Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,021 members4,557 posts

All posts for September 2012

What next when your consultant hasn't really got a clue what's going on?

My wife's ataxia is caused by inflammation of the spinal cord. This affects her ...
mikebo profile image

Can anyone sneeze when standing (not holding on to anything) without falling over?

I find it impossible! Crash landed onto breakfast bar in kitchen last time!
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Does anyone use a pendant alarm?

HarryB profile image
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idebenone?

Does anyone take idebenone and at what dose, do they feel any improvements? I a...
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What do you think of the Ataxia UK website?

Hi, We're aiming to improve our Ataxia UK website and would like to hear your...
Helski profile image

Provision for disabled people on beaches

I came across this photograph on the Daily Telegraph, showing a French beach whi...
Wyndham profile image

Who is going to the Ataxia UK Annual Conference at the Radisson Blu Hotel in Stansted on Saturday 13th October?

HarryB profile image
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Has anyone experienced swallowing/choking incidents? Not always occuring during meals, also saliva 'going down the wrong way'.

wobblybee profile image

Join us in Birmingham for International Ataxia Awareness Day

We'll be collecting donations and distributing information in Birmingham City-Ce...
riccib profile image

20:20 Vision Video Link

Here is the link for the video for Ataxia UK's bold new campaign. http://www....
HarryB profile image
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Me

Sorry I have not contributed lately. I have been in hospital. Normal service wil...
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Vibram Fivefinger Shoes

In my series of top-tips (see below) I have a new one! Vibram Fivefingers...
Litty profile image

International Ataxia Awareness Day (IAAD)-25th September

Dear all For IAAD last year, Ataxia UK set up a webpage specifically for ...
HarryB profile image
Administrator

If someone with ataxia wants to have elective surgery with a general anaesthetic, is that possible?

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Are the organs of a person with ataxia suitable to be donated and used after death? I don’t mean for research.

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Is it okay for people with ataxia to donate blood?

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Blood tests negative - now what?

My neurologist telephoned me yesterday with the news that the Ataxia genetic blo...
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How have i got Ataxia ?

Hi all, i was diagnosed with Ataxia some 12 yrs ago now, no-body in my family ha...
littlewheels profile image

2020 VISION

2020 VISION Really impressed by the new campaign in 'The Ataxian'. ...
Litty profile image

Neuro Physiothreapists any good?

I have been having walking problems which have become worse over the last year. ...
albion profile image

Walking with Poles - my experiences of choosing and using walking poles. (Dicated using Dragon Dictate)

Edit - Pictures here: http://i.imgur.com/kOnKT.jpg Having heard how Litty ...
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Focussing and vision-short episodes of blurred vision

Anyone having problems with focussing? This has started quite recently - I can s...
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physiotherapy .medical gymnastics .physical therapy .remedial gymnasticsWhich of these do you have ?

jurgen profile image

Meniers disease

After another bout of dizziness, loud ear noise and ear stabbing pains I decided...
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There is bereavement counselling for those who grief after losing someone.

But what about those who have lost the use of their own body abilities? Or the l...
klazien profile image

Has anyone found exercises useful for Ataxia

tedjohnson profile image

Does anyone out there have diagnosis of s.c.a 17?

My husband recently been diagnosed with s.c.a 17.does any1else have it?if yes do...
Dustycat14 profile image

Are rollators bad for people´s mobility

I have the feeling that my rollator gives me the illusion that I can walk
jurgen profile image

Irish Paralympian Rider-Helen Kearney

Dear all Following on from Lit's post about Gavin Bellis I thought I would po...
HarryB profile image
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Should tags assigned to questions be optional ?

Tags are really " helpful labels that allow you to find useful posts quickly" ...
jurgen profile image