Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,028 members • 4,569 posts

All posts for July 2015

Ataxia

I have just been for my annual appointment at the Queen Elizabeth Hospital in Birmingham. I was disgusted because in the waiting room there were pamphlets to...

I have just been for my annual appointment at the Queen Elizabeth Hospital in Bi...

Jenny789

•9 years ago

16 Replies

friedricks ataxia

my son 12 ,has just been diagnosed with friedricks ataxia ,i am in shock and I am wondering does anyone have any information on any research being done

my son 12 ,has just been diagnosed with friedricks ataxia ,i am in shock and I a...

simon111

•9 years ago

21 Replies

hawthorn - is it as good as claimed

Hawthorn contains powerful antioxidants to protect the linings of blood vessel walls against the damaging effects of free radicals.

Hawthorn contains powerful antioxidants to protect the linings of blood vessel ...

scruffycat

•9 years ago

2 Replies

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Ataxia UK survey

Ataxia UK are looking to enhance their services in the coming year, however we do need to gather some statistical evidence to support this in order to access...

Ataxia UK are looking to enhance their services in the coming year, however we d...

HarryB

Administrator•9 years ago

8 Replies

Ataxia/ chiari malformation

In may of 2014, I had a cervical radio-frequency done. Soon after the procedure, I was not able to walk. I had a seizure and I went down hill from there....

In may of 2014, I had a cervical radio-frequency done. Soon after the procedure...

Mother25

•9 years ago

4 Replies

Brain Based Therapy?

hAS ANYONE USED BRAIN BASED THERAPY???????????/

foffee

•9 years ago

1 Reply

Ataxia, 1940

I do 1940s living history events with Northamptonshire Home Guard. This year,I cannot drill, march or talk to the visiting public .Very frustrating. I have...

I do 1940s living history events with Northamptonshire Home Guard. This year,I c...

nettles1

•9 years ago

3 Replies

I was diagnosed with Ataxia 5 years ago, it took them 11 years to diagnose.

I was diagnosed with Ataxia 5 years ago, it took them 11 years to diagnose me but they still havent establised exactly which strain of Ataxia I have I would...

I was diagnosed with Ataxia 5 years ago, it took them 11 years to diagnose me bu...

Loza1976

•9 years ago

8 Replies

EYES

I have read a lots of postings , and have noted that some of them mention trouble with eyes/sight . I have been having trouble with my eyesight ,my near sight...

I have read a lots of postings , and have noted that some of them mention troubl...

maber

•9 years ago

8 Replies

Advice please re rollator/walkers

Hi, My walking & balance using just a stick isn't as good as I would like due to my ataxia getting slowly worse so I have been thinking about getting a walker...

Hi, My walking & balance using just a stick isn't as good as I would like due to...

glosman

•9 years ago

5 Replies

vitamin e dificancy

my ataxia dr in sheffield has said i have vitamin e dificancy and wrote to my doctor to prescribe a supplement, called my gp surgary who have said my gp i...

my ataxia dr in sheffield has said i have vitamin e dificancy and wrote to my do...

xray25

•9 years ago

4 Replies

My Ataxia was diagnosed as resulting from my early alcohol abuse. Is this fairly rare?

My Ataxia was diagnosed as resulting from my early alcohol abuse. Is this fairly...

jneilw51

•9 years ago

39 Replies

what if you cannot walk and you are told to take exercise

I have been diagnosed in the last year with progressive cerebellar ataxia/ I look at people walking past my house but I can no longer walk unaided . the DVLA...

I have been diagnosed in the last year with progressive cerebellar ataxia/ I loo...

sylviagreenhalgh

•9 years ago

18 Replies

Florence & The Machine tickets

Unfortunately we cannot go and so Ian (my husband) has given them to Ataxia UK for an auction. If you like Florence and live near Brum please bid. Thank you :...

Unfortunately we cannot go and so Ian (my husband) has given them to Ataxia UK f...

Litty

•9 years ago

3 Replies

Jenny

I too have Cerebellar Ataxia. I am 'lucky' as I have had for over twenty years and it has progressed very slowly. I am a member of Ataxia UK and have found...

I too have Cerebellar Ataxia. I am 'lucky' as I have had for over twenty years a...

Jenny789

•9 years ago

5 Replies

Fludrocortisone

I have ataxia and low blood pressure. I was prescribed fludrocortisone, which only gives me vertigo, to add to my current balance problems. Has anyone else...

I have ataxia and low blood pressure. I was prescribed fludrocortisone, which on...

nettles1

•9 years ago

3 Replies

2020 vision - cure?

Hi, I am a female and am 25 years old. Although i have not officially been diagnosed I know i have Cerebella Ataxia and have done for 3-4 years. I have...

Hi, I am a female and am 25 years old. Although i have not officially been dia...

ljp103

•9 years ago

9 Replies

Oxford is not ataxia friendly

I find that nobody here ever heard about ataxia. Also, the shops have very high steps with typically no handrail or banister. I am including the famous...

I find that nobody here ever heard about ataxia. Also, the shops have very high ...

neta

•9 years ago

6 Replies

BBC Radio Scotland, tomorrow morning at about 10.30am

Dear all You may have read a previous post about Martin Barker, a former fireman from the South of Glasgow who has ataxia and is doing a skydive to raise...

Dear all You may have read a previous post about Martin Barker, a former firema...

HarryB

Administrator•9 years ago

4 Replies

Going through testing...

Hi My dad was recently diagnosed with SCA2 at 51yrs old and he has told me that both me and my sister have a 50% chance of having this as well. Because I...

Hi My dad was recently diagnosed with SCA2 at 51yrs old and he has told me tha...

ToniM

•9 years ago

19 Replies

Ataxia Centres

I have SCA1 and have been attending the London Ataxia Centre for many years. When we are there we make an appointment for the following year. I have just...

I have SCA1 and have been attending the London Ataxia Centre for many years. Whe...

Litty

•9 years ago

16 Replies

Limited time driving licence

Has anybody had any problems renewing their drivers licence? I had re-applied for my 3 yearly drivers licence over a month ago and have only received a letter...

Has anybody had any problems renewing their drivers licence? I had re-applied fo...

Hidden

•9 years ago

11 Replies

Ataxia or bppv

Hi all. I'm new to this forum but wanted to partisipate. Please tolerate my spelling' my spell checker is broken. I have dizzyness and vertigo all the time. It...

Hi all. I'm new to this forum but wanted to partisipate. Please tolerate my spel...

xwino

•9 years ago

6 Replies

Renewal of Blue Badge

Having filled in the form to renew my badge which runs out mid-August I have had a letter from my local council in regard to it and I have to go for a mobility...

Having filled in the form to renew my badge which runs out mid-August I have had...

Tiggywinkles

•9 years ago

22 Replies

Vitamin D

lots of people take vitamin D supplements. It is difficult to know if the amount you're taking is little more than a guess. What is "typical" amount, and how...

lots of people take vitamin D supplements. It is difficult to know if the amount...

scruffycat

•9 years ago

2 Replies

Tedjohnson

My ataxia is making my walk very difficult and I may not be far from using a wheel chair. Can anyone advise me how they get on round their house. ( I...

My ataxia is making my walk very difficult and I may not be far from using a whe...

tedjohnson

•9 years ago

7 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for July 2015

Ataxia

friedricks ataxia

hawthorn - is it as good as claimed

Ataxia UK survey

Ataxia/ chiari malformation

Brain Based Therapy?

Ataxia, 1940

I was diagnosed with Ataxia 5 years ago, it took them 11 years to diagnose.

EYES

Advice please re rollator/walkers

vitamin e dificancy

My Ataxia was diagnosed as resulting from my early alcohol abuse. Is this fairly rare?

what if you cannot walk and you are told to take exercise

Florence & The Machine tickets

Jenny

Fludrocortisone

2020 vision - cure?

Oxford is not ataxia friendly

BBC Radio Scotland, tomorrow morning at about 10.30am

Going through testing...

Ataxia Centres

Limited time driving licence

Ataxia or bppv

Renewal of Blue Badge

Vitamin D

Tedjohnson

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive