Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for July 2017

Advise

Ive just been told I have some sort of ataxia got to go to Sheffield to find out what sort my wife has stopped me riding my motorbike I feel lost I love my...

Ive just been told I have some sort of ataxia got to go to Sheffield to find out...

•7 years ago

Morgan's mum

Morgan has AOA1 and is 11. Anyone have experience of this strand of ataxia?

Morgan has AOA1 and is 11. Anyone have experience of this strand of ataxia?

Lemondavies2015

•7 years ago

Electric wheel chair

I am considering buying an electric wheel chair to use in the house ( bungalow) and I would be interested to hear which models fellow Ataxians have Proved...

I am considering buying an electric wheel chair to use in the house ( bungalow) ...

•7 years ago

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Breakfast

Just taken over 2 hours to find the energy to get breakfast just museli, fruit and yogurt - no preparation, and feel worn out having to put spoon to mouth - do...

Just taken over 2 hours to find the energy to get breakfast just museli, fruit a...

•7 years ago

Shoes that prevent falling

https://www.youtube.com/watch?v=UTGuT9qpIPM. Shoes that prevent you from falling! Attachments area Preview YouTube video These shoes will keep you from...

https://www.youtube.com/watch?v=UTGuT9qpIPM. Shoes that prevent you from falling...

•7 years ago

I'm new here...

My name is Trisha. I am 46. I was diagnosed in 2014 with spino cerebellar ataxia (inherited).

My name is Trisha. I am 46. I was diagnosed in 2014 with spino cerebellar atax...

•7 years ago

Double Vision

Hi Stu. I am 46 and have had double vision with my Ataxia for over 10 years. I have gone past the amount of prism that could be put into my glasses and my...

Hi Stu. I am 46 and have had double vision with my Ataxia for over 10 years. I...

•7 years ago

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Sleep and Memory

Hi All, Stu Again. Does anyone find their Ataxia effects sleep or memory. I am tired all the time and go to sleep during the day as I am too tired to...

Hi All, Stu Again. Does anyone find their Ataxia effects sleep or memory. I am t...

•7 years ago

Ataxia and eyesight

Hi All, I am Stu (51 yrs). I was diagnosed with Ataxia some 6 months ago and have a lot of the usual symptoms: balance problems, dizziness, coordination...

Hi All, I am Stu (51 yrs). I was diagnosed with Ataxia some 6 months ago and hav...

•7 years ago

House extension

I live with my wife in an oldish house (circa 1920 build) and neither of us wish to leave it. There are four bedrooms, so there's plenty of room for our grown...

I live with my wife in an oldish house (circa 1920 build) and neither of us wish...

•7 years ago

Assessment and still waiting..............................

Six weeks ago I finally got my home health assessment; this is after fighting for it for nearly two years. Does anyone know how much longer I should wait? I...

Six weeks ago I finally got my home health assessment; this is after fighting fo...

•7 years ago

Vitamin D and balance shoes

First of all that you to all who reply to my various posts. I finally got a four wheel outside walker from NHS. I am trying to get used to it. I am just...

First of all that you to all who reply to my various posts. I finally got a four...

•7 years ago

Tailored online support: Ataxia UK Facebook groups

Hi there everyone, This is Steph from Ataxia UK. Ataxia UK have a few closed Facebook support groups which might be useful for people in specific...

Hi there everyone, This is Steph from Ataxia UK. Ataxia UK have a few closed Fa...

•7 years ago

newly diagnosed

Hi, I have just been diagnosed with cerebellar syndrome and ataxia. I have nerve damage in my feet and lower legs and am constantly dizzy. It all started about...

Hi, I have just been diagnosed with cerebellar syndrome and ataxia. I have nerve...

•7 years ago

2 year old has ataxia?

Hi , I am new here and don't normally write posts on these kind of things. I have a 2year old boy who can't Walk, his specialist said she thinks it is ataxia....

Hi , I am new here and don't normally write posts on these kind of things. I hav...

•7 years ago

Newly diagnosed

Hello I am posting on behalf of my brother who after many tests was diagnosed as having Cerebral Ataxia. He has all the symptoms balance, vision and speech....

Hello I am posting on behalf of my brother who after many tests was diagnosed a...

•7 years ago

Newly diagnosed

Hello I am writing in on behalf of my brother. After many tests he's been given a diagnosis of Cerebral Ataxia. He can't work but has apply for ESA who deemed...

Hello I am writing in on behalf of my brother. After many tests he's been given ...

•7 years ago

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Stroke surviver

I got a stroke on June 22 2017 I'm 44 years old , I can move my fingers to a grip but can open only a little does it take long to be able to fully extend them...

I got a stroke on June 22 2017 I'm 44 years old , I can move my fingers to a gri...

Martinneville1973

•7 years ago

Confused??

2 days ago sammie62king Hi I have been reading on here about people having to wait sometimes years to get a proper diagnosis for Ataxia. My friend's problem...

2 days ago sammie62king Hi I have been reading on here about people having to...

•7 years ago

Any news on stem cell therapy and ataxia or MSA?

Hi there, Anything new going on in the world of ataxia and stem cell research? All the posts I read here were 5 years old and the links were unresponsive. It...

Hi there, Anything new going on in the world of ataxia and stem cell research? A...

•7 years ago

Vitamins good or bad?

Hi my husband takes vitamin d but what about c and e anyone found these help? He doesn't like taking pills so only interested if any real benefit thanks

Hi my husband takes vitamin d but what about c and e anyone found these help? He...

•7 years ago

struggling to get up stairs

Hi, I need some advice! I really need to get a stair lift, I am walking slowly with a rollar in the house but, really struggling to get up and down the stairs....

Hi, I need some advice! I really need to get a stair lift, I am walking slowly w...

•8 years ago

Symptoms and problems

Thank you all for replying to my earlier post. I found it re-assuring to find a lot of the symptoms are experienced by others, so it isn't just me. I'm a firm...

Thank you all for replying to my earlier post. I found it re-assuring to find a ...

•8 years ago

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Physical or neurological?

Hi, I'm new to this site and to posting in general so forgive me if I get things wrong. I have suffered from bouts of vertigo for many years. Just over a year...

Hi, I'm new to this site and to posting in general so forgive me if I get things...

•8 years ago

working or not, as the case maybe

Hi everyone thanks for all the info you have given, in relation to Ataxia, its made me look into certain things, and got the "ball rolling" on things like...

Hi everyone thanks for all the info you have given, in relation to Ataxia, its m...

•8 years ago

Registered disabled

Hi all, I know this will sound a bit random, but can anyone advise on the process of being registered disabled ? I am just trying to prepare for any possible...

Hi all, I know this will sound a bit random, but can anyone advise on the proces...

•8 years ago

64 with Friedreich's Ataxia

Hi My husband has Friedreich's Ataxia and due to the increasing severity of his condition he moved into a nursing home four years ago. He is hugely...

Hi My husband has Friedreich's Ataxia and due to the increasing severity of his...

•8 years ago

medicine stopped working

drug stopped working after seeing my neurologist last week he prescribed desmopressin spray to stop me waking every 2/3 hours at night to pass water. First...

drug stopped working after seeing my neurologist last week he prescribed desmopr...

•8 years ago

Explaining ataxia

Hello everyone, I'm trying to put together some useful materials for newly diagnosed individuals with ataxia. We understand that it can be difficult to find...

Hello everyone, I'm trying to put together some useful materials for newly diag...

•8 years ago

Sleep

Hi my partner has had his SCA for approx 4 years now. Is it normal to be extrembly tired even with having a good night sleep of anything between 8-12 hours a...

Hi my partner has had his SCA for approx 4 years now. Is it normal to be extremb...

•8 years ago

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