Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for August 2024

Nutrition advice

Hello everyone, I'm a 50 year old male and have recently been diagnosed with Ataxia due to hereditary SPG7. Has anyone got any advice about what I should eat...

Hello everyone, I'm a 50 year old male and have recently been diagnosed with A...

•5 months ago

For anybody still Idiopathic

In 2023, the gene that causes a type of late-onset spinocerebellar ataxia called SCA27B was discovered. Since then, researchers have been developing a genetic...

In 2023, the gene that causes a type of late-onset spinocerebellar ataxia called...

•5 months ago

wheelchair

hi, that’s me back to using a wheelchair. I have been trying to a void the wheelchair for a while. But my ataxia is getting the better of me.

hi, that’s me back to using a wheelchair. I have been trying to a void the wheel...

•5 months ago

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A Webinair discussing the potential of Gene Therapy as treatment for Ataxia.

🙂 UK TIME…..7.30PM Join NAF on August 22nd at 1:30 pm CDT for our webinar on Gene Therapy. In this session, Dr. Carolyn Yrigollen will teach us what gene...

🙂 UK TIME…..7.30PM Join NAF on August 22nd at 1:30 pm CDT for our webinar on...

•5 months ago

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For Parents of Children with Ataxia

🙂If you are a Parent of a child diagnosed with ataxia…this is an opportunity to join a Webinair with a Specialist Paediatric Neurologist. UK TIME ……..7PM...

🙂If you are a Parent of a child diagnosed with ataxia…this is an opportunity to...

•5 months ago

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Covid and Ataxia

I have SCA6 and recently tested positive for Covid. I have none of the usual Covid symptoms but my Ataxia symptoms are much worse. Impossibly dizzy,...

I have SCA6 and recently tested positive for Covid. I have none of the usual Co...

•5 months ago

Genetics results: Anyone with AOA4 in UK?

Hi, After many years without a diagnosis, I finally got Whole Gene Sequencing done myself (with Nebula Genomics). In my data I screened ~1300+ neurology genes,...

Hi, After many years without a diagnosis, I finally got Whole Gene Sequencing do...

•5 months ago

my Ataxia

I was recently chatting with my elder Brother about Ataxia….. he told me that I was born with body tremors, but as far as I know, it was never investigated. I...

I was recently chatting with my elder Brother about Ataxia….. he told me that I ...

•5 months ago

Dealing with minor Speech issues.

🙂 Many of us have noticed changes in our Speech…it can be embarrassing and frustrating. If this becomes a real problem we’re generally referred to a Speech...

🙂 Many of us have noticed changes in our Speech…it can be embarrassing and frus...

•5 months ago

Opsoclonus Myoclonus Ataxia? Anyone?

Does anyone here have Opsoclonus Myoclonus Ataxia ( OMA)? Diagnosed with this apparently rare (in Adults & in UK). After a near fatal Viral Meningitis in...

Does anyone here have Opsoclonus Myoclonus Ataxia ( OMA)? Diagnosed with this a...

•5 months ago

hip replacement

hi folks, I have FA (still ambulant with aids) and have been told I need a hip replacement. Does anyone have experience of a hip replacement as an FA sufferer...

hi folks, I have FA (still ambulant with aids) and have been told I need a hip ...

•6 months ago

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