Posts - Ataxia UK | HealthUnlocked

Ataxia UK

4,028 members • 4,569 posts

All posts for December 2012

Happy New Year

Bit slow, but hope you all had a great Christmas. Happy 2013 too! XXX

Bit slow, but hope you all had a great Christmas. Happy 2013 too! XXX

•11 years ago

Just wondering if we have a lower immunue system with CA?

•11 years ago

Anyone been diagnosed or heard of 'Cerebellar Cognitive Affective Syndrome'

I can't seem to find any information on this condition on the Ataxia UK site? I would just like to know other peoples thoughts on this. I've read a little...

I can't seem to find any information on this condition on the Ataxia UK site? I ...

•11 years ago

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Board of Trustees and my poor memory

I would just like to congratulate Dr. Harriet Bonney into her new role on the Ataxia UK board of Trustees. I know Harriet quite well and find her a very kind...

I would just like to congratulate Dr. Harriet Bonney into her new role on the At...

•11 years ago

Happy Christmas to you all!

Hi folks! Happy Christmas everyone! As promised, here is my parcel from my Transatlantic ataxic friend which I have just opened and wanted to share with...

Hi folks! Happy Christmas everyone! As promised, here is my parcel from my Tr...

•11 years ago

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To my new friends

Have a nice Christmas to all the good people on here T xx

Have a nice Christmas to all the good people on here T xx

•11 years ago

Does anyone know what medication I can take to prolong my life? I'm only 26 and have ataxia unknown cause?

•11 years ago

Only Women Allowed!

I was really lacking in self-confidence, and had all the thoughts and feelings we all would rather be without! Most of us have been there at one time or...

I was really lacking in self-confidence, and had all the thoughts and feelings ...

•11 years ago

A gift to you all (I read this on one of the other HealthUnlocked sites. It's Christmas, many people might appreciate the sentiment).

I am sending out a gift, To you and all my friends. Use it all you want, It never, ever ends. I've stored it on a cloud, That's not so far away. You...

I am sending out a gift, To you and all my friends. Use it all you want, It n...

•11 years ago

Would you like to help ataxia research?

Dr Kai Uus’ audiology research team at Manchester University is investigating hearing, in particular the ability to perceive speech in the presence of...

Dr Kai Uus’ audiology research team at Manchester University is investigating he...

•11 years ago

Didn`t expect this

I`ve suffered from (Cluster headaches) dizziness and balance loss for numerous years. Tried all the medication given by consultant - but none really helped. It...

I`ve suffered from (Cluster headaches) dizziness and balance loss for numerous y...

•11 years ago

On behalf of 'tedjohnson' - 'I would be most interested in details of exercises fellow Ataxians do and how they find what the results are.'

Administrator•11 years ago

On behalf of 'tedjohnson' - Does anyone have a virtually constant mussy head with delayed focussing?

The trouble I suppose is we don't know whether these things are caused by Ataxia or whether it is something totally independent of Ataxia.

The trouble I suppose is we don't know whether these things are caused by Ataxia...

Administrator•11 years ago

has anyone found any ware on the disabledgo website listed or is it just me who expected somewhere from "the ataxian" to be of use

•11 years ago

Kim Wilde - We love her!

If you have not already seen it. Brilliant! We love our Ataxia UK patron X http://news.sky.com/story/1025722/kim-wilde-singing-on-train-video-goes-viral

If you have not already seen it. Brilliant! We love our Ataxia UK patron X http...

•11 years ago

Computing and Ataxia

A friend - suffering from SCA- suggested this keyboard. Would you agree ? Regards Jurgen ****************** Logitech Illuminated Keyboard Happy tapping...

A friend - suffering from SCA- suggested this keyboard. Would you agree ? Rega...

•11 years ago

Does anyone have a child with Friedrich's around 11 years old?

•11 years ago

Anyone with an infant with ataxia?

We are waiting for a formal diagnosis, we have had an MRI which shows that my one year olds cerebellum is smaller than it should be and has deep furrows on...

We are waiting for a formal diagnosis, we have had an MRI which shows that my on...

•11 years ago

anyone know anything about "co q10"

there is a lot of talk about the about the benefits/downsides of taking it,I was wondering about trying it as a just in case type of thing can it hurt? [apart...

there is a lot of talk about the about the benefits/downsides of taking it,I was...

•11 years ago

Has anyone been diagnosed with Hashimotos Encephalopathy?

•11 years ago

My 5 year old has FA and is very tactile with other children - hugging, holding hands, stroking hair, etc Is this a feature of FA?

We do not know whether this should be discouraged so that behaviour is more socially acceptable or whether it is due to the FA, dulling the senses and...

We do not know whether this should be discouraged so that behaviour is more soci...

•11 years ago

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