Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,110 members•4,689 posts

All posts for November 2015

Rombergs test

Does anyone know if they have been tested to be Rombergs positive (the inability to to stand still with feet together and eyes shut)?

Does anyone know if they have been tested to be Rombergs positive (the inability...

Hidden

•9 years ago

13 Replies

Contracted neck

Does anyone else suffer from their neck muscles contracting up. Every time I use a lot of effort to do something my neck contracts up, which then results in...

Does anyone else suffer from their neck muscles contracting up. Every time I use...

wibblywobbly

•9 years ago

4 Replies

BalanceWear is now in Denmark

BalanceWear at Skodsborg fysiotherapy (20 km from Copenhagen) Ataxie , I saw patients at Skodsborg Myself I have MS and the balancewear vest works fine

BalanceWear at Skodsborg fysiotherapy (20 km from Copenhagen) Ataxie , I saw pat...

Hidden

•9 years ago

5 Replies

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PIP initial verdict

Well I filled out the form , attended the interview, now they tell me I can walk too far to get higher rate mobility................. now they want the car...

Well I filled out the form , attended the interview, now they tell me I can walk...

Nigel-2112

•9 years ago

8 Replies

BalanceWear is in Denmark now

Hi, In Skodsborg (20 km from) is BalanceWear amiable since 3 November Skodsborg fysiotherapy is certified.

Hi, In Skodsborg (20 km from) is BalanceWear amiable since 3 November Skodsborg...

Hidden

•9 years ago

1 Reply

Spinocerebellar ataxia type 6 test

I wonder if anyone could give me a bit of advice. My Aunt has just been tested positive for spinocerebellar ataxia type 6, and my Mum has all the classic...

I wonder if anyone could give me a bit of advice. My Aunt has just been tested p...

molgin

•9 years ago

14 Replies

Ataxia Cro

Hi! My name is Bozena, 33.years, I am from Croatia... so I apologize for bad engkish because it's not my home language :) I have ataxia for 2 years now, but...

Hi! My name is Bozena, 33.years, I am from Croatia... so I apologize for bad eng...

boki

•9 years ago

27 Replies

hydrocephalus

last time I saw the neuro bod he said I had hydrocephalus and might benefit from having a shunt to drain off the CSF - he diagnosed me with cerebellar ataxia 1...

last time I saw the neuro bod he said I had hydrocephalus and might benefit from...

sylviagreenhalgh

•9 years ago

1 Reply

Is seeing a Neurologist on a regular basis essential?

I was diagnosed with Cerebellar atrophy in 2010 and the last time I had seen a Neurologist was in 2011. I was also a regular member of the West of Scotland...

I was diagnosed with Cerebellar atrophy in 2010 and the last time I had seen a N...

Hidden

•9 years ago

15 Replies

help I am scared of losing everything

hi everyone walked out of my job on Thursday due to a colleague being not very nice I told my boss a few times and he told me to ignore him but he started...

hi everyone walked out of my job on Thursday due to a colleague being not very n...

tino1234

•9 years ago

27 Replies

Bath or shower?

Has any of you with ataxia got the bath/shower dilemma? I use a wheelchair for mobility but can still transfer and stand up if holding on. A wet room has been...

Has any of you with ataxia got the bath/shower dilemma? I use a wheelchair for m...

pennypoop

•9 years ago

18 Replies

PIP assessment face to face appointment

Hiya, I'm new here, I was diagnosed with spinocerebellar ataxia sca2 at the end of July this year, and left work due to ill health in September (i'm 26) I...

Hiya, I'm new here, I was diagnosed with spinocerebellar ataxia sca2 at the end ...

Caraxxo

•9 years ago

3 Replies

Stopping Work

Hi. I have had symptoms for many years and was diagnosed with SCA2 last year. I am still working but finding it increasingly difficult. To be fair, my employer...

Hi. I have had symptoms for many years and was diagnosed with SCA2 last year. I ...

RobertV

•9 years ago

9 Replies

How completely do you discuss your physical problems with your family members, friends or acquaintences?

In reading through the posts on this site, with the exception of occasional mentions of spouses, parents and children, I have not noticed many people mention...

In reading through the posts on this site, with the exception of occasional ment...

jneilw51

•9 years ago

4 Replies

Anybody heard this before.....

When I accompanied my husband to the London Ataxia clinic it was mentioned that it is a possibility that his faulty SCA gene (not yet discovered which one it...

When I accompanied my husband to the London Ataxia clinic it was mentioned that ...

Stanleyclan

•9 years ago

7 Replies

The Genetic Alliance would like your help...

Dear all The Genetic Alliance are coordinating a survey on the use and regulation of gene editing technologies. The survey is part of a European wide drive to...

Dear all The Genetic Alliance are coordinating a survey on the use and regulati...

HarryB

Administrator•9 years ago

1 Reply

Waiting Game...

So today i went to see the Dr who took my blood to test for SCA2. She was brilliant in all honesty she explained everything as best she could and best of all...

So today i went to see the Dr who took my blood to test for SCA2. She was brill...

ToniM

•9 years ago

14 Replies

Numb end of nose

Hello everyone...does anyone get numbness on the end of there nose? I get it every now and then ..my dr said he's never heard of that before :/ x

Hello everyone...does anyone get numbness on the end of there nose? I get it eve...

kareen

•9 years ago

11 Replies

Neurologist..??

Seeing a neurologist is a waste of time.After seeing one are you any wiser of your condition. Only way to learn more about ataxia is to meet people who...

Seeing a neurologist is a waste of time.After seeing one are you any wiser o...

baslow

•9 years ago

10 Replies

Wobbly in a wheelchair

Hi I have a problem when out in my new manual wheelchair, and am just wondering if it is typical of ataxia and/or Miotchondrial disease (which I have a...

Hi I have a problem when out in my new manual wheelchair, and am just wondering ...

sheild

•9 years ago

3 Replies

wrikly finger tips?

I get wrinkly finger tips and cold feet. Is this common to anyone?

scruffycat

•9 years ago

8 Replies

Vestibule Cellebellur Ataxia

Hi, I wonder if anyone can help. My mums has recently been given the above diagnosis, following a year of back and forth. Neither of us had heard of it...

Hi, I wonder if anyone can help. My mums has recently been given the above diag...

happynicnac

•9 years ago

4 Replies

Spinocerebellar ataxia type 6

Hi ev1 I am desperate for help. And advice...my mum has sa6 and I have been diagnosed for 2 years I am 43, I get so much pain in my legs especially my left leg...

Hi ev1 I am desperate for help. And advice...my mum has sa6 and I have been diag...

kareen

•9 years ago

22 Replies

Coughing?

There is a gene for ataxia in my family so my dad me and my 2 brothers have it also. My dad suffers very much from incessant coughing. He coughs a lot,...

There is a gene for ataxia in my family so my dad me and my 2 brothers have it a...

ljp103

•9 years ago

4 Replies

Ataxia fundraiser

Really enjoyed the event, wasn't a great turn out, but still managed to raise £300. That was including some money I had been donated from people. Well worth...

Really enjoyed the event, wasn't a great turn out, but still managed to raise £...

babygirl123

•9 years ago

5 Replies

A question

My present problem is weaving.tripping, heavy + legs or floppy legs. These happening at different times depending it seems on degree of exertion or usage. No...

My present problem is weaving.tripping, heavy + legs or floppy legs. These happe...

Pec2884

•9 years ago

2 Replies

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Posts - Ataxia UK | HealthUnlocked

Ataxia UK

All posts for November 2015

Rombergs test

Contracted neck

BalanceWear is now in Denmark

PIP initial verdict

BalanceWear is in Denmark now

Spinocerebellar ataxia type 6 test

Ataxia Cro

hydrocephalus

Is seeing a Neurologist on a regular basis essential?

help I am scared of losing everything

Bath or shower?

PIP assessment face to face appointment

Stopping Work

How completely do you discuss your physical problems with your family members, friends or acquaintences?

Anybody heard this before.....

The Genetic Alliance would like your help...

Waiting Game...

Numb end of nose

Neurologist..??

Wobbly in a wheelchair

wrikly finger tips?

Vestibule Cellebellur Ataxia

Spinocerebellar ataxia type 6

Coughing?

Ataxia fundraiser

A question

Search posts

Latest poll

How long have you or your relative/friend been diagnosed with ataxia?

Topics

Archive