Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for March 2023

Quit support

I belong to Ataxia U.K. I do not need Quit Support,fortunately I have never smoked. Living with Ataxia is enough to cope with so I’m glad I do not have to...

I belong to Ataxia U.K. I do not need Quit Support,fortunately I have never smok...

•1 year ago

SCA27b

The gene responsible for a newly classified type of Ataxia, SCA27b, was recently discovered. A family that is affected by this type of Ataxia will share their...

The gene responsible for a newly classified type of Ataxia, SCA27b, was recently...

•1 year ago

PPPD…a Vestibular issue

🙂 Not all of us cope with Vestibular issues in addition to Cerebellar Ataxia ..it’s like a triple whammy if eyes and ears are out of sync with the......

🙂 Not all of us cope with Vestibular issues in addition to Cerebellar Ataxia .....

•1 year ago

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Sheffield neuro visit

Hello friends, a quick update on my visit to Sheffield ataxia center on Thursday. Let’s say I wasn’t expecting what happened the appointment lasted nearly 3...

Hello friends, a quick update on my visit to Sheffield ataxia center on Thursd...

•1 year ago

Wow we're finally mentioned on TV

They have just had someone on sky news with ataxia to highlight the plight social care in the UK. We ataxians are so often forgotten and never mentioned xx

They have just had someone on sky news with ataxia to highlight the plight socia...

ww-wibblywobbly

•1 year ago

Headaches following MRI spectroscopy?

Wondering if anyone else has had headaches following a MRI spectroscopy carried out at Sheffield?3 headaches in 8 days which is very unusual for me. I used to...

Wondering if anyone else has had headaches following a MRI spectroscopy carried ...

•1 year ago

Avoiding falls

I know it’s blindingly obvious but I have to remind myself nearly every day to only carry things in one hand and leave the other one to be able to grab on to...

I know it’s blindingly obvious but I have to remind myself nearly every day to o...

•1 year ago

Neur appointment

Hello friends I have got my first appointment at Sheffield ataxia center on Thursday I’m not sure what to expect from it I think I’m hoping for a miracle but...

Hello friends I have got my first appointment at Sheffield ataxia center on Th...

•1 year ago

Vertigo

I have had episodes of vertigo for the last 12 years now. But they weren't very often. Recently they have increased in occurrence. They seem to happen when...

I have had episodes of vertigo for the last 12 years now. But they weren't very...

ww-wibblywobbly

•1 year ago

Lack of excitement over the Reata Pharmaceuticals' Omaveloxolone news

I know most of us can't take it and it's only in the US right now but I think this is a serious step in the right direction. It's great news for us all.

I know most of us can't take it and it's only in the US right now but I think th...

•1 year ago

Pelvic floor exercises to help cope with urgency issues

Many of us cope with urgency, sometimes both bladder and bowels. It can be worth considering Pelvic Floor Exercises..this applies to both men and women....

Many of us cope with urgency, sometimes both bladder and bowels. It can be wort...

•1 year ago

new walker

my neuroglogist recommended a more solid walker, he wrote me a prescription , so that Medicare and/or my insurance, Humana, would reimburse me, which...

my neuroglogist recommended a more solid walker, he wrote me a prescripti...

•1 year ago

Deteriorating acquired ataxia

Hello,I have had acquired ataxia since 2014 which has been stable until now. I am now finding increased tremors in my hands and a very poor balance/gait...

Hello,I have had acquired ataxia since 2014 which has been stable until now. I a...

•1 year ago

Speech therapy

Does any one with Ataxia see a speech therapy I have had Ataxia for 3 years my speech is slurred and some words I struggle to get out so I asked to see a...

Does any one with Ataxia see a speech therapy I have had Ataxia for 3 years my s...

•1 year ago

FDA has approved Reata Pharmaceuticals' Omaveloxolone for the treatment of adults with Friedreich’s ataxia (FA) in the US

We are delighted that the FDA has approved Reata Pharmaceuticals' Omaveloxolone for the treatment of adults with Friedreich’s ataxia (FA) in the US. This is a...

We are delighted that the FDA has approved Reata Pharmaceuticals' Omaveloxolone ...

•1 year ago

Friedreichs Ataxia

We are delighted that the U.S. Food and Drug Administration has approved Reata Pharmaceuticals, Inc. Omaveloxolone for the treatment of adults with...

We are delighted that the U.S. Food and Drug Administration has approved Reata P...

•1 year ago

Speech Theraphy

hello can anybody recommend a good online speech therapist. must be online as I am currently residing in the philippines.

hello can anybody recommend a good online speech therapist. must be online as I...

•1 year ago

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