Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for June 2019

Dyshsia

I suffer from dyshsia which effect my speech due to my ataxia my speech therapy got me to blow through a straw in to water making bubbles I found that...

I suffer from dyshsia which effect my speech due to my ataxia my speech therapy ...

brummie62

•5 years ago

2 Replies

Speech exercises

My speech is worse but I am on a 6 month waiting list to see speech therapist. What exercises have you been given that may help me while waiting? Thanks

My speech is worse but I am on a 6 month waiting list to see speech therapist. ...

Pussycat1

•5 years ago

10 Replies

Glare

I ‘walked’ into town today because I was told there was something on and one of the stall holders glared at me, when I looked at him he looked the other way so...

I ‘walked’ into town today because I was told there was something on and one of ...

Jacqui-A

•5 years ago

8 Replies

Want to take advantage of all our features? Just log in!

very important - Amino acids list and functions

Here is a copy of the list that you probably could not read in my last post

PeteW

•5 years ago

Be the first to reply

Amino acids and creatine

Yes I take creatine (5g day) and several amino acids (all 21 if possible). All of the above are very good for optimum muscle performance, especially recovery....

Yes I take creatine (5g day) and several amino acids (all 21 if possible). All ...

PeteW

•5 years ago

6 Replies

Ataxia

I have my first Pip tribunal since I started. Anyone got any pointers

vinoddayalji

•5 years ago

8 Replies

New to Friedreich's Ataxia

I'm new here..my nearly 13 yo son has just been diagnosed with FA. He was diagnosed as dyspraxic 5 years ago but became increasingly ataxic past 18 months and...

I'm new here..my nearly 13 yo son has just been diagnosed with FA. He was diagno...

crackerwest

•5 years ago

14 Replies

Does anyone take creatine monohydrate?

My neurologist told me I should take it and a few other things. What kind of benefit are you noticing if any?

My neurologist told me I should take it and a few other things. What kind of ben...

Hidden

•5 years ago

3 Replies

Exercise

What kind of exercises do you do

foffee11

•5 years ago

14 Replies

Beating back my first bad symptom. Thiamin?

So, last August I was at work on a layover in Hartford, CT and went down to the fitness center in the hotel and hopped on the treadmill for my regular 30...

So, last August I was at work on a layover in Hartford, CT and went down to the ...

sunvox

•5 years ago

15 Replies

Things are looking up

Yesterday I had my two yearly appointment with the neurologist. She said that she thinks I have made progress and also gained strength. She thinks, as do i,...

Yesterday I had my two yearly appointment with the neurologist. She said that ...

ww-wibblywobbly

•5 years ago

20 Replies

UK available keyboard for ataxia

Hi, sorry, I know this follows a similar post but has any one got any suggestions for a keyboard for a SCA 2 sufferer (available in the UK)?My fine motor...

Hi, sorry, I know this follows a similar post but has any one got any suggestion...

Kaap

•5 years ago

1 Reply

Anti-Purkinge

For five days last week I had IVIg treatment I have to have blood test in August to see if it worked on Anti-Purkinge and if so the treatment will be repeated....

For five days last week I had IVIg treatment I have to have blood test in August...

Jacqui-A

•5 years ago

1 Reply

Blue badge refused

I have had my application for a Blue Badge declined without being seen and asked my GP to help, she said she didn't like to do supporting letters and let's see...

I have had my application for a Blue Badge declined without being seen and asked...

Pussycat1

•5 years ago

16 Replies

Keyguard on keyboard

Rather than hit the wrong key I now use a keyboard with a keyguard on. The keyboard is cordless and supplied FOC by NWAT (North west Assistive Technologies)....

Rather than hit the wrong key I now use a keyboard with a keyguard on. The keyb...

FFNick

•5 years ago

4 Replies

Manchester

IS their anyone in or around Manchester who would like to share their problems? I have CA and would like to meet or talk on e-mail , anyone with similar...

IS their anyone in or around Manchester who would like to share their problems? ...

sefsha

•5 years ago

4 Replies

Multiple System Atrophy

Hi. My mum was diagnosed with a less common form of ataxia about 5 years ago. She’s degenerated very quickly and a new consultant is suggesting a diagnosis...

Hi. My mum was diagnosed with a less common form of ataxia about 5 years ago. ...

monsterbadger

•5 years ago

5 Replies

Mobility cars

My sister and I now have our mobility cars - I love it, it was so easy to do... they were however ordered 13 Feb. Just hope I can still drive for the 3 years...

My sister and I now have our mobility cars - I love it, it was so easy to do... ...

Staggy1

•5 years ago

6 Replies

Swallowing pills

My daughter has trouble swallowing pills. Between her gag reflex and her choking on water sometimes it makes it very difficult. Any suggestions?

My daughter has trouble swallowing pills. Between her gag reflex and her choking...

Mkite

•5 years ago

21 Replies

SCA6 and Newcastle

I hear Newcastle is a SCA6 hotspot. Can anyone confirm this please?

FixSCA6

•5 years ago

4 Replies

I’m new.

Looking forward to sharing tips and helpful advice.

Plain

•5 years ago

13 Replies

My breathing is not good

I am having a bad week. It’s my breathing, when I am setting I am ok unless I am talking then I have to take deeper breaths. When standing and moving about...

I am having a bad week. It’s my breathing, when I am setting I am ok unless I ...

KiwiBob

•5 years ago

2 Replies

Modafinal and fatigue

Anyone tried this drug for their fatigue and has it helped?

PeteW

•5 years ago

1 Reply

Have you been accused of being drunk due to your ataxia?

Hi all, It's me again - but with a different sort of request this time! Just wondered if anyone has been in a situation where someone has accused you of being...

Hi all, It's me again - but with a different sort of request this time! Just wo...

Hidden

•5 years ago

33 Replies

Third time lucky with PIP,,,,, but a question

I have just been awarded PIP at the standard rate. What does this mean as far as Motability is concerned? Its just we were waiting to see if I could get a car...

I have just been awarded PIP at the standard rate. What does this mean as far as...

peterallison

•5 years ago

10 Replies

Do Compression Socks Work?

Hi -- Has anyone tried compression socks of any height and compression? I was wondering if they help with neuropathy or circulation or muscle/tendon......

Hi -- Has anyone tried compression socks of any height and compression? I was ...

ninotchka

•5 years ago

4 Replies

Appetite

Has anyone found that they have lost their appetite, and lost weight, after an Ataxia diagnosis? Has anyone tried a gluten free diet? I live in North...

Has anyone found that they have lost their appetite, and lost weight, after an A...

peakerhome

•5 years ago

15 Replies

Holiday for 2020?

What, in your opinions are the best places to go to for quality (4 star and above) and are flat, for obvious reasons. We have just come back from a very nice...

What, in your opinions are the best places to go to for quality (4 star and abov...

peterallison

•5 years ago

22 Replies

Monthly period

Hi all. Hope all is well. I just wanted to ask does anyone's symptoms get worse when on their period? Mine do.

Hi all. Hope all is well. I just wanted to ask does anyone's symptoms get worse...

Voice1

•5 years ago

5 Replies

Helping my mum cope

Hi, My name is Pippa and am living in France whilst my mum is based in Sydney Australia. She was diagnosed with cerebellar ataxia 18 months ago and her...

Hi, My name is Pippa and am living in France whilst my mum is based in Sydney Au...

Hidden

•5 years ago

6 Replies

Search posts

Latest poll

See all polls

How long have you or your relative/friend been diagnosed with ataxia?

Vote

Topics

All posts(503)

All things Ataxia UK(464)

Research projects(38)

Our publications(1)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for June 2019

Dyshsia

Speech exercises

Glare

very important - Amino acids list and functions

Amino acids and creatine

Ataxia

New to Friedreich's Ataxia

Does anyone take creatine monohydrate?

Exercise

Beating back my first bad symptom. Thiamin?

Things are looking up

UK available keyboard for ataxia

Anti-Purkinge

Blue badge refused

Keyguard on keyboard

Manchester

Multiple System Atrophy

Mobility cars

Swallowing pills

SCA6 and Newcastle

I’m new.

My breathing is not good

Modafinal and fatigue

Have you been accused of being drunk due to your ataxia?

Third time lucky with PIP,,,,, but a question

Do Compression Socks Work?

Appetite

Holiday for 2020?

Monthly period

Helping my mum cope

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive