Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for September 2013

Saved, by an Ataxia wristband

But, not in the way that you would think! Anybody whose been reading my comments lately will know I'm looking after my daughter's kitten. He'd just invaded...

But, not in the way that you would think! Anybody whose been reading my comment...

•11 years ago

Satisfactory Day

Another day gone, but a satisfactory one - of sorts. I managed to get through most of my exercises without the usual encouragement of the physio`s. It is...

Another day gone, but a satisfactory one - of sorts. I managed to get through mo...

•11 years ago

I thought I had a few weeks left

Physio` arrived today - as you know one has stoped coming and one has arranged a monthly visit (I think) - and we started using the new zimmer and the new...

Physio` arrived today - as you know one has stoped coming and one has arranged a...

•11 years ago

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diamox

hi all, just to say i restarted the diamox at a very reduced dose of 62.5 mg once a day and am now on day 5 and feel great, no headache, no dizziness, no...

hi all, just to say i restarted the diamox at a very reduced dose of 62.5 mg onc...

•11 years ago

Have a nice day

Have a nice day

Have a nice day

•11 years ago

And I Thought I Had Problems

The motorist in Jiangsu Province, eastern China, was driving next to a lorry which was transporting the large shipping style container, and she...

The motorist in Jiangsu Province, eastern China, was driving next to a lorry whi...

•11 years ago

Does anyone use ankle supports?

I have been finding recently that my ankles are giving me more problems. They give way (go weak) suddenly, even when walking normally (ie. Not turning, or...

I have been finding recently that my ankles are giving me more problems. They g...

•11 years ago

Very bored

Although i have Ataxia for many years i was still able to get about outside and keep busy by attending things like college courses. Sadly over the last couple...

Although i have Ataxia for many years i was still able to get about outside and ...

•11 years ago

Welcome to all you lovely people who have just joined us!

I'd like to offer encouragement to to all of you to start your posts and questions. Nothing is too trivial! Rest assured someone is bound to have encountered...

I'd like to offer encouragement to to all of you to start your posts and questio...

•11 years ago

Very Bored

Although i have Ataxia for many years i was still able to get about outside and keep busy by attending things like college courses. Sadly over the last couple...

Although i have Ataxia for many years i was still able to get about outside and ...

•11 years ago

What should people suffering from SCA do as to fall prevention ?

the more SCA is dominating my life the more do I think about fall pevention ( no thresholds; indoor- & outdoor rollator; cordless phones; WiFi for nootbook &...

the more SCA is dominating my life the more do I think about fall pevention ( no...

•11 years ago

AtaxiaUk Manchester Conference

Only 2wks to go now, I can't believe it's almost here! Really looking forward to it! xB

Only 2wks to go now, I can't believe it's almost here! Really looking forward to...

•11 years ago

Any hobbies or pastime recommendations please.

My father was diagnosed with SCA6 about 4 years ago. He is already very unsteady on his legs and has extremely shaky hands. His speech is also affected. He has...

My father was diagnosed with SCA6 about 4 years ago. He is already very unsteady...

•11 years ago

Update from Neurological Alliance. Report Launch-Navigating neurology services: helping strategic clinical networks to be a success story.

Helping neurology networks to be a success The Neurological Alliance has today launched a new report [http://bit.ly/16xvdyy] which sets out our recommended...

Helping neurology networks to be a success The Neurological Alliance has today...

Administrator•11 years ago

Excellent blog on National Voices website re Personal Independence Payments

National Voices is the umbrella charity representing patients' interests. This link is to an excellent piece on the impact of the new PIP assessments, which...

National Voices is the umbrella charity representing patients' interests. This l...

Partner•11 years ago

Keep Going

Physio` was here again today. Could not do much today unfortunatiey as I was having a `leave me alone day` with cluster headache attack. So (I found out...

Physio` was here again today. Could not do much today unfortunatiey as I was ha...

•11 years ago

Still not receiving emails from HealthUnlocked

I have to log on to the site regularly to keep up to date. xB

I have to log on to the site regularly to keep up to date. xB

•11 years ago

Living with a disability...

I have just come across this and found it very interesting with lots of good advice....

I have just come across this and found it very interesting with lots of good adv...

Administrator•11 years ago

If anyone has tried the American Balance Wear Vest would you please write to me about your results ?

•11 years ago

As a person living with ataxia, what three improvements to your care would make a positive difference to your quality of life?

Ataxia UK is a member of an organisation called National Voices, a national coalition of health and social care charities in England. All the charities work...

Ataxia UK is a member of an organisation called National Voices, a national coal...

Administrator•11 years ago

Beach Wheelchair Race

I was wondering if anybody took part in this yesterday. It was called the Longsands Beach Challenge, and held at Tynemouth, Tyne & Wear. I was actually...

I was wondering if anybody took part in this yesterday. It was called the Longs...

•11 years ago

At peace with myself

Just thought I`d share this. I have a large picture of this framed and hanging in my bedroom and it justmakes me so relaxed and at one with myself when I look...

Just thought I`d share this. I have a large picture of this framed and hanging i...

•11 years ago

anybody here living in ireland and suffering with episodic ataxia. i have just been diagnosed with episodic ataxia 2

would love to hear from somebody living in ireland who could advise me on what help/treatment is available here

would love to hear from somebody living in ireland who could advise me on what h...

•11 years ago

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