Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,037 members • 4,576 posts

All posts for March 2013

i think i have episodic ataxia

i think i have episodic ataxia. i can not walk much and i start thinking i was going mad. now its about the doctors to do something. i have been bad for years...

i think i have episodic ataxia. i can not walk much and i start thinking i was g...

daz01279

•11 years ago

14 Replies

Disability Benefits Centre - Rant coming up -

I telephoned the Disability Benefits Centre this afternoon to change my address as I am moving home in the middle of next week - one of numerous calls needed....

I telephoned the Disability Benefits Centre this afternoon to change my address ...

Wyndham

•11 years ago

6 Replies

Funny ataxia anecdotes....

Living with ataxia is hard work and can be very frustrating. I have found one of the best tonics is being able to have a good laugh at myself! Here are a...

Living with ataxia is hard work and can be very frustrating. I have found one o...

HarryB

Administrator•11 years ago

10 Replies

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Hereditary ataxia?

Could anyone give me any advice or information about hereditary ataxia? I'm 18 an just been told I need tested for it as 8 people in my family has it and my...

Could anyone give me any advice or information about hereditary ataxia? I'm 18 a...

B-cow3

•11 years ago

7 Replies

Dinners with friends and family

Sitting at the dinner-table with others is getting very difficult for me. I choke very easily which is embarrassing in company, I can’t use a knife and fork...

Sitting at the dinner-table with others is getting very difficult for me. I chok...

klazien

•11 years ago

13 Replies

membership of Ataxia Uk. I live in France and would like to become a member of Ataxia UK.

However when I fill in the details I have no UK postcode. Can I become a member?

However when I fill in the details I have no UK postcode. Can I become a member...

wibblywobbly

•11 years ago

10 Replies

Re: today's news item about overweight passengers on flights.

I was incensed when I listened to the news this morning, being reminded of an unpleasant 8hr flight when I felt literally squashed by the person sitting in...

I was incensed when I listened to the news this morning, being reminded of an u...

wobblybee

•11 years ago

2 Replies

new to this site.

I have used the fibromyalgia site for a long time. Poor balance can be a sign of fibro, but my balance has got progressively worse and my GP sent me to see a...

I have used the fibromyalgia site for a long time. Poor balance can be a sign of...

siver52

•11 years ago

9 Replies

is it any use for "SCA-people" to be insured against accidents ?

it says in "Wki": ******************* An accident or mishap is an unforeseen and unplanned event or circumstance, often with lack of intention or necessity....

it says in "Wki": ******************* An accident or mishap is an unforeseen a...

jurgen

•11 years ago

5 Replies

Brain Fog anyone?

I have symptoms not necessarily caused by Cerebeller Ataxia, and follow other Healthunlocked sites purely out of interest. Today I read about accounts of...

I have symptoms not necessarily caused by Cerebeller Ataxia, and follow other H...

wobblybee

•11 years ago

3 Replies

at last!!!! a comfy low wedge thats stylish

after years of wearing flat shoes, i have found the ideal shoe/sandles that both comfy and stylish, so i'd thought i'd share my find " lotus trino cross...

after years of wearing flat shoes, i have found the ideal shoe/sandles that both...

twinkle2508

•11 years ago

10 Replies

friends survey

Has anyone else had problems with doing this is there a secret to it I can't even find the survey the address on the survey just takes you to the site but...

Has anyone else had problems with doing this is there a secret to it I can't ev...

Hidden

•11 years ago

9 Replies

Hi I never been told what ataxia I have My balance is bad, speech OK but my sight is getting delayed- Slow to focus when I move my eyes

I have been told no use going through tests as there is no cure or treatment I accept this advise but am worried about a muzzy head and slight delay in...

I have been told no use going through tests as there is no cure or treatment I ...

tedjohnson

•11 years ago

21 Replies

Hi all! Not sure how this is done?? (First time user) Does anyone have experience with Amitriptyline? Have been recommended it. Unsure.

Dizzytart

•11 years ago

7 Replies

who's going to the regional conference?

who's going to the regional conference in june at basingstoke?

nikkistowe

Volunteer•11 years ago

17 Replies

Is the vest created by the USA company called Balance Wear useful? How does one get ii? Cost? Neta

neta

•11 years ago

16 Replies

Has anybody had to explain their illness to a child, and if so what/how did you say?

I have a 6yr old child who knows that mummy gets tired and has to rest a lot. She knows that I get dizzy and can't carry drinks and thinks my stick is cool (...

I have a 6yr old child who knows that mummy gets tired and has to rest a lot. Sh...

jonbon

•11 years ago

7 Replies

Medical Retirement

Hi, my name is Dinesh and I am a 47 year old male, married with 3 children; aged 22, 17 and 14. I inherited the disorder from mum and although I knew I had...

Hi, my name is Dinesh and I am a 47 year old male, married with 3 children; aged...

din55a

•11 years ago

6 Replies

I read in the New York Times yesterday that $5 billion goes into cancer research annually. $1 billion into AIDS. And ataxia?? Neta

neta

•11 years ago

22 Replies

Genetic results

I am due to go back to London to hopefully get my test results. I am very nervous about the findings, I want to know for the future of my daughter & myself but...

I am due to go back to London to hopefully get my test results. I am very nervou...

wendygirl

•11 years ago

11 Replies

Anyone had or heard about botox injections into muscles

Hi, I saw a different specialist on Weds who suggested trying botox injections into muscles in my arms and legs to relieve contractions and spasms. Has anyone...

Hi, I saw a different specialist on Weds who suggested trying botox injections i...

wibblywobbly

•11 years ago

23 Replies

Should I try to find specific type of my ataxia or just live with it?

I was diagnosed in Oct 2012 with idiopathic CA. at the age of 45. My neurologist does not think it's worth finding out if it is a specific type or if it is...

I was diagnosed in Oct 2012 with idiopathic CA. at the age of 45. My neurologist...

jonbon

•11 years ago

22 Replies

For those who have been to an Ataxia UK conference before, be it annual or regional, what did you most enjoy/find useful about it and why?

HarryB

Administrator•11 years ago

6 Replies

Occlusal contact lenses

I have double vision in my left eye and need a very high grade prism in my glasses to correct this. For a while now I've been convinced that this has aided...

I have double vision in my left eye and need a very high grade prism in my glass...

wobblybee

•11 years ago

7 Replies

medical model of disability v social model of disability?

hi im doing a course and its asked me to explain the pro's and con's of the medical model and social model of disability? and its asked me which 1 i'd prefer...

hi im doing a course and its asked me to explain the pro's and con's of the medi...

nikkistowe

Volunteer•11 years ago

8 Replies

old age

I had such plans for an active old age but that has all changed. It is true that this ataxia is worse for young people with their whole life ahead of them but...

I had such plans for an active old age but that has all changed. It is true that...

klazien

•11 years ago

19 Replies

Is it possible to have a remission?

My son seems to have that with Ankylosis spondolisis.For several years now he has not taken any medication and has not had not had any pain either. The damage...

My son seems to have that with Ankylosis spondolisis.For several years now he ha...

klazien

•11 years ago

7 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for March 2013

i think i have episodic ataxia

Disability Benefits Centre - Rant coming up -

Funny ataxia anecdotes....

Hereditary ataxia?

Dinners with friends and family

membership of Ataxia Uk. I live in France and would like to become a member of Ataxia UK.

Re: today's news item about overweight passengers on flights.

new to this site.

is it any use for "SCA-people" to be insured against accidents ?

Brain Fog anyone?

at last!!!! a comfy low wedge thats stylish

friends survey

Hi I never been told what ataxia I have My balance is bad, speech OK but my sight is getting delayed- Slow to focus when I move my eyes

Hi all! Not sure how this is done?? (First time user) Does anyone have experience with Amitriptyline? Have been recommended it. Unsure.

who's going to the regional conference?

Is the vest created by the USA company called Balance Wear useful? How does one get ii? Cost? Neta

Has anybody had to explain their illness to a child, and if so what/how did you say?

Medical Retirement

I read in the New York Times yesterday that $5 billion goes into cancer research annually. $1 billion into AIDS. And ataxia?? Neta

Genetic results

Anyone had or heard about botox injections into muscles

Should I try to find specific type of my ataxia or just live with it?

For those who have been to an Ataxia UK conference before, be it annual or regional, what did you most enjoy/find useful about it and why?

Occlusal contact lenses

medical model of disability v social model of disability?

old age

Is it possible to have a remission?

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive