Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,084 members•4,658 posts

All posts for December 2019

HAPPY NEW YEAR EVERYONE XXX

Happy New Year xxx

Happy New Year xxx

•5 years ago

Happy New Year Everyone! I cannot wait to see what 2020 brings 😀

Wow how do I sum up this year; it has definitely been my best year to date. Dreams have come true and I still cannot believe that I am ending the year as a...

Wow how do I sum up this year; it has definitely been my best year to date. Drea...

•5 years ago

Ataxia left leg problem.

Hi guys as well as the above my biggest problems are the trembling, headaches and left leg going numb, pain horrific. I am assuming that it is is my back and...

Hi guys as well as the above my biggest problems are the trembling, headaches an...

•5 years ago

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Dietary Supplement Scams

Dietary Supplement Scams AARP | Comments: 0 En español | The U.S. Food and Drug Administration (FDA) doesn’t evaluate the safety and effectiveness of dietary...

Dietary Supplement Scams AARP | Comments: 0 En español | The U.S. Food and Dru...

•5 years ago

Belated Happy Christmas Everyone and a few questions.....

Hi. I hope you all had a great Christmas. It was my first one as a full wheelchair user and a bit difficult in different houses; but we managed. I now have my...

Hi. I hope you all had a great Christmas. It was my first one as a full wheelcha...

•5 years ago

Hyperextended Knee?

Seasons greetings all! Haven't written on here for a while but I do read regularly what everyone else posts. I have a quick question does anyone have or had a...

Seasons greetings all! Haven't written on here for a while but I do read regula...

•5 years ago

Sulforaphane. Now in supplement form. Best sup yet to cure SCA?

I recently stopped taking Chinese Skullcap and have replaced that supplement with BroccoMax by Jarrow. This supplement is being heavily studied by scientists...

I recently stopped taking Chinese Skullcap and have replaced that supplement wit...

•5 years ago

Merry Christmas everyone

To all sufferers of Ataxia, their families and friends, carers and everyone who helps support those afflicted, I wish you all a very merry Christmas and a...

To all sufferers of Ataxia, their families and friends, carers and everyone who ...

ww-wibblywobbly

•5 years ago

Skin On Feet Darkening?

Just noticed a funny thing, the skin on my feet has/is turned/turning dark grey to black.No pain or tingling or anything. It’s from the toes up to and nearly...

Just noticed a funny thing, the skin on my feet has/is turned/turning dark grey ...

•5 years ago

This is effect of tasigna from korean’s ataxia suffer

https://youtu.be/BMFnImwuUd0

https://youtu.be/BMFnImwuUd0

•5 years ago

HAPPY FESTIVITIES & GRT NEW YEAR 2020!

•5 years ago

Ataxia type 8? Confused!

For the last 4 years we’ve been trying to figure out what type of ataxia I have. My mother has alot of the same symptoms as I do but has never officially been...

For the last 4 years we’ve been trying to figure out what type of ataxia I have....

•5 years ago

Botox injections

Good morning My husband saw the team under Prof Giunti at UCL the other day and they have suggested two different procedures for pain relief. The first is to...

Good morning My husband saw the team under Prof Giunti at UCL the other day and ...

•5 years ago

England

I'm sorry that this may seem so silly and trivial. I'm in America and have been watching THE CROWN on tv. Since i know nothing about england i want to know if...

I'm sorry that this may seem so silly and trivial. I'm in America and have been ...

•5 years ago

Promising news re FA

🙂 Progress can be followed by logging onto www.clinicaltrials.gov NCT04176991 About CTI-1601 Discovered by R. Mark Payne, MD, at Indiana University School of...

🙂 Progress can be followed by logging onto www.clinicaltrials.gov NCT04176991 A...

•5 years ago

A possible help with Nystagmus

NYSTAGMUS Nystagmus most commonly causes the eyes to move involuntarily from side to side in a rapid, swinging motion. It can also cause the eyes to jerk...

NYSTAGMUS Nystagmus most commonly causes the eyes to move involuntarily from si...

•5 years ago

Biohaven Troriluzole Study in the US

🙂 Although this Study is US based, it’s an interesting read. Spinocerebellar Ataxia Study Have you or a loved one been diagnosed with Spinocerebellar Ataxia...

🙂 Although this Study is US based, it’s an interesting read. Spinocerebellar At...

•5 years ago

Update cloudy blind vision

Hi, Update from my previous post I saw my GP last week and told him about my cloudy blind vision episodes. The only suggestion he could think of was a drop in...

Hi, Update from my previous post I saw my GP last week and told him about my clo...

ww-wibblywobbly

•5 years ago

Choking

My mom has been coughing a lot lately. She says it feels like she’s choking on her own spit. Does this sound familiar to anyone? Advice?

My mom has been coughing a lot lately. She says it feels like she’s choking on h...

•5 years ago

Shingles Vaccination

I have 2 unrelated questions. Has anyone with Cerebellar Ataxia had a Shingles jab. Were there any side effects. Has anyone with Cerebellar Ataxia used...

I have 2 unrelated questions. Has anyone with Cerebellar Ataxia had a Shingles...

•5 years ago

Logistics is a useful word

This word was not in my vocabulary before we started a parcel delivery business but now I find it very useful in life with ataxia. My husband has at last...

This word was not in my vocabulary before we started a parcel delivery business...

•5 years ago

Treatment for bladder, bowel and sexual function

Uro-Neurology (UCLH Queen Square, London) Many neurological conditions can cause problems with bladder, bowel or sexual function. We offer a multidisciplinary...

Uro-Neurology (UCLH Queen Square, London) Many neurological conditions can caus...

•5 years ago

Greeting friends and family

how do you cope greeting people?

how do you cope greeting people?

•5 years ago

Xmas Again!!!!

Morning everyone. I have the late onset of FA. Its not very often I post on this site although I am a member but I do read all your posts. Would just like to...

Morning everyone. I have the late onset of FA. Its not very often I post on this...

•5 years ago

How long after referral.....

Hi guys can anyone tell me how long after seeing GP for a referral to Sheffield, did it take for an appointment. Sorry really tired all the time, cannot seem...

Hi guys can anyone tell me how long after seeing GP for a referral to Sheffield,...

•5 years ago

A Glorious Morning

•5 years ago

HAPPY CHRISTMAS X

Happy Christmas and New Year x

Happy Christmas and New Year x

•5 years ago

The news

Does anyone remember the good old days when we turned on the radio or TV to see or listen to the news?!? Well these days my wife and I turn it OFF when it...

Does anyone remember the good old days when we turned on the radio or TV to see ...

•5 years ago

The 3 main ‘types’ of ataxia (not SCA)

Ataxia--Recognition and Approach Ronaldo Casimiro da Costa, DMV, MSc, PhD, DACVIM (Neurology) The Ohio State University Columbus, OH, USA Ataxia is the same...

Ataxia--Recognition and Approach Ronaldo Casimiro da Costa, DMV, MSc, PhD, DACVI...

•5 years ago

Anyone else get this ?

Over the past few years, my Cerebellar Ataxia has been getting worse, in the way I walk and the strength in my core and legs (thats gone away on sabbatical)m...

Over the past few years, my Cerebellar Ataxia has been getting worse, in the wa...

•5 years ago

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