Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,080 members • 4,648 posts

All posts for August 2024

Nutrition advice

Hello everyone, I'm a 50 year old male and have recently been diagnosed with Ataxia due to hereditary SPG7. Has anyone got any advice about what I should eat...

Hello everyone, I'm a 50 year old male and have recently been diagnosed with A...

•1 month ago

For anybody still Idiopathic

In 2023, the gene that causes a type of late-onset spinocerebellar ataxia called SCA27B was discovered. Since then, researchers have been developing a genetic...

In 2023, the gene that causes a type of late-onset spinocerebellar ataxia called...

•1 month ago

wheelchair

hi, that’s me back to using a wheelchair. I have been trying to a void the wheelchair for a while. But my ataxia is getting the better of me.

hi, that’s me back to using a wheelchair. I have been trying to a void the wheel...

•2 months ago

Want to take advantage of all our features? Just log in!

or

A Webinair discussing the potential of Gene Therapy as treatment for Ataxia.

🙂 UK TIME…..7.30PM Join NAF on August 22nd at 1:30 pm CDT for our webinar on Gene Therapy. In this session, Dr. Carolyn Yrigollen will teach us what gene...

🙂 UK TIME…..7.30PM Join NAF on August 22nd at 1:30 pm CDT for our webinar on...

•2 months ago

Be the first to reply

For Parents of Children with Ataxia

🙂If you are a Parent of a child diagnosed with ataxia…this is an opportunity to join a Webinair with a Specialist Paediatric Neurologist. UK TIME ……..7PM...

🙂If you are a Parent of a child diagnosed with ataxia…this is an opportunity to...

•2 months ago

Be the first to reply

Covid and Ataxia

I have SCA6 and recently tested positive for Covid. I have none of the usual Covid symptoms but my Ataxia symptoms are much worse. Impossibly dizzy,...

I have SCA6 and recently tested positive for Covid. I have none of the usual Co...

•2 months ago

Genetics results: Anyone with AOA4 in UK?

Hi, After many years without a diagnosis, I finally got Whole Gene Sequencing done myself (with Nebula Genomics). In my data I screened ~1300+ neurology genes,...

Hi, After many years without a diagnosis, I finally got Whole Gene Sequencing do...

•2 months ago

my Ataxia

I was recently chatting with my elder Brother about Ataxia….. he told me that I was born with body tremors, but as far as I know, it was never investigated. I...

I was recently chatting with my elder Brother about Ataxia….. he told me that I ...

•2 months ago

Dealing with minor Speech issues.

🙂 Many of us have noticed changes in our Speech…it can be embarrassing and frustrating. If this becomes a real problem we’re generally referred to a Speech...

🙂 Many of us have noticed changes in our Speech…it can be embarrassing and frus...

•2 months ago

Opsoclonus Myoclonus Ataxia? Anyone?

Does anyone here have Opsoclonus Myoclonus Ataxia ( OMA)? Diagnosed with this apparently rare (in Adults & in UK). After a near fatal Viral Meningitis in...

Does anyone here have Opsoclonus Myoclonus Ataxia ( OMA)? Diagnosed with this a...

•2 months ago

hip replacement

hi folks, I have FA (still ambulant with aids) and have been told I need a hip replacement. Does anyone have experience of a hip replacement as an FA sufferer...

hi folks, I have FA (still ambulant with aids) and have been told I need a hip ...

•2 months ago

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

All things Ataxia UK(464)

Research projects(38)

Our publications(1)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May Jun Jul Aug Sep Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan

Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec