Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for March 2020

Hi guys and girls

My heart goes out to everyone who are stuck indoors and don't have a balcony or garden I'm so lucky i have a garden.I live alone but being able to hobble out...

My heart goes out to everyone who are stuck indoors and don't have a balcony or ...

Arlo20

•5 years ago

6 Replies

Due to see my neurologist but don’t know if they’re doing clinical appointments & unsure wether to ring them or not.

Just after a bit of advice if possible. I absolutely understand how busy the nhs hospital etc are hence why I’m asking a question on here(I’ve also an...

Just after a bit of advice if possible. I absolutely understand how busy the nhs...

Legs-alive

•5 years ago

8 Replies

Even more frustrated

Many thanks to everyone who replied. What are Sainsburys playing at? I have tried phoning, either BT intercepts my calls or I get a long recorded message and...

Many thanks to everyone who replied. What are Sainsburys playing at? I have tri...

lorrainewalls

•5 years ago

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Covid-19. Updated Ataxia UK advice 30.3.2020

Dear all The Ataxia UK advice for Coronavirus (Covid-19) for people with Ataxia has been updated today and is on the Ataxia UK website. The link is...

Dear all The Ataxia UK advice for Coronavirus (Covid-19) for people with Ataxia ...

HarryB

Administrator•5 years ago

3 Replies

From Ataxia UK website re Covid-19 - Are you classed as 'vulnerable'

Dear all I thought it would be helpful to signpost this piece of information that went onto the Ataxia UK website today - 'Registering as extremely...

Dear all I thought it would be helpful to signpost this piece of information tha...

HarryB

Administrator•5 years ago

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Increasingly frustrated

For the past 10 years or more I've had online shopping with Sainsburys. Now the elderly, (I think I qualify as I am over 70), the disabled, (I have had...

For the past 10 years or more I've had online shopping with Sainsburys. Now the ...

lorrainewalls

•5 years ago

6 Replies

Why are no Neurological diseases on Govn list

I can’t understand why advanced chronic neurological diseases (such as Ataxia, Parkinsons and MS) were on the original Gov. vulnerable list but not now on...

I can’t understand why advanced chronic neurological diseases (such as Ataxia, P...

Litty

•5 years ago

6 Replies

Coronavirus

I would like to share our story with you.My husband who is 88 went to our local market 3 weeks ago before self isolating was recommended.He felt unwell 4days...

I would like to share our story with you.My husband who is 88 went to our local ...

Trinity1948

•5 years ago

11 Replies

Time change

To all members in the Uk, remember to put your clocks forward one hour before going to bed tonight, tomorrow is the first day of British Summertime.

To all members in the Uk, remember to put your clocks forward one hour before go...

Veteran250

•5 years ago

8 Replies

Ataxia, and the Corona Virus

https://www.ataxia.org.uk/Handlers/Download.ashx?IDMF=c0e75590-b72d-4293-9e96-2acc3bc327a5 Please click on the link, and click on the redirect for advice from...

https://www.ataxia.org.uk/Handlers/Download.ashx?IDMF=c0e75590-b72d-4293-9e96-2a...

wobblybee

•5 years ago

2 Replies

Ginger Beer Plants

https://www.theguardian.com/lifeandstyle/wordofmouth/2011/jun/29/how-make-real-ginger-beer This amusing article reminded me of trying this when I was younger....

https://www.theguardian.com/lifeandstyle/wordofmouth/2011/jun/29/how-make-real-g...

Sailor_Girl

•5 years ago

2 Replies

About me

Trans Woman

Sailor_Girl

•5 years ago

6 Replies

Stir crazy or just plain crazy!! :)

This was me, starting to go crazy from no social contact! So decorated my new glasses (I don't like them much) as a challenge from a friend

This was me, starting to go crazy from no social contact! So decorated my new g...

ww-wibblywobbly

•5 years ago

8 Replies

I know we have to keep going!

This is partly to do with conversations that I have been having on the site recently and my new found admiration for cocoa, not the drink. You keep going...

This is partly to do with conversations that I have been having on the site rece...

DeniseLB

•5 years ago

10 Replies

Help

Hi everyone in this cruel world I’m asking for your advice again. I saw my consultant in January and she said my progress in the last year hadn’t been much so...

Hi everyone in this cruel world I’m asking for your advice again. I saw my consu...

weegiz12345

•5 years ago

30 Replies

Thank you sooo

Thank you sooo much for yesterday’s webinar chat with Dr Paola Giunti and the wonderful people who organised. So comforting and reassuring. Thank you 🙏

Thank you sooo much for yesterday’s webinar chat with Dr Paola Giunti and the wo...

Hidden

•5 years ago

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THANK YOU ALL X

Huge thanks to everyone at Ataxia UK especially Dr Giunti and Sue Millman. I am so glad Ian was in charge of connecting us!!! Lots of love to all Ian and...

Huge thanks to everyone at Ataxia UK especially Dr Giunti and Sue Millman. I am ...

Litty

•5 years ago

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Another Day, another challenge

First the door lock failed on washing machine and engineer cant come till 31 March; I slipped on bathroom floor and Ken had to get bath lift out to lift me off...

First the door lock failed on washing machine and engineer cant come till 31 Mar...

PatsyIpswich

•5 years ago

9 Replies

Will progressive Ataxia’s be included in this new grouping

The prime minister has today made a speech regarding new measures that’s going to be taking place for certain illnesses. If you fall into the category then...

The prime minister has today made a speech regarding new measures that’s going t...

Legs-alive

•5 years ago

4 Replies

Exercise, exercise, exercise!

All Ataxians are told that the only treatment for our condition is exercise. Exercise can lead to a slowing down of symptoms or even keep them in a plateau....

All Ataxians are told that the only treatment for our condition is exercise. E...

Libra7

•5 years ago

11 Replies

baby milk

No baby milk or nappies in the shops for our 9 month old grandaughter,

auntiesally

•5 years ago

6 Replies

Am I vulnerable?

Hi all....I am 54 and have SCA 44. Am I still classed as vulnerable with low immune system? The advice from Government is anyone with CHRONIC (long term)...

Hi all....I am 54 and have SCA 44. Am I still classed as vulnerable with low imm...

lonesome

•5 years ago

4 Replies

Ataxia UK webinar on Covid-19

Copy and pasted from Facebook- Hi everyone, hope you’re all well. We know that there is a lot of uncertainty at the moment and that a lot of you have...

Copy and pasted from Facebook- Hi everyone, hope you’re all well. We know that t...

HarryB

Administrator•5 years ago

12 Replies

Interesting news re SCA3

🙂Pease click on the link, and click on the redirect. https://scasource.net/2020/03/20/gene-therapy-validated-in-human-sca3-stem-cells/

🙂Pease click on the link, and click on the redirect. https://scasource.net/202...

wobblybee

•5 years ago

2 Replies

Covid-19. Updated Ataxia UK advice.

Dear all The Ataxia UK advice for Coronavirus (Covid-19) for people with Ataxia has been updated today and is on the Ataxia UK website. The link is...

Dear all The Ataxia UK advice for Coronavirus (Covid-19) for people with Ataxia ...

HarryB

Administrator•5 years ago

5 Replies

Coronavirus and self isolation

Hi everyone, I have FA and although have no particular problems (such as diabetes) I am wondering if I should be self-isolating or at least limiting social...

Hi everyone, I have FA and although have no particular problems (such as diabete...

dansybelle

•5 years ago

17 Replies

Ataxia

Hi, I am in my 40s' I used to smoke marijuana in my younger years and I have been diagnosed with ataxia from about five years ago, my doctor and physical...

Hi, I am in my 40s' I used to smoke marijuana in my younger years and I have bee...

muttaxe

•5 years ago

11 Replies

How do we help her?

Hi my sister in law suffers with ataxia to the point now where she can hardly walk and she is always falling over we as a family feel she needs help but she...

Hi my sister in law suffers with ataxia to the point now where she can hardly wa...

Sookie57

•5 years ago

10 Replies

Re Powered Wheelchair

Hi Everyone I was hoping to get a powered wheelchair through the NHS as I am really struggling with my manual chair. But as I can push myself in my house (its...

Hi Everyone I was hoping to get a powered wheelchair through the NHS as I am rea...

Grapes12

•5 years ago

13 Replies

Which Rollator?

I am looking at the Trionic site and want to know which would be better - a walker or a veloped (both with 14 inch wheels)? It will be used mainly outdoors and...

I am looking at the Trionic site and want to know which would be better - a walk...

Poppy214

•5 years ago

16 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for March 2020

Hi guys and girls

Due to see my neurologist but don’t know if they’re doing clinical appointments & unsure wether to ring them or not.

Even more frustrated

Covid-19. Updated Ataxia UK advice 30.3.2020

From Ataxia UK website re Covid-19 - Are you classed as 'vulnerable'

Increasingly frustrated

Why are no Neurological diseases on Govn list

Coronavirus

Time change

Ataxia, and the Corona Virus

Ginger Beer Plants

About me

Stir crazy or just plain crazy!! :)

I know we have to keep going!

Help

Thank you sooo

THANK YOU ALL X

Another Day, another challenge

Will progressive Ataxia’s be included in this new grouping

Exercise, exercise, exercise!

baby milk

Am I vulnerable?

Ataxia UK webinar on Covid-19

Interesting news re SCA3

Covid-19. Updated Ataxia UK advice.

Coronavirus and self isolation

Ataxia

How do we help her?

Re Powered Wheelchair

Which Rollator?

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive