres to give you or...

Services can include: home care help with things like cleaning and shopping ...

•9 months ago

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Interesting research for pain relief

NHS nod for Celadon cannabis medicine trial https://www.pharmatimes.com/news/nhs_nod_for_celadon_cannabis_medicine_trial_1495654

NHS nod for Celadon cannabis medicine trial https://www.pharmatimes.com/news/n...

•9 months ago

SAC6 - very affected by rising temperature

I have SCA6 and am very effected when the temperature outside rises. I stay inside an air conditioned house but am still nonfunctional - extremely weak, off...

I have SCA6 and am very effected when the temperature outside rises. I stay insi...

•9 months ago

transport

If all people are pushed onto bicycles and public transport what will then happen to people like me who cannot ride a bike and public transport is too far away...

If all people are pushed onto bicycles and public transport what will then happe...

•9 months ago

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