Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,032 members • 4,571 posts

All posts for October 2015

Appointment date!

After being referred to the genetics team in June I have finally been given a date for my first appt with them at Seacroft in Leeds, I'm terrified of what they...

After being referred to the genetics team in June I have finally been given a da...

ToniM

•8 years ago

16 Replies

Balancewear

I have read lots about the balancewear vests and it sounds as if they might be available in Denmark now. Has anybody heard anything or would it still mean a...

I have read lots about the balancewear vests and it sounds as if they might be a...

Brommie

•8 years ago

7 Replies

Beta blockers

My neurologist has suggested Beta blockers may help my body tremor. Has anyone else tried this? I have quite a severe tremor.

My neurologist has suggested Beta blockers may help my body tremor. Has anyone ...

winch

•9 years ago

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Are there ways to stay active, productive and socially involved as Ataxia symptoms gradually get worse?

About fifteen years ago, I was an active person selling various insurance and investment products. Then, I started noticing balance problems. At first, I...

About fifteen years ago, I was an active person selling various insurance and in...

jneilw51

•9 years ago

3 Replies

U-Step II

My physio has recommended a walking frame, the U-Step II. At £500, is it any good? I am 6'4'' tall.

My physio has recommended a walking frame, the U-Step II. At £500, is it any goo...

nettles1

•9 years ago

1 Reply

Powered chair advice wanted! Please!

Hi All, I have been using this site for a couple of years but haven't asked a question for ages. I wondered if any one has experience with a lightweight...

Hi All, I have been using this site for a couple of years but haven't asked a q...

jonbon

•9 years ago

10 Replies

Amitriptyline and weight gain.

I've seen many people mention amitriptyline. Does anyone find that they have put on a lot more weight since starting to use? The reason I ask: I haven't been...

I've seen many people mention amitriptyline. Does anyone find that they have put...

Iain_100

•9 years ago

12 Replies

What ever happened to Living With Ataxia?

Perhaps it's my imagination, but I no longer get mail or anything from LWA. What does this mean? I checked "spam" and "all mail". Nothing. Was I cut off or did...

Perhaps it's my imagination, but I no longer get mail or anything from LWA. What...

neta

•9 years ago

15 Replies

Is experiencing occasional periods of depression a normal reaction to having Ataxia?

I have noticed that sometimes, when I think a lot about my Ataxia a lot, I can become very depressed for varying periods of time. In reading many of the...

I have noticed that sometimes, when I think a lot about my Ataxia a lot, I can b...

jneilw51

•9 years ago

29 Replies

Cramp?

I have been diagnosed with sca2 for a few years now, along with my brother. I am 25 and he's 28. We both suffer from frequent cramping of the muscle all over...

I have been diagnosed with sca2 for a few years now, along with my brother. I am...

ljp103

•9 years ago

7 Replies

Fingers feel weak

I'm 12 year old boy and my fingers feel weak but my dad said I still have a strong grip but it's still feels weak I've been weight lifting and popping my...

I'm 12 year old boy and my fingers feel weak but my dad said I still have a stro...

Cutter

•9 years ago

7 Replies

Nausea

Hi after a great weekend I have been feeling quite sick after each meal. Is this the norm with Ataxia or is this totally unrelated and maybe I need to see the...

Hi after a great weekend I have been feeling quite sick after each meal. Is this...

Vion

•9 years ago

4 Replies

PIP assessment Ilford

Hi I am new to this forum. I have to attend a PIP assessment at Physioworld Ilford. Has anyone from this forum been there for an assessment and if so what was...

Hi I am new to this forum. I have to attend a PIP assessment at Physioworld Ilfo...

cymruralf

•9 years ago

18 Replies

Using a rollator

Hi, I use a stick for stability and have not, as yet, felt the need to buy a rollator. However, I was wondering whether any of you who do use rollators have...

Hi, I use a stick for stability and have not, as yet, felt the need to buy a ro...

margaretm

•9 years ago

7 Replies

Should we ask for a referral to the ataxia centre

No one has ever told us about the ataxia centres, my husband sees a neurologist annually only to monitor him. Should we be asking for a referral to the ataxia...

No one has ever told us about the ataxia centres, my husband sees a neurologist ...

Theresa65

•9 years ago

5 Replies

Hi, I'm new to this site.

My husband had a stroke in 2013, he made what seemed a good recovery at first but then exhibited symptoms that were not true for someone who had a stroke....

My husband had a stroke in 2013, he made what seemed a good recovery at first bu...

Theresa65

•9 years ago

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Cerebellum ataxia support groups?

Hi I am the partner of a cerebellum ataxia sufferer, does anyone know of any local support groups? My partner really needs to talk to other sufferers, he's...

Hi I am the partner of a cerebellum ataxia sufferer, does anyone know of any loc...

jules51

•9 years ago

15 Replies

fundraising for ataxia

I just thought I would mention that I am holding a nearly new sale in two weeks time. Here in Hull, money raised will be sent to ataxia. I have been...

I just thought I would mention that I am holding a nearly new sale in two weeks ...

babygirl123

•9 years ago

14 Replies

Rare or not

Does anyone have an idea how many people suffer from cerebellar ataxia in the UK. Is it a rare condition or not. I am waiting for a second opinion The first is...

Does anyone have an idea how many people suffer from cerebellar ataxia in the UK...

Pec2884

•9 years ago

4 Replies

Few good days

Hey all, I wanted to share I have had a few good days recently lots of strength and less wobble. I wonder if it's because I have been busy caring for my...

Hey all, I wanted to share I have had a few good days recently lots of strength...

Vion

•9 years ago

19 Replies

Chaz2015

Im in reading and would like to meet new friends ...

chaz2015

•9 years ago

9 Replies

Chaz2015

Hello im new to this site... I am 32 and have cerebellar ataxia

chaz2015

•9 years ago

9 Replies

Life Mortgage Insurance

I am 53 and have cerebella ataxia. Have just moved house and having rented for 8 years have just bought a house (share equity). My wife is 51and enjoys good...

I am 53 and have cerebella ataxia. Have just moved house and having rented for...

domus

•9 years ago

1 Reply

Genetics test

My gp referred me to newcastle ataxia centre but my nhs won't fund this, surely I dont have to live In england for this to be done..

My gp referred me to newcastle ataxia centre but my nhs won't fund this, surely ...

Tazmurray

•9 years ago

27 Replies

Hoarseness

Has anyone experienced hoarseness in their voice? I have had this on and off for nearly a year. I have seen a consultant who investigated my voice box but...

Has anyone experienced hoarseness in their voice? I have had this on and off fo...

winch

•9 years ago

3 Replies

WALKING IN TOWN

I went into town( crawley ) to buy a cd, I found myself really nervous of walking into people coming the other way. I think it is because I cant move sideways...

I went into town( crawley ) to buy a cd, I found myself really nervous of walkin...

poolboy

•9 years ago

8 Replies

Acupuncture.

Has anybody here tried acupuncture to combat their ataxia symptoms? I've just come across a Danish company, and they specifically mention being able to treat...

Has anybody here tried acupuncture to combat their ataxia symptoms? I've just co...

Iain_100

•9 years ago

14 Replies

Walking poles

Dear all I have an idiopathic cerebellar ataxia. I am looking to purchase some walking poles. I was thinking about Leki Nordic Walking poles but there is so...

Dear all I have an idiopathic cerebellar ataxia. I am looking to purchase some...

HarryB

Administrator•9 years ago

14 Replies

Multitasking

Struggling today as tremors and numbness in right hand giving me problems. Even typing this is a struggle. Keep going to pick up things but have to really...

Struggling today as tremors and numbness in right hand giving me problems. Even ...

Vion

•9 years ago

10 Replies

Hi everyone.

Hi everyone. I've just joined the forum, looking to make new connections and friends, seek support, learn new things and hopefully share my experiences,...

Hi everyone. I've just joined the forum, looking to make new connections and fri...

bevvick1964

•9 years ago

16 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for October 2015

Appointment date!

Balancewear

Beta blockers

Are there ways to stay active, productive and socially involved as Ataxia symptoms gradually get worse?

U-Step II

Powered chair advice wanted! Please!

Amitriptyline and weight gain.

What ever happened to Living With Ataxia?

Is experiencing occasional periods of depression a normal reaction to having Ataxia?

Cramp?

Fingers feel weak

Nausea

PIP assessment Ilford

Using a rollator

Should we ask for a referral to the ataxia centre

Hi, I'm new to this site.

Cerebellum ataxia support groups?

fundraising for ataxia

Rare or not

Few good days

Chaz2015

Chaz2015

Life Mortgage Insurance

Genetics test

Hoarseness

WALKING IN TOWN

Acupuncture.

Walking poles

Multitasking

Hi everyone.

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive