Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,021 members4,557 posts

All posts for March 2020

Hi guys and girls

My heart goes out to everyone who are stuck indoors and don't have a balcony or ...
Arlo20 profile image

Due to see my neurologist but don’t know if they’re doing clinical appointments & unsure wether to ring them or not.

Just after a bit of advice if possible. I absolutely understand how busy the nhs...
Legs-alive profile image

Even more frustrated

Many thanks to everyone who replied. What are Sainsburys playing at? I have tri...
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Covid-19. Updated Ataxia UK advice 30.3.2020

Dear all The Ataxia UK advice for Coronavirus (Covid-19) for people with Ataxia ...
HarryB profile image
Administrator

From Ataxia UK website re Covid-19 - Are you classed as 'vulnerable'

Dear all I thought it would be helpful to signpost this piece of information tha...
HarryB profile image
Administrator

Increasingly frustrated

For the past 10 years or more I've had online shopping with Sainsburys. Now the ...

Why are no Neurological diseases on Govn list

I can’t understand why advanced chronic neurological diseases (such as Ataxia, P...
Litty profile image

Coronavirus

I would like to share our story with you.My husband who is 88 went to our local ...
Trinity1948 profile image

Time change

To all members in the Uk, remember to put your clocks forward one hour before go...
Veteran250 profile image

Ataxia, and the Corona Virus

https://www.ataxia.org.uk/Handlers/Download.ashx?IDMF=c0e75590-b72d-4293-9e96-2a...
wobblybee profile image

Ginger Beer Plants

https://www.theguardian.com/lifeandstyle/wordofmouth/2011/jun/29/how-make-real-g...
Sailor_Girl profile image

About me

Trans Woman
Sailor_Girl profile image

Stir crazy or just plain crazy!! :)

This was me, starting to go crazy from no social contact! So decorated my new g...

I know we have to keep going!

This is partly to do with conversations that I have been having on the site rece...
DeniseLB profile image

Help

Hi everyone in this cruel world I’m asking for your advice again. I saw my consu...
weegiz12345 profile image

Thank you sooo

Thank you sooo much for yesterday’s webinar chat with Dr Paola Giunti and the wo...

THANK YOU ALL X

Huge thanks to everyone at Ataxia UK especially Dr Giunti and Sue Millman. I am ...

Another Day, another challenge

First the door lock failed on washing machine and engineer cant come till 31 Mar...
PatsyIpswich profile image

Will progressive Ataxia’s be included in this new grouping

The prime minister has today made a speech regarding new measures that’s going t...
Legs-alive profile image

Exercise, exercise, exercise!

All Ataxians are told that the only treatment for our condition is exercise. E...
Libra7 profile image

baby milk

No baby milk or nappies in the shops for our 9 month old grandaughter,
auntiesally profile image

Am I vulnerable?

Hi all....I am 54 and have SCA 44. Am I still classed as vulnerable with low imm...
lonesome profile image

Ataxia UK webinar on Covid-19

Copy and pasted from Facebook- Hi everyone, hope you’re all well. We know that t...
HarryB profile image
Administrator

Interesting news re SCA3

🙂Pease click on the link, and click on the redirect. https://scasource.net/202...
wobblybee profile image

Covid-19. Updated Ataxia UK advice.

Dear all The Ataxia UK advice for Coronavirus (Covid-19) for people with Ataxia ...
HarryB profile image
Administrator

Coronavirus and self isolation

Hi everyone, I have FA and although have no particular problems (such as diabete...
dansybelle profile image

Ataxia

Hi, I am in my 40s' I used to smoke marijuana in my younger years and I have bee...
muttaxe profile image

How do we help her?

Hi my sister in law suffers with ataxia to the point now where she can hardly wa...
Sookie57 profile image

Re Powered Wheelchair

Hi Everyone I was hoping to get a powered wheelchair through the NHS as I am rea...
Grapes12 profile image

Which Rollator?

I am looking at the Trionic site and want to know which would be better - a walk...
Poppy214 profile image